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Confused & anxious about APS
Hello. In 11/2020 I developed necrotic finger tip ulcers on 2 fingers. Saw vascular surgeon who said Burgers since I was a long time smoker. Referred to see a rheumatologist , & B2 g igm was high. Nothing else. She said aspirin .I stopped smoking. Thinking it was Buergers, was referred to a
Hello. In 11/2020 I developed necrotic finger tip ulcers on 2 fingers. Saw vascular surgeon who said Burgers since I was a long time smoker. Referred to see a rheumatologist , & B2 g igm was high. Nothing else. She said aspirin .I stopped smoking. Thinking it was Buergers, was referred to a
Rekrats
in
Hughes Syndrome APS Forum
2 years ago
Not injecting IVIG due to low IGA
Hi, after 9 days of fever, two negative PCR tests, and taking oral antibiotics, I had to be admitted to the hospital because my fever did not stop, After intravenous injection of antibiotics in the hospital and numerous tests, to my surprise, my PCR test was positive…. The result of the antibody
Hi, after 9 days of fever, two negative PCR tests, and taking oral antibiotics, I had to be admitted to the hospital because my fever did not stop, After intravenous injection of antibiotics in the hospital and numerous tests, to my surprise, my PCR test was positive…. The result of the antibody
ava1967ir
in
CLL Support
2 years ago
I wonder if anybody got Evusheld in the UK.
I am immunocompromised. I am on ibrutinib for 9 years and although I am progression free, my immunoglobulins have declined to a point that I needed IV IG. However, I stopped since Covid and I got back into constant antibiotic treatment. With Covid I live in fear dispute using protection and isolation
I am immunocompromised. I am on ibrutinib for 9 years and although I am progression free, my immunoglobulins have declined to a point that I needed IV IG. However, I stopped since Covid and I got back into constant antibiotic treatment. With Covid I live in fear dispute using protection and isolation
vepiskop
in
CLL Support
2 years ago
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Autoimmune Autonomic Ganglionopathy Associated with Voltage-Gated Potassium Channel Antibodies
She underwent standardized autonomic, clinical, and laboratory evaluations for 2 years, before and during treatment with intravenous
immunoglobulin
(IVIG). https://n.neurology.org/content/78/1_Supplement/P05.209 This woman recovered with IVIG treatment.
She underwent standardized autonomic, clinical, and laboratory evaluations for 2 years, before and during treatment with intravenous
immunoglobulin
(IVIG). https://n.neurology.org/content/78/1_Supplement/P05.209 This woman recovered with IVIG treatment.
SilentEchoes
in
Cure Parkinson's
2 years ago
High alkaline phosphatase
Hello, I'm new to the forum also still trying to figure out what's going on. I'm 29 years old male with low BMI. Since the age 14 I have a lot of spider naevi on my chest, shoulders, upper back and upper arms. It was checked by doctors a lot of times but I didn't get any answer for a long time. Around
Hello, I'm new to the forum also still trying to figure out what's going on. I'm 29 years old male with low BMI. Since the age 14 I have a lot of spider naevi on my chest, shoulders, upper back and upper arms. It was checked by doctors a lot of times but I didn't get any answer for a long time. Around
Avdx
in
British Liver Trust
2 years ago
Good news on vaccine efficacy for the 80%
A letter in "Cancer Cell" (sounds like a pretty malicious PP prison) from the Birmingham-based research team to whom we were sending blood. Topic: COVID-19 vaccines elicit robust cellular immunity and clinical protection in chronic lymphocytic leukemia Following Minto's principle, I'll start with the
A letter in "Cancer Cell" (sounds like a pretty malicious PP prison) from the Birmingham-based research team to whom we were sending blood. Topic: COVID-19 vaccines elicit robust cellular immunity and clinical protection in chronic lymphocytic leukemia Following Minto's principle, I'll start with the
Me2AsWell
in
CLL Support
2 years ago
4th dose - to take or not take?
I have negligible
immunoglobulin
and so am likely to generate an immune response. And I am on Aclabrutinib that is, apparently, busy suppressing my T-cells. So ... do I take the 4th dose? Or pass?
I have negligible
immunoglobulin
and so am likely to generate an immune response. And I am on Aclabrutinib that is, apparently, busy suppressing my T-cells. So ... do I take the 4th dose? Or pass?
Me2AsWell
in
CLL Support
2 years ago
Toward a better assessment of immune function
(photo: Original 1828 National Capitol Columns at the National Arboretum in Washington, D.C., from my trip to NIH for the History of CLL Study last summer) The hot topic for most of us is, "Am I protected?" To answer that, we read the tea leaves in the ever growing list of studies coming out, as well
(photo: Original 1828 National Capitol Columns at the National Arboretum in Washington, D.C., from my trip to NIH for the History of CLL Study last summer) The hot topic for most of us is, "Am I protected?" To answer that, we read the tea leaves in the ever growing list of studies coming out, as well
SeymourB
in
CLL Support
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
As reported, a differentiated T-cell phenotype, the expression of immune checkpoints (programmed cell death protein-1, PD-1; T cell
immunoglobulin
and mucin-domain containing-3, TIM-3; lymphocyte activation gene-3, LAG-3) as well as immune microenvironment can influence the anti-tumor activity, proliferation
As reported, a differentiated T-cell phenotype, the expression of immune checkpoints (programmed cell death protein-1, PD-1; T cell
immunoglobulin
and mucin-domain containing-3, TIM-3; lymphocyte activation gene-3, LAG-3) as well as immune microenvironment can influence the anti-tumor activity, proliferation
Scout4answers
in
Advanced Prostate Cancer
2 years ago
PBC diagnosis? AMA 125,1
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Cat1966
in
PBC Foundation
2 years ago
Venclexta Rash
Good Morning, Has anyone broken out in a rash on their hand or elsewhere from taking Venclexta. I am taking 600mg daily and have been since November of 2021. The rash is on the palm of my hand. I am also loosing weight, tired and lost my appetite. I am working with my Oncologist and will discuss
Good Morning, Has anyone broken out in a rash on their hand or elsewhere from taking Venclexta. I am taking 600mg daily and have been since November of 2021. The rash is on the palm of my hand. I am also loosing weight, tired and lost my appetite. I am working with my Oncologist and will discuss
brooklyn7672
in
CLL Support
2 years ago
Unsuppressed TSH and positive Anti-thyroid Antibodies
It’s been a while since I’ve posted last. Partially due to my thyroid keeping me fatigued a great amount of the time and additionally I have injuries to my lumbar spine that my dr recommends surgery on and the insurance carrier is dragging their feet. Aanyway.. I got my most recent labs back and my thyroid
It’s been a while since I’ve posted last. Partially due to my thyroid keeping me fatigued a great amount of the time and additionally I have injuries to my lumbar spine that my dr recommends surgery on and the insurance carrier is dragging their feet. Aanyway.. I got my most recent labs back and my thyroid
MsMagoo1970
in
Thyroid UK
2 years ago
Long Covid: doctors find ‘antibody signature’ for patients most at risk
Immunoglobulin
signature predicts risk of post-acute COVID-19 syndrome. Nat Commun 13, 446 (2022). https://doi.org/10.1038/s41467-021-27797-1[/i] https://www.nature.com/articles/s41467-021-27797-1
Immunoglobulin
signature predicts risk of post-acute COVID-19 syndrome. Nat Commun 13, 446 (2022). https://doi.org/10.1038/s41467-021-27797-1[/i] https://www.nature.com/articles/s41467-021-27797-1
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Safe to have kittens?
We are contemplating enriching our lives with two yellow kittens. I have high-risk cll, successfully treated with daily ibrutrinib and an ivig every 4 weeks. Covid destroyed 40% of my lungs in 2020. I am 73. On paper my health sounds awful, but I exercise daily and eat healthy. Last summer I climbed
We are contemplating enriching our lives with two yellow kittens. I have high-risk cll, successfully treated with daily ibrutrinib and an ivig every 4 weeks. Covid destroyed 40% of my lungs in 2020. I am 73. On paper my health sounds awful, but I exercise daily and eat healthy. Last summer I climbed
Splashes
in
CLL Support
2 years ago
Mixed news from the CLL-VR study into SARS-Cov-2 vaccination in chronic lymphocytic leukemia
A pre-proof letter in the journal Cancer Cell was released on 6 May, to report on the latest findings of the Birmingham CLL-VR study determining antibody and cellular immune responses after 3rd and 4th SARS-CoV-2 vaccine doses in CLL patients . It contains encouraging news for many CLL patients and
A pre-proof letter in the journal Cancer Cell was released on 6 May, to report on the latest findings of the Birmingham CLL-VR study determining antibody and cellular immune responses after 3rd and 4th SARS-CoV-2 vaccine doses in CLL patients . It contains encouraging news for many CLL patients and
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Kidney Transplant Recipients Benefit from fourth COVID 19 Vacine Dose
In a case series, 92 KTRs from 3 French university hospitals had antispike
immunoglobulin
G (IgG) titers less than 143 binding antibody units (BAU) per mL at 1 month after a third dose.
In a case series, 92 KTRs from 3 French university hospitals had antispike
immunoglobulin
G (IgG) titers less than 143 binding antibody units (BAU) per mL at 1 month after a third dose.
Graham49
in
Kidney Transplant Patient Support
2 years ago
Possibility of wrong diagnosis Osteporosis Be Aware
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Daisi124
in
Bone Health and Osteoporosis UK
2 years ago
Have diagnosis now
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
eileenet49
in
British Liver Trust
2 years ago
Low platelets
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
AlleyBoy
in
CLL Support
2 years ago
How careful do I need to be when on IVIGs??
Hi all, for our next cycle I will be given IVIGs in an attempt to suppress my NK cells which we’ve found are in the high range. I won’t be taking steroids/intralipids, just the IVIG infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor
Hi all, for our next cycle I will be given IVIGs in an attempt to suppress my NK cells which we’ve found are in the high range. I won’t be taking steroids/intralipids, just the IVIG infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor
Bistbee
in
Fertility Network UK
2 years ago
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