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Imigran
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Pregnancy
Hi, I’m hoping to get pregnant but everything is stacked against me. On top of RLS I have endometriosis, no thyroid and I’m being treated for Behçet’s disease meaning I am on a lot of medications from thyroid replacement, pramipexole, shortec and immunosuppressants called Imuran. My question is I
Hi, I’m hoping to get pregnant but everything is stacked against me. On top of RLS I have endometriosis, no thyroid and I’m being treated for Behçet’s disease meaning I am on a lot of medications from thyroid replacement, pramipexole, shortec and immunosuppressants called Imuran. My question is I
Jacbar
in
Restless Legs Syndrome
5 years ago
No CRP response, raised IgM
I have been seeing my rheumatologist since August 2017 and I have a working diagnosis of Behçet’s. I was started on colchicine which I tolerated for 5 months before having to stop due to severe gastric symptoms and weight loss. I was started on Imuran at the start of January and recently had my dose
I have been seeing my rheumatologist since August 2017 and I have a working diagnosis of Behçet’s. I was started on colchicine which I tolerated for 5 months before having to stop due to severe gastric symptoms and weight loss. I was started on Imuran at the start of January and recently had my dose
Jacbar
in
Behçet's UK
5 years ago
Taking Biologics
Anybody on Remicade or Humira? Pros, cons, personal experiences? I’m on prednisone and imuran right now but my doctor doesn’t think it’s working as I just started tapering off the prednisone and I’m already getting my symptoms back. He wants to do the biologicals with me now and just curious what people
Anybody on Remicade or Humira? Pros, cons, personal experiences? I’m on prednisone and imuran right now but my doctor doesn’t think it’s working as I just started tapering off the prednisone and I’m already getting my symptoms back. He wants to do the biologicals with me now and just curious what people
RedFlamingo27
in
Crohn's and Colitis Support
5 years ago
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Feeling Frustrated
Hey guys, I’ve been diagnosed with Crohn’s disease about a month ago now, and I’m just feeling pretty defeated. I’ve been put on prednisone and Imuran and they seem to be working on the crohns side of things, but it’s been making me super dizzy and I’ve been seeing double and having a hard time focusing
Hey guys, I’ve been diagnosed with Crohn’s disease about a month ago now, and I’m just feeling pretty defeated. I’ve been put on prednisone and Imuran and they seem to be working on the crohns side of things, but it’s been making me super dizzy and I’ve been seeing double and having a hard time focusing
RedFlamingo27
in
Crohn's and Colitis Support
5 years ago
For those who found help with diet changes, especially Paddison Program
I have inflammatory arthritis from Crohn's and am interested in people who have found help through dietary changes. I've tried many diets: Specific Carbohydrate, Paleo, AIP (auto-immune paleo), Low Starch Diet, McDougall, enteral nutrition and water fasting. I did find some relief from water fasting,
I have inflammatory arthritis from Crohn's and am interested in people who have found help through dietary changes. I've tried many diets: Specific Carbohydrate, Paleo, AIP (auto-immune paleo), Low Starch Diet, McDougall, enteral nutrition and water fasting. I did find some relief from water fasting,
OctoberOrchid
in
NRAS
6 years ago
Methotrexate for Crohn's related arthritis
Hi, I know this is the RA forum, but I hope you don't mind my posting here since the majority of people with Crohn's don't deal with inflammatory arthritis. I'm currently on Entyvio which is gut specific and has my GI symptoms in check, but my extra-intestinal symptoms are flaring including arthritis
Hi, I know this is the RA forum, but I hope you don't mind my posting here since the majority of people with Crohn's don't deal with inflammatory arthritis. I'm currently on Entyvio which is gut specific and has my GI symptoms in check, but my extra-intestinal symptoms are flaring including arthritis
OctoberOrchid
in
NRAS
6 years ago
Dandelion root tea
Hi, I just purchased dandelion root tea. Has anyone tried it? Is it safe to take with lupus meds like prednisone , Imuran and plaquanil. Thanks.
Hi, I just purchased dandelion root tea. Has anyone tried it? Is it safe to take with lupus meds like prednisone , Imuran and plaquanil. Thanks.
Sameera1213
in
LUPUS UK
6 years ago
Suspected Behçet
Hi everyone, I am from Turkey, the land where Behçet Syndrome is frequently seen. It’s not a rare disease here and therefore a lot of people are labelled as ‘suspected Behçet’. I have mouth ulcers and DVT (blood clot). Although my Crp, Sedimentation and d-dimer results are normal they want to put me
Hi everyone, I am from Turkey, the land where Behçet Syndrome is frequently seen. It’s not a rare disease here and therefore a lot of people are labelled as ‘suspected Behçet’. I have mouth ulcers and DVT (blood clot). Although my Crp, Sedimentation and d-dimer results are normal they want to put me
TheTurk
in
Behçet's UK
6 years ago
Need to slightly adjust meds, advice on whether I do T4 or T3 please.
I had to take my
Imigran
as before which was disappointing as I’d had 3 weeks migraine symptom free. So, I’m getting to the point: I think I need to slightly up either my Thyroxine or the T3 to get bad to feeling very good again.
I had to take my
Imigran
as before which was disappointing as I’d had 3 weeks migraine symptom free. So, I’m getting to the point: I think I need to slightly up either my Thyroxine or the T3 to get bad to feeling very good again.
Lovecake
in
Thyroid UK
6 years ago
Learning to take Life one moment at a time.
Hello. I am grateful for all here, because many times it feels I was dropped on a giant puzzle board with so many missing pieces. Last month Diagnosed "officially" with behcet's . Suffering for over 15 years. Mainly prednisone treatments and kenelogg shots (Causing severe osteo) Im 48. I am experiencing
Hello. I am grateful for all here, because many times it feels I was dropped on a giant puzzle board with so many missing pieces. Last month Diagnosed "officially" with behcet's . Suffering for over 15 years. Mainly prednisone treatments and kenelogg shots (Causing severe osteo) Im 48. I am experiencing
Ang4upmich
in
Behçet's UK
6 years ago
Autominium - PBC
Hi everyone, I just find a web site and talk with "Denise Otten", her daughter was autominium hepatit, they uses a lot drugs udca, imuran etc etc but they didn't solve it, allways the blood tests are high.After then her mother Denise Otten uses some vitamins and Paleo Diet they dicrease the blood tests
Hi everyone, I just find a web site and talk with "Denise Otten", her daughter was autominium hepatit, they uses a lot drugs udca, imuran etc etc but they didn't solve it, allways the blood tests are high.After then her mother Denise Otten uses some vitamins and Paleo Diet they dicrease the blood tests
bozcan
in
PBC Foundation
6 years ago
Migraines
Of all my meds dispersible aspirin and paracetamol together work to ease it for a few hours, ice pack
imigran
nasal inhaler pills etc but I can’t shake it off.
Of all my meds dispersible aspirin and paracetamol together work to ease it for a few hours, ice pack
imigran
nasal inhaler pills etc but I can’t shake it off.
MissFG
in
LUPUS UK
6 years ago
Low inr
Hi everyone, New here on this forum. Have been on warfarin since 1997 n has gotten used to the tweaking n adjustments of warfarin. I've had two episodes of dvt/pe in 1997 n 2004. Docs told me I 've to be on warfarin for life. Apart from this in 2012 had an episode of vasculitis/Wegener n for that I was
Hi everyone, New here on this forum. Have been on warfarin since 1997 n has gotten used to the tweaking n adjustments of warfarin. I've had two episodes of dvt/pe in 1997 n 2004. Docs told me I 've to be on warfarin for life. Apart from this in 2012 had an episode of vasculitis/Wegener n for that I was
Masuma
in
Anticoagulation Support
6 years ago
Medication I have found successful
Hello Everyone, I am writing this post as I have finally found a combination of medications which has allowed me to control my BD with some regularity. I will provide a brief description of my BD history, medications I have tried, and also provide the names of the medications which finally helped. I
Hello Everyone, I am writing this post as I have finally found a combination of medications which has allowed me to control my BD with some regularity. I will provide a brief description of my BD history, medications I have tried, and also provide the names of the medications which finally helped. I
JulienF
in
Behçet's UK
6 years ago
Migraines and Allodynia
I’ve always suffered with severe migraines (always end up in A&E) but not too often once every 1-2 years but lasted 2 weeks until I got
IMIGRAN
Nasal Sprays. However over the past 12 months I’ve been getting cluster more milder migraines.
I’ve always suffered with severe migraines (always end up in A&E) but not too often once every 1-2 years but lasted 2 weeks until I got
IMIGRAN
Nasal Sprays. However over the past 12 months I’ve been getting cluster more milder migraines.
MissFG
in
Thyroid UK
6 years ago
What worked for me. Behcets syndrom
Been meening to post for a while and finally getting around to it. I have been suffering from Behcets since 2012. Took 2 years to truly diagnose and I have tried countless amounts of medication. Humara, otezla, years of prednisone. At the end of it all I finally found what works for me. It was a combination
Been meening to post for a while and finally getting around to it. I have been suffering from Behcets since 2012. Took 2 years to truly diagnose and I have tried countless amounts of medication. Humara, otezla, years of prednisone. At the end of it all I finally found what works for me. It was a combination
JulienF
in
Behçet's UK
6 years ago
vasculitis- Polyangiitis - grandomators
i was diagnosed last august. i was put on prednisolone 50mg for 8 months along with Imuran which i am still on. i feel better off prednisone. how ever i still have fatigue. my blood tests show improvement. i question if my will a series of up and down. i would love to live a normal life. what is next
i was diagnosed last august. i was put on prednisolone 50mg for 8 months along with Imuran which i am still on. i feel better off prednisone. how ever i still have fatigue. my blood tests show improvement. i question if my will a series of up and down. i would love to live a normal life. what is next
1943bonnie
in
Vasculitis UK
6 years ago
Doctors
Hi guys hope your all well or as well as we can get. I have had a very interesting day today at hospital. I went to see my consultant at local hospital which I have been under for a long time but he past me on to one of his reg which seemed to think that Bechet's is not rare and he sees many people in
Hi guys hope your all well or as well as we can get. I have had a very interesting day today at hospital. I went to see my consultant at local hospital which I have been under for a long time but he past me on to one of his reg which seemed to think that Bechet's is not rare and he sees many people in
pete11
in
Behçet's UK
6 years ago
Still no relief
Hi from the United States still another month and no diagnosis. At the recommendation of my rheumatologist I am seeing another neurologist soon this one specializes in MS . Everyone of my tests have come back negative we've tried plaquenil. Imuran with both I had to stop due to side effects now I've
Hi from the United States still another month and no diagnosis. At the recommendation of my rheumatologist I am seeing another neurologist soon this one specializes in MS . Everyone of my tests have come back negative we've tried plaquenil. Imuran with both I had to stop due to side effects now I've
I814u24u
in
LUPUS UK
6 years ago
Scared
I’ve been diagnosed with AIM and PBC for about 2 years now and it’s stage 3 systematic and now it’s relapsed after about a year of no yellow eyes or itchiness now I can’t stop scratching at night mostly and the tiredness is taking a toll on me affecting my daily life and now I’m scared cause it’s displaying
I’ve been diagnosed with AIM and PBC for about 2 years now and it’s stage 3 systematic and now it’s relapsed after about a year of no yellow eyes or itchiness now I can’t stop scratching at night mostly and the tiredness is taking a toll on me affecting my daily life and now I’m scared cause it’s displaying
Sarita75
in
PBC Foundation
6 years ago
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