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Image-guided radiation therapy (IGRT)
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Rising PSA post RP,IRT,ADT
Have 2 consecutive rising PSA - .04,.05,.1. Year post RP,IRT,ADT.. understand if goes to .2 new scans and possible Radiation. I surely don't like the ADT.. Any thoghts
Have 2 consecutive rising PSA - .04,.05,.1. Year post RP,IRT,ADT.. understand if goes to .2 new scans and possible Radiation. I surely don't like the ADT.. Any thoghts
ChristopherH
in
Advanced Prostate Cancer
6 months ago
CBD - my Mum's journey so far
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Lalamccoy
in
PSP Association
10 months ago
Thyroid medication changes when starting HRT for perimenopause
I have been self medicating with liothyronine and levothyroxine for the past two years or so. Today I started the estrogen patch for perimenopause symptoms, and will also start progesterone in a couple of days. The provider that prescribed these said that some women need to increase their thyroid
I have been self medicating with liothyronine and levothyroxine for the past two years or so. Today I started the estrogen patch for perimenopause symptoms, and will also start progesterone in a couple of days. The provider that prescribed these said that some women need to increase their thyroid
TurtlesAllTheWay
in
Thyroid UK
6 months ago
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Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
10 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
6 months ago
Is This Normal??
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
TommyCarz2
in
Advanced Prostate Cancer
6 months ago
Patches (I'm depending on you, son)
Dated pop reference - sorry. While my research has continued, my oncologist has nothing to give me within the SOC to keep the PSA in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
Dated pop reference - sorry. While my research has continued, my oncologist has nothing to give me within the SOC to keep the PSA in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
CrocodileShoes
in
Advanced Prostate Cancer
6 months ago
Gynecomastia from ADT - how much?
Gynecomastia from ADT - how much? I am considering asking my oncologist for transdermal estrogn (TDE) therapy instead of Orgovyx to combat my prostate cancer. Since gynecomastia and breast pain are pretty much the only bad side effects from TDE and less troubling to me than metabolic disturbance,
Gynecomastia from ADT - how much? I am considering asking my oncologist for transdermal estrogn (TDE) therapy instead of Orgovyx to combat my prostate cancer. Since gynecomastia and breast pain are pretty much the only bad side effects from TDE and less troubling to me than metabolic disturbance,
Lost_Sheep
in
Prostate Cancer Network
6 months ago
RANDOMIZED CONTROLLED TRIAL EVALUATING THE CARDIO-METABOLIC EFFECTS OF LEVOTHYROXINE AND LIOTHYRONINE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
1 year ago
Help and Advice
I have been suffering some time now ( years perhaps ) with debilitating symptoms such as exhaustion, puffy face, coldness, constipation, dry skin, hair shedding, muscle aches and more recently severe numbness and pins and needles in my hands. I thought this may be the onset on menopause as I am now
I have been suffering some time now ( years perhaps ) with debilitating symptoms such as exhaustion, puffy face, coldness, constipation, dry skin, hair shedding, muscle aches and more recently severe numbness and pins and needles in my hands. I thought this may be the onset on menopause as I am now
Sarageorge1971
in
Thyroid UK
6 months ago
OS versus Testosterone Nadir - 5
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing two different ranges of testosterone nadir (< 10 ng/dL, and 10-20 ng/dL) after 11 years. The
best
outcomes
are significantly associated with a
lower testosterone nadir ( <
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing two different ranges of testosterone nadir (< 10 ng/dL, and 10-20 ng/dL) after 11 years. The
best
outcomes
are significantly associated with a
lower testosterone nadir ( <
janebob99
in
Advanced Prostate Cancer
6 months ago
OS versus Testosterone Nadir - 4
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing different levels of testosterone nadir (< 10 ng/dL, 10-20, and 20-50, The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 10 ng/dL).
[b
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing different levels of testosterone nadir (< 10 ng/dL, 10-20, and 20-50, The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 10 ng/dL).
[b
janebob99
in
Advanced Prostate Cancer
6 months ago
PSA relapse rate vs testosterone nadir - 3
This plot shows the PSA relapse rate after RT and ADT, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20 ng/dL),
and the relationship
This plot shows the PSA relapse rate after RT and ADT, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20 ng/dL),
and the relationship
janebob99
in
Advanced Prostate Cancer
6 months ago
PSA Survival vs Testosterone Nadir - 2
This plot shows the Biochemical Relapse Free Survival after RT and ADT, after 10 years , for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20
This plot shows the Biochemical Relapse Free Survival after RT and ADT, after 10 years , for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20
janebob99
in
Advanced Prostate Cancer
6 months ago
PSA Survival vs Testosterone Nadir - 1
This plot shows the Biochemical Relapse Free Survival after RT and ADT, versus time for up to 18 years, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone
This plot shows the Biochemical Relapse Free Survival after RT and ADT, versus time for up to 18 years, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone
janebob99
in
Advanced Prostate Cancer
6 months ago
Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
10 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
10 months ago
None of my family message me.
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
davidthecoder
in
Anxiety and Depression Support
8 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
6 months ago
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