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Experiences with
Ikervis
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Ikervis (Cyclosporin)
Has anyone else experienced the same and if so, did stopping the
Ikervis
help with the blur/haze?
Has anyone else experienced the same and if so, did stopping the
Ikervis
help with the blur/haze?
whitedog
in
Glaucoma UK
12 days ago
Armpit swelling
I'm on hydroxychloroquine, mepacrine, Asprin, clopidogrel,
Ikervis
eye drops. I’ve never been offered A biopsy . anyone else had a similar experience? Any advice welcome Thanks
I'm on hydroxychloroquine, mepacrine, Asprin, clopidogrel,
Ikervis
eye drops. I’ve never been offered A biopsy . anyone else had a similar experience? Any advice welcome Thanks
bathouse
in
LUPUS UK
7 months ago
sacroilitis-advice please
Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75
Ikervis
eye drops having the most awful sacroilitis, steroids helped but off them now Anyone else suffered this and what treatment were you offered thank You
Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75
Ikervis
eye drops having the most awful sacroilitis, steroids helped but off them now Anyone else suffered this and what treatment were you offered thank You
bathouse
in
LUPUS UK
10 months ago
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Dry eyes
Hi I have RA for years on lefluminide celebrex thyroxine b12 ,I have suffered terrible head and face sweating for a few years getting worse,just had cataracts done sight is fine but my dry eyes are causing me so much discomfort,I have hi lo tears and
ikervis
at night it's 5 weeks since cataracts done
Hi I have RA for years on lefluminide celebrex thyroxine b12 ,I have suffered terrible head and face sweating for a few years getting worse,just had cataracts done sight is fine but my dry eyes are causing me so much discomfort,I have hi lo tears and
ikervis
at night it's 5 weeks since cataracts done
Pansy78
in
NRAS
11 months ago
Can Ikervis cause more dryness?
And no doctor had experience w it, that
ikervis
could worse dryness so they recommended to continue using it, cause they all just have positive experiences. After over a month without
ikervis
i started using it again cause there already were dry as hell so it couldnt get worse.
And no doctor had experience w it, that
ikervis
could worse dryness so they recommended to continue using it, cause they all just have positive experiences. After over a month without
ikervis
i started using it again cause there already were dry as hell so it couldnt get worse.
fairyelf
in
Dancing Eye Syndrome Support Trust
11 months ago
Newly diagnosed bechets
Been started on colchicine, and prescribed
ikervis
for eyes and dexamethasone drops. Which have been a saviour as my last flare in my eyes lasted 4 months untill this medication was started. 2 days ago was the first time I saw the whites of my eyes in months and I can’t tell you how happy I felt.
Been started on colchicine, and prescribed
ikervis
for eyes and dexamethasone drops. Which have been a saviour as my last flare in my eyes lasted 4 months untill this medication was started. 2 days ago was the first time I saw the whites of my eyes in months and I can’t tell you how happy I felt.
BabyOleg
in
Partners for Behcet's
3 years ago
Any help re fatigue
Using
Ikervis
. The issue for me is that I have profound fatigue. Every day is the same. Just utterly exhausted. My consultant has said some people are like that but I haven’t yet heard of anyone who struggles every day. Does anyone have severe disabling fatigue? I have gastric issues. Gallstone.
Using
Ikervis
. The issue for me is that I have profound fatigue. Every day is the same. Just utterly exhausted. My consultant has said some people are like that but I haven’t yet heard of anyone who struggles every day. Does anyone have severe disabling fatigue? I have gastric issues. Gallstone.
tcromp888
in
Sjogren's Support
3 years ago
Struggling with depression
I was given some drops called
Ikervis
for the dry eye and put back on glaucoma drops in the eye with raised pressure. I am also having surgery for hip replacement in 3 weeks time. I live alone and don’t see much of my family. I feel so alone and unable to cope with all this by myself.
I was given some drops called
Ikervis
for the dry eye and put back on glaucoma drops in the eye with raised pressure. I am also having surgery for hip replacement in 3 weeks time. I live alone and don’t see much of my family. I feel so alone and unable to cope with all this by myself.
Charliecat123
in
Glaucoma UK
3 years ago
Ciclosporine eye drops or Ikervis
Apparently they also exist at a lower dose and are sold as
Ikervis
. I was ready to use them until I read some very negative reports on the web. Does anyone have any experience of them? Thanks
Apparently they also exist at a lower dose and are sold as
Ikervis
. I was ready to use them until I read some very negative reports on the web. Does anyone have any experience of them? Thanks
NorthAtlantic
in
Sjogren's Support
4 years ago
Falling and dropping things with lupus?
The
ikervis
drops have significantly helped the vision issues. My hand and foot pain has progressed and I have started falling and dropping things - it feels like my muscles aren’t working right. Anyone else with SLE have this issue?
The
ikervis
drops have significantly helped the vision issues. My hand and foot pain has progressed and I have started falling and dropping things - it feels like my muscles aren’t working right. Anyone else with SLE have this issue?
ShannonB
in
LUPUS UK
4 years ago
IKervis eye drops!? Need help.
Anyone ever tried
IKERVIS
eye drops? I’ve been prescribed due to my scarring and terrible dry eye disease. I’ve had terrible flushing hot cheeks and migraines since... anyone else experienced anything? They’ve not really helped after a week...
Anyone ever tried
IKERVIS
eye drops? I’ve been prescribed due to my scarring and terrible dry eye disease. I’ve had terrible flushing hot cheeks and migraines since... anyone else experienced anything? They’ve not really helped after a week...
Martina93
in
LUPUS UK
4 years ago
Anyone ever tried IKERVIS eye drops?! Please
Anyone ever tried
IKERVIS
eye drops? I’ve been prescribed due to my scarring and terrible dry eye disease. I’ve had terrible flushing hot cheeks and migraines since... anyone else experienced anything? They’ve not really helped after a week...
Anyone ever tried
IKERVIS
eye drops? I’ve been prescribed due to my scarring and terrible dry eye disease. I’ve had terrible flushing hot cheeks and migraines since... anyone else experienced anything? They’ve not really helped after a week...
Martina93
in
NRAS
4 years ago
Cataract update
He didn't think I would be at any significantly greater risk of infection or complication and I can continue with the
iKervis
drops before and after the surgery. He thinks the current symptoms are a lupus /sjogrens flare.
He didn't think I would be at any significantly greater risk of infection or complication and I can continue with the
iKervis
drops before and after the surgery. He thinks the current symptoms are a lupus /sjogrens flare.
Justinealexx
in
LUPUS UK
5 years ago
IKervis (ciclosporin eye drops)
I was prescribed
iKervis
. The eye drops are inserted last thing at night. But it hurt like crazy for up to half an hour. I persevered for a week then couldn't take it any longer. My rheumatologist was sympathetic and prescribed pilocarpine tablets instead.
I was prescribed
iKervis
. The eye drops are inserted last thing at night. But it hurt like crazy for up to half an hour. I persevered for a week then couldn't take it any longer. My rheumatologist was sympathetic and prescribed pilocarpine tablets instead.
Justinealexx
in
LUPUS UK
6 years ago
Quick Sanity Check...Am I Missing Something...
Incidentally, when I also stated that I was using ciclosporine (
Ikervis
) eye drops, I was told that ciclosporine is not used for eyes! The implication being... Still de-looping from that appointment...have to say not good (probably one of the worst because my expectations were high).
Incidentally, when I also stated that I was using ciclosporine (
Ikervis
) eye drops, I was told that ciclosporine is not used for eyes! The implication being... Still de-looping from that appointment...have to say not good (probably one of the worst because my expectations were high).
Foggyme
in
LUPUS UK
5 years ago
Can anyone help with dermatology.
Now my dermatologist has put me on protopic and opthalmologist has given me
ikervis
I still can't obtain ndt.
Now my dermatologist has put me on protopic and opthalmologist has given me
ikervis
I still can't obtain ndt.
Lindabennie1951
in
Thyroid UK
7 years ago
Update on Hostile Rheumatology Appointment: I Finally Have Treatment 😀😀. And Update on Punctal Plugs.
And will ask about
ikervis
ciclosporin when I see the eye 'bod' on 11 September. I'll post an update when I've been. Have to say, I didn't realise how blurred my vision had got until I started having brief moments of almost clarity.
And will ask about
ikervis
ciclosporin when I see the eye 'bod' on 11 September. I'll post an update when I've been. Have to say, I didn't realise how blurred my vision had got until I started having brief moments of almost clarity.
Foggyme
in
LUPUS UK
7 years ago
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