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Experiences with
Implantable cardioverter defibrillator (ICD)
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Coil and Endometriosis
Hi all! I had my first laparoscopy back in May 2022 and I had a mirena coil put in as this was meant to help with the endo. A little background, it took me 9 years to be diagnosed and was put on every pill under the sun because my body would basically override it within 6-18 months. Having said that,
Hi all! I had my first laparoscopy back in May 2022 and I had a mirena coil put in as this was meant to help with the endo. A little background, it took me 9 years to be diagnosed and was put on every pill under the sun because my body would basically override it within 6-18 months. Having said that,
EmsP
in
Endometriosis UK
1 year ago
has anyone else experienced this?
hello everyone! I wanted to post here and ask if anyone has had a similar experience to mine. I have been having severe pelvic pain for about 3 years in total. It has gotten much more intense as time has gone on. If I had to describe the pain, it feels like extremely painful menstrual cramps. They happen
hello everyone! I wanted to post here and ask if anyone has had a similar experience to mine. I have been having severe pelvic pain for about 3 years in total. It has gotten much more intense as time has gone on. If I had to describe the pain, it feels like extremely painful menstrual cramps. They happen
LauraD1998
in
Pelvic Pain Support Network
1 year ago
Hi, I survived an SCA ans am looking to better support my heart health
I now have an
ICD
, a fifth heart medication and full-fledged heart failure. Very long story short, I’m here to learn new info to improve my heart health and apply what I’ve learned and experienced with other members, when it may be of help.
I now have an
ICD
, a fifth heart medication and full-fledged heart failure. Very long story short, I’m here to learn new info to improve my heart health and apply what I’ve learned and experienced with other members, when it may be of help.
PhoenixHeart
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
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The struggle of ocd
hi everyone, it’s been hard today struggling with ocd thoughts and it always gets worse around my period. Like I know these are just thoughts and not actions but it creates so much anxiety that I am literally bothered. Also I never had this problem before in my live, I had a sudden onset of ocd a few
hi everyone, it’s been hard today struggling with ocd thoughts and it always gets worse around my period. Like I know these are just thoughts and not actions but it creates so much anxiety that I am literally bothered. Also I never had this problem before in my live, I had a sudden onset of ocd a few
Missjab
in
Anxiety and Depression Support
1 year ago
Any advice?
My nearly 18 y/o has a 4 year plus history of endo. Confirmed with lap. A year ago mirena coil fitted, no improvement , constant bleeding - tried desogesterol, provera and now noriday. We have been repeatedly told she should persevere with the coil, it’s the “ holy grail” of endo treatment and we should
My nearly 18 y/o has a 4 year plus history of endo. Confirmed with lap. A year ago mirena coil fitted, no improvement , constant bleeding - tried desogesterol, provera and now noriday. We have been repeatedly told she should persevere with the coil, it’s the “ holy grail” of endo treatment and we should
Redmum2
in
Endometriosis UK
1 year ago
Zoladex worth it?
Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I currently have the coil and take desogestrel continuously. I saw my consultant yesterday who said i need a hysterectomy and probably some bowel work. They want to start me on zoladex while i wait. At the moment i am having
Hi, I have stage 4 endo with 2 large endometriomas on each ovary plus adeno. I currently have the coil and take desogestrel continuously. I saw my consultant yesterday who said i need a hysterectomy and probably some bowel work. They want to start me on zoladex while i wait. At the moment i am having
Saff21
in
Endometriosis UK
1 year ago
Anxiety and depression
Hi, I’m BJ and I suffer fro extreme anxiety and depression. I’m on 40mg fluoxetine and I’ve also been prescribed prolanalol and premethazine for sleep, because I find it difficult at night. I’m on week 6 now of the fluoxetine but my symptoms don’t seem to have improved. I have obsessive intrusive thoughts
Hi, I’m BJ and I suffer fro extreme anxiety and depression. I’m on 40mg fluoxetine and I’ve also been prescribed prolanalol and premethazine for sleep, because I find it difficult at night. I’m on week 6 now of the fluoxetine but my symptoms don’t seem to have improved. I have obsessive intrusive thoughts
BjAli
in
Anxiety and Depression Support
1 year ago
ICD implant and trapped phrenic nerve
Finally I got a cardiac nurse on “ a good day” ( her expression, not mine) and she referred me to the
ICD
monitoring department. Today I drove 2 hours only to find their equipment had broken down and they could not see me.
Finally I got a cardiac nurse on “ a good day” ( her expression, not mine) and she referred me to the
ICD
monitoring department. Today I drove 2 hours only to find their equipment had broken down and they could not see me.
Callista
in
British Heart Foundation
2 years ago
Thursday Chuckle
A politician diesSo a politician dies and ends up standing in front of the pearly gates. Saint Peter looks at him for a second, flicks through his book, and finds his name. "So, you're a politician..." "Well, yes, is that a problem?" "Oh no, no problem. But we've recently adopted a new system for people
A politician diesSo a politician dies and ends up standing in front of the pearly gates. Saint Peter looks at him for a second, flicks through his book, and finds his name. "So, you're a politician..." "Well, yes, is that a problem?" "Oh no, no problem. But we've recently adopted a new system for people
Paul_and_Sue_Wood
in
Multiple System Atrophy Trust
1 year ago
Stop clonazepam
Hello I have had general anxeity disorder, social anxiety disorder and obsessive disorder I have been passed through many medication since 2012 and finally l am taking 0.5/1mg of clonazepam; 2 mg of respridone and 40mg of fluoxitine but my psychiatry strongly refuse clonazepam but I could not stop
Hello I have had general anxeity disorder, social anxiety disorder and obsessive disorder I have been passed through many medication since 2012 and finally l am taking 0.5/1mg of clonazepam; 2 mg of respridone and 40mg of fluoxitine but my psychiatry strongly refuse clonazepam but I could not stop
Bisana
in
Anxiety and Depression Support
1 year ago
Mirena coil?
I have a laproscopy scheduled soon and my doctor suggested I get a Mirena coil placed in. May I please ask if anyone has had this coil placed in? What was the removal procedure like?
I have a laproscopy scheduled soon and my doctor suggested I get a Mirena coil placed in. May I please ask if anyone has had this coil placed in? What was the removal procedure like?
Hazel_Eyes
in
Endometriosis UK
1 year ago
just looking for some support, not entirely sure I just want someone to listen and help me :(
hello, I’m just looking for advice on what to do. I had a surgery in September (for endo) where they found scar tissue wrapped around my ovaries and bowel, they then said I’m no longer their problem and took me off the gyno list. Since then my pains just are getting worse. I’m not sure what to do
hello, I’m just looking for advice on what to do. I had a surgery in September (for endo) where they found scar tissue wrapped around my ovaries and bowel, they then said I’m no longer their problem and took me off the gyno list. Since then my pains just are getting worse. I’m not sure what to do
Moonlightmoon
in
Pelvic Pain Support Network
2 years ago
Finally…
Finally got an appointment at gynae for my ongoing battle with endo. Ongoing pain, bleeding after sex, headaches and heavy pain all the way through every month. Three laps and coil not working anymore. Any advice on further treatments would be great. Could I ask for an MRI to diagnose where the endo
Finally got an appointment at gynae for my ongoing battle with endo. Ongoing pain, bleeding after sex, headaches and heavy pain all the way through every month. Three laps and coil not working anymore. Any advice on further treatments would be great. Could I ask for an MRI to diagnose where the endo
Purplehaze01
in
Endometriosis UK
2 years ago
Back pain after ICD fitted.
It's been over 3 weeks since I had a CRT-D device fitted. I used to sleep on my left side, so since being fitted, I've been sleeping on my right hand side. I've now got an awful pulled muscle type pain on my right hand side - If I stretch my arm forward, it really hurts in my muscle, just under my shoulder
It's been over 3 weeks since I had a CRT-D device fitted. I used to sleep on my left side, so since being fitted, I've been sleeping on my right hand side. I've now got an awful pulled muscle type pain on my right hand side - If I stretch my arm forward, it really hurts in my muscle, just under my shoulder
Billywhizz10
in
British Heart Foundation
2 years ago
Changing coils?!
Hi everyone, I have recently been diagnosed with endometriosis and a cyst on my ovary. I am currently on the copper coil (I have had no issues with this), and was wondering if anyone's had any experience changing from the copper coil to the mirina coil (hormonal) because of endo?
Hi everyone, I have recently been diagnosed with endometriosis and a cyst on my ovary. I am currently on the copper coil (I have had no issues with this), and was wondering if anyone's had any experience changing from the copper coil to the mirina coil (hormonal) because of endo?
stargirl556
in
Endometriosis UK
2 years ago
coil advise
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
ashleytt
in
Endometriosis UK
2 years ago
A long post - How medication was ruining my life, not making me better! Reassurance for anyone concerned about stopping medication.
Hi ladies. A very Happy New Year to you all! I am hoping that 2023 treats you all with improved health and a wealth of happiness. I have seen a lot of posts recently appearing on my feed regarding treatments and hormones, and so I just wanted to share my recent experience of stopping all treatments.
Hi ladies. A very Happy New Year to you all! I am hoping that 2023 treats you all with improved health and a wealth of happiness. I have seen a lot of posts recently appearing on my feed regarding treatments and hormones, and so I just wanted to share my recent experience of stopping all treatments.
Hidden
in
Endometriosis UK
2 years ago
Insurance Cautionary Tale
Before I get to the tale, I’m a very slim active 77 yr old with LBBB, severe left ventricular failure with an implanted
ICD
, also numerous surgical interventions throughout my life.
Before I get to the tale, I’m a very slim active 77 yr old with LBBB, severe left ventricular failure with an implanted
ICD
, also numerous surgical interventions throughout my life.
Clipperkid
in
British Heart Foundation
2 years ago
IUD removal with general anaesthetic
Hi! I have been living with suspected endometriosis since I was 14. Flooding, heavy periods and intense stomach and back pain have plagued my life. In 2020 I was finally sent to see a gynaecologist after a decade of medical gaslighting. I ended up leaving with an IUD I never wanted or requested. The
Hi! I have been living with suspected endometriosis since I was 14. Flooding, heavy periods and intense stomach and back pain have plagued my life. In 2020 I was finally sent to see a gynaecologist after a decade of medical gaslighting. I ended up leaving with an IUD I never wanted or requested. The
MoominBabe92
in
Endometriosis UK
2 years ago
Dienogest vs Zoladex
Hi Everyone, I have stage 4 endometriosis and Thoracic Endometriosis. It’s in my pleura adjacent to my vena cava and several places on my diaphragm. I’m on the mirena coil since December 2021 and was taking the progesterone only pill (cerazette) on top for the last couple of months. I became pregnant
Hi Everyone, I have stage 4 endometriosis and Thoracic Endometriosis. It’s in my pleura adjacent to my vena cava and several places on my diaphragm. I’m on the mirena coil since December 2021 and was taking the progesterone only pill (cerazette) on top for the last couple of months. I became pregnant
BlueTit98
in
Endometriosis UK
2 years ago
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