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Ibrutinib
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All about Waldenstrum Macroglobulinemia and ibrutinib
I am on
ibrutinib
for 2 months for Waldenstrum macroglobulinemia
I am on
ibrutinib
for 2 months for Waldenstrum macroglobulinemia
topgpsingh
in
CLL Support
4 years ago
Ibrutinib 30 months doing well,last months HTC & Hb have risen 2 the limit. jak2 tests (-) had phlebotomy, any other with both MPN-CLL ?
CLL and MPN
CLL and MPN
antonb
in
CLL Support
4 years ago
2 questions 😊
Anyone got dental fragility & chipping on Venetoclax &
Ibrutinib
?
Anyone got dental fragility & chipping on Venetoclax &
Ibrutinib
?
Sepsur
in
CLL Support
4 years ago
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Bladder Cancer with CLL
CLL since 2012 (
Ibrutinib
5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 (
Ibrutinib
5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
4 years ago
Aftermath of horrible pimply rash on skull with Ibrutinib
I now have to stay on this permanently whilst taking
Ibrutinib
. I am not sure how that is for the body but I am very relieved that a solution was found. You may not know Polaramine since this is France after all, but it says it is 'Maléate de dexchlorphéniramine'.
I now have to stay on this permanently whilst taking
Ibrutinib
. I am not sure how that is for the body but I am very relieved that a solution was found. You may not know Polaramine since this is France after all, but it says it is 'Maléate de dexchlorphéniramine'.
Provence
in
CLL Support
4 years ago
Diagnosed 9/20 and needing treatment already
The two options for treatment were: 1)
Ibrutinib
or 2) obinatumab and venetoclax. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
The two options for treatment were: 1)
Ibrutinib
or 2) obinatumab and venetoclax. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
Bajabarb
in
CLL Support
4 years ago
Reconnecting with people who have tested positive for Covid
Hello I was diagnosed with Cll in 2015 and started on
Ibrutinib
in 2018 with good results for the CLL but some side effects I can live with.
Hello I was diagnosed with Cll in 2015 and started on
Ibrutinib
in 2018 with good results for the CLL but some side effects I can live with.
jagger5
in
Lymphoma Canada
4 years ago
Ibrutinib and Immunoglobulins
Wonder if
ibrutinib
helps to increase immunoglobulins. May 2020 started
ibrutinib
and IGG was 425, now IGG 451
Wonder if
ibrutinib
helps to increase immunoglobulins. May 2020 started
ibrutinib
and IGG was 425, now IGG 451
Davidcara
in
CLL Support
4 years ago
Self-introduction
Kaiser doctor predicts single-drug regimen of
Ibrutinib
will be best choice, when the time comes. Of course I'm very keen on keeping up with the most recent alternatives and possible clinical trials for Phase 0 patients, of brand-new possibilities, especially novel combinations.
Kaiser doctor predicts single-drug regimen of
Ibrutinib
will be best choice, when the time comes. Of course I'm very keen on keeping up with the most recent alternatives and possible clinical trials for Phase 0 patients, of brand-new possibilities, especially novel combinations.
Felixgratus
in
CLL Support
4 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
[/i] https://www.newswire.ca/news-releases/health-canada-approves-imbruvica-r-
ibrutinib
-plus-rituximab-for-the-treatment-of-patients-with-chronic-lymphocytic-leukemia-cll--834973397.html Now it's just a matter of waiting for provincial funding... Neil
[/i] https://www.newswire.ca/news-releases/health-canada-approves-imbruvica-r-
ibrutinib
-plus-rituximab-for-the-treatment-of-patients-with-chronic-lymphocytic-leukemia-cll--834973397.html Now it's just a matter of waiting for provincial funding... Neil
AussieNeil
Partner
in
CLL Support
4 years ago
ibrutinib, acalabrutinib, covid, vaccine
https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-module/faq/page-1
https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-module/faq/page-1
Mik_
in
CLL Support
4 years ago
Richter Transformation - Update
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation Venetoclax 80% and the rest
Ibrutinib
being 20% ​​Pseudo Ricther and the rest Ricther.
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation Venetoclax 80% and the rest
Ibrutinib
being 20% ​​Pseudo Ricther and the rest Ricther.
Priss69
in
CLL Support
4 years ago
Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to
ibrutinib
-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to
ibrutinib
-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
AussieNeil
Partner
in
CLL Support
4 years ago
Tinnitus and CLL
I have CLL for years (diagnosed in 2010) and I’m on treatment with
Ibrutinib
. My numbers are steadily improving but the tinnitus gets worse. It becomes really annoying now. I looking for advice if anything can be done to improve it?
I have CLL for years (diagnosed in 2010) and I’m on treatment with
Ibrutinib
. My numbers are steadily improving but the tinnitus gets worse. It becomes really annoying now. I looking for advice if anything can be done to improve it?
Temida
in
CLL Support
4 years ago
Terrible pimply rash whilst on Ibrutinib
Dear All, I wonder whether anyone can give me advice on a problem I am having with a side effect of taking
Ibrutinib
. I started taking
Ibrutinib
early August and so it is now nearly 5 months .
Dear All, I wonder whether anyone can give me advice on a problem I am having with a side effect of taking
Ibrutinib
. I started taking
Ibrutinib
early August and so it is now nearly 5 months .
Provence
in
CLL Support
4 years ago
Switching from Ibrutinib because of neutropenia
I am curious what medication you have been switched to because
Ibrutinib
was causing neutropenia ? Did the new medication worked better ?
I am curious what medication you have been switched to because
Ibrutinib
was causing neutropenia ? Did the new medication worked better ?
MikeOr
in
CLL Support
4 years ago
Bispecific T-Cell Engagers (BiTEs) and Mantle Cell Lymphoma
Just started on
Ibrutinib
. Very excited about this: https://www.youtube.com/watch?v=SZlvJbCTJts&t=3s Potentially, more effective than CAR-T and less invasive. Regards, zentangle
Just started on
Ibrutinib
. Very excited about this: https://www.youtube.com/watch?v=SZlvJbCTJts&t=3s Potentially, more effective than CAR-T and less invasive. Regards, zentangle
zentangle
in
Non Hodgkin's Lymphoma Friends
4 years ago
IBRUTINIB STOMACH ISSUES
I am into my 3rd month on
IBRUTINIB
for SLL. I is affecting my stomach and 2 weeks ago I started TECTA but it is not working as well as I hoped. Any suggestions?
I am into my 3rd month on
IBRUTINIB
for SLL. I is affecting my stomach and 2 weeks ago I started TECTA but it is not working as well as I hoped. Any suggestions?
Syldon07
in
CLL Support
4 years ago
Ibrutinib
Hi , Can you get
Ibrutinib
treatment in NHS and is it good
Hi , Can you get
Ibrutinib
treatment in NHS and is it good
al444
in
CLL Support
4 years ago
IVIG: Wondering if it's right for me? Your experience?
Had anyone with CLL and on
ibrutinib
had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
Had anyone with CLL and on
ibrutinib
had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
suz02
in
CLL Support
4 years ago
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