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Help with blood test results please
Hello I have a phone appointment on Monday to discuss these results with my GP, but in order to arm myself with the right info, can anyone help me to interpret the attached please? Background: I am 44 years old and started HRT about 5 months ago, having had symptoms for the last few years. I am on
Hello I have a phone appointment on Monday to discuss these results with my GP, but in order to arm myself with the right info, can anyone help me to interpret the attached please? Background: I am 44 years old and started HRT about 5 months ago, having had symptoms for the last few years. I am on
Jellybabyhead
in
Thyroid UK
9 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
8 months ago
CLL - Next Generation Sequencing
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
Cave123
in
CLL Support
1 year ago
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Help with blood test results
Hello I am calling tomorrow to discuss these results with my GP, but in order to arm myself with the right info, can anyone help me to interpret the attached please? Background: I am 44 years old and started HRT about 5 months ago. I am on the mini pill (Detrogel) and at the time of blood draw (yesterday
Hello I am calling tomorrow to discuss these results with my GP, but in order to arm myself with the right info, can anyone help me to interpret the attached please? Background: I am 44 years old and started HRT about 5 months ago. I am on the mini pill (Detrogel) and at the time of blood draw (yesterday
Jellybabyhead
in
Menopause and Perimenopause Support
9 months ago
Vagifem causing flare ups?
I've had a hysterectomy and excision and am currently in surgical menopause, about a year ago started with a return of pain/symptoms. MRI earlier this year showed what seems to be the remains of my RV nodule growing about a cm deep into the rectal wall, plus another nodule elsewhere on the bowel. I've
I've had a hysterectomy and excision and am currently in surgical menopause, about a year ago started with a return of pain/symptoms. MRI earlier this year showed what seems to be the remains of my RV nodule growing about a cm deep into the rectal wall, plus another nodule elsewhere on the bowel. I've
Hidden
in
Endometriosis UK
9 months ago
The ParkinsonNet dream
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
Esperanto
in
Cure Parkinson's
1 year ago
Update on my father
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
jberg22
in
Advanced Prostate Cancer
9 months ago
Body in constant flare like symptoms....
Hi, I've had fibro since 2010, diagnosed 2011, I was managing quite well and managed to hold a part time job for 17 yrs. Unfortunately I lost my job due to pain, swelling and loss of function in my left leg, would have moment of no control, been back and forward for hospital and gp appt. I do have oesteoarthritis
Hi, I've had fibro since 2010, diagnosed 2011, I was managing quite well and managed to hold a part time job for 17 yrs. Unfortunately I lost my job due to pain, swelling and loss of function in my left leg, would have moment of no control, been back and forward for hospital and gp appt. I do have oesteoarthritis
Perdi05
in
Fibromyalgia Action UK
9 months ago
Met with Radiation Oncologist
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Chasbearcat999
in
Prostate Cancer Network
9 months ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
Appreciate feedback on my going forward plan & timing
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
Murk
in
Prostate Cancer Network
9 months ago
Firmagon vs Lupron vs Orgovyxx
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
SilverSeppi
in
Advanced Prostate Cancer
9 months ago
Revisiting Intermittent Therapy in Metastatic Prostate Cancer
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
skiingfiend
in
Advanced Prostate Cancer
9 months ago
Thyroid and HRT?
Hi everyone - sorry for the long post!! I was diagnosed as underactive over 15 years ago (autoimmune) and, as consultant originally explained, I needed to increase levothyroxin dose over the years. For the past few years I've managed reasonably well on 175mcg in winter and 150mcg in summer. I started
Hi everyone - sorry for the long post!! I was diagnosed as underactive over 15 years ago (autoimmune) and, as consultant originally explained, I needed to increase levothyroxin dose over the years. For the past few years I've managed reasonably well on 175mcg in winter and 150mcg in summer. I started
Apollo1
in
Thyroid UK
9 months ago
What study says Zytiga 2 yrs , ADT 3 yrs ?
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
reconjj
in
Advanced Prostate Cancer
9 months ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
9 months ago
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
Bolt_Upright
in
Cure Parkinson's
1 year ago
Just for fun--Amazon product notice
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
cigafred
in
Fight Prostate Cancer
9 months ago
Constipation caused by pelvic floor dysfunction
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
Pinkcrystal5
in
Pelvic Pain Support Network
1 year ago
Can you reject GNRH analogues? Consequences? Please help.
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
SeventeenNineteen
in
Endometriosis UK
9 months ago
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