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CLL Society A patient Story: From color, such comfort!
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Metabolic syndrome (disease) can be managed with IF.
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
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Administrator
in
Healthy Eating
3 years ago
Progress with Endo appointment
In June I finally got to see an Endo at The Royal Gwent Hospital Newport. He told me there’s no point having a scan now it should have been done in 2000 when I was diagnosed with Hyper thyroid is. He acknowledged that my T3 and T4 are low in range but my TSH is suppressed at 0.02. I had recently had
In June I finally got to see an Endo at The Royal Gwent Hospital Newport. He told me there’s no point having a scan now it should have been done in 2000 when I was diagnosed with Hyper thyroid is. He acknowledged that my T3 and T4 are low in range but my TSH is suppressed at 0.02. I had recently had
Esinedharry
in
Thyroid UK
3 years ago
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Thyroid eye disease
Hi all I have Graves’ disease diagnosed 1 year ago, since then Iv developed thyroid eye disease in one eye, my eye is buldging and eye lid has retracted back. I am becoming more controlled now on my meds I started on 80mg carbimazole and am now down to 15mg a day with a normal TSH . My doctor says my
Hi all I have Graves’ disease diagnosed 1 year ago, since then Iv developed thyroid eye disease in one eye, my eye is buldging and eye lid has retracted back. I am becoming more controlled now on my meds I started on 80mg carbimazole and am now down to 15mg a day with a normal TSH . My doctor says my
Busyy
in
Thyroid UK
3 years ago
Leaving Pegasys behind
Saw new haematologist in Toulouse ( France)last week. After long discussion doctor’s advice was that I stop taking Pegasys. A decision I think I’d already realised I needed to take. I tolerated the drug well for 6-7 months, but for the last 4-5 months the side effects have been getting progressively
Saw new haematologist in Toulouse ( France)last week. After long discussion doctor’s advice was that I stop taking Pegasys. A decision I think I’d already realised I needed to take. I tolerated the drug well for 6-7 months, but for the last 4-5 months the side effects have been getting progressively
Ellipops
in
MPN Voice
3 years ago
I must take Dry Eye Drops
Hi everyone as you all know I had SLT last Tuesday and all went well and you all supported me with your lovely messages. Well over the weekend I felt my eye was getting blurry and was getting worried. Today I came home from work early has it did get really blurry and as most of you know I worry all the
Hi everyone as you all know I had SLT last Tuesday and all went well and you all supported me with your lovely messages. Well over the weekend I felt my eye was getting blurry and was getting worried. Today I came home from work early has it did get really blurry and as most of you know I worry all the
Hidden
in
Glaucoma UK
3 years ago
AMG 509 personal update
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
Philly13
in
Advanced Prostate Cancer
3 years ago
Can I ever run again?
Hi all, I was diagnosed with pigment dispersion syndrome this year and glaucoma in my left eye as a result. I have now gas laser treatments and taking drops every night in both eyes. Was told that all training was no longer an option. I used to run more than 60K a week and go to the gym 5-6 times a
Hi all, I was diagnosed with pigment dispersion syndrome this year and glaucoma in my left eye as a result. I have now gas laser treatments and taking drops every night in both eyes. Was told that all training was no longer an option. I used to run more than 60K a week and go to the gym 5-6 times a
Runningislife
in
Glaucoma UK
3 years ago
Pressure testing before surgery.
Interested to hear comments about patients not having their eye pressures checked prior to surgery. I had aqueous shunts in both eyes for normal tension glaucoma. At the first operation the anaesthetist asked me my pressures as he had some difficulty putting the anaesthetic fluid around the eye, which
Interested to hear comments about patients not having their eye pressures checked prior to surgery. I had aqueous shunts in both eyes for normal tension glaucoma. At the first operation the anaesthetist asked me my pressures as he had some difficulty putting the anaesthetic fluid around the eye, which
muddledme
in
Glaucoma UK
3 years ago
👋🏻 Another newbie
Hey everyone! I wanted to join a few groups including this one to see if I can relate to anybody about my chronic pain. My doctor initially mentioned it could be Fibromyalgia, but no official diagnosis, 18months later I’ve plucked up the courage to restart investigations and talk to my doctor again
Hey everyone! I wanted to join a few groups including this one to see if I can relate to anybody about my chronic pain. My doctor initially mentioned it could be Fibromyalgia, but no official diagnosis, 18months later I’ve plucked up the courage to restart investigations and talk to my doctor again
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Fibromyalgia Action UK
3 years ago
Sore eyes and mouth.
Michelle Holder. Hi, I contacted you before when I had very sore eyes. I also developed a mouth ulcer that became infected. Now I have sore eyes again. I used antibiotic drops for eyes and steroid lozenges and oral antibiotic for my mouth. Could you tell me if the antibiotic eye drops worked successfully
Michelle Holder. Hi, I contacted you before when I had very sore eyes. I also developed a mouth ulcer that became infected. Now I have sore eyes again. I used antibiotic drops for eyes and steroid lozenges and oral antibiotic for my mouth. Could you tell me if the antibiotic eye drops worked successfully
Hidden
in
Sweet's Syndrome UK
3 years ago
Myo-inositol - Random Wondering
Lately I've been feeling better (diagnosed with REMSBD, not PD) and with my kitchen sink attitude towards supplements it can be hard to tell why. One of my "way out on a limb" protocols is taking 100 mg of selenium with 750 mg of Myo-Inositol every day. I take these together because I saw a study on
Lately I've been feeling better (diagnosed with REMSBD, not PD) and with my kitchen sink attitude towards supplements it can be hard to tell why. One of my "way out on a limb" protocols is taking 100 mg of selenium with 750 mg of Myo-Inositol every day. I take these together because I saw a study on
Bolt_Upright
in
Cure Parkinson's
3 years ago
Update on cataract op and Flecainide
I posted recently about a comment my surgeon made after my first cataract op when he said that Flecainide had made the first op slightly more awkward than normal. Today I had my second review and asked him for more detail. He said that Flecainide makes the central black part of the eye 'floppy' and
I posted recently about a comment my surgeon made after my first cataract op when he said that Flecainide had made the first op slightly more awkward than normal. Today I had my second review and asked him for more detail. He said that Flecainide makes the central black part of the eye 'floppy' and
Finvola
in
AF Association
3 years ago
Pegasys injections now hurt
Hi all, I have ET and have been injecting Pegasys weekly since around March this year. I always choose my abdomen as my thighs are a bit solid and it never used to hurt but the past few times it hurts when the needle pierces the skin. It often takes two or 3 attempts and now I’ve built up a bit of a
Hi all, I have ET and have been injecting Pegasys weekly since around March this year. I always choose my abdomen as my thighs are a bit solid and it never used to hurt but the past few times it hurts when the needle pierces the skin. It often takes two or 3 attempts and now I’ve built up a bit of a
FashionLover
in
MPN Voice
3 years ago
good news 👀.......off topic
Hello everyone, Haven't posted for a while now and wanted to share my good news. After not having an eye test since the summer of 2019 due to covid I had what is supposed to be a yearly test today. The optician said my eyes are very healthy and there is no deterioration. No new lenses or glasses required
Hello everyone, Haven't posted for a while now and wanted to share my good news. After not having an eye test since the summer of 2019 due to covid I had what is supposed to be a yearly test today. The optician said my eyes are very healthy and there is no deterioration. No new lenses or glasses required
Flor1rence
in
NRAS
3 years ago
Treatment and ocular lymphocytic leukemia
My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count 6.1 hemoglobin I joined a threefold trial Ibrutinib, Obinutuzumab and Venetoclax. When I had uveitis on both eyes I felt it was temporarily but treatment was necessary. I didnt know then that there is ocular CLL and that
My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count 6.1 hemoglobin I joined a threefold trial Ibrutinib, Obinutuzumab and Venetoclax. When I had uveitis on both eyes I felt it was temporarily but treatment was necessary. I didnt know then that there is ocular CLL and that
mickimauser11
in
CLL Support
3 years ago
Bladder issues after eye injection anyone?
Hello, has anyone had bladder issues as result of eye injections? I’ve had cystitis type pain (no infection) and GP says that smth is irritating my bladder but nothing has changed other than the fact I am getting the injections and it all started after my first Eylea (I’ve had 2 so far), just wondering
Hello, has anyone had bladder issues as result of eye injections? I’ve had cystitis type pain (no infection) and GP says that smth is irritating my bladder but nothing has changed other than the fact I am getting the injections and it all started after my first Eylea (I’ve had 2 so far), just wondering
Chaz2010
in
Macular Society
3 years ago
Survived second cataract op!
Hi Everyone thank you so much for all your good wishes, they certainly helped as the op went very smoothly and fingers crossed actually feels a better outcome than first round of surgery. Underway with the drop routine, seems easier this time round probably because I’ve done it before and know I can
Hi Everyone thank you so much for all your good wishes, they certainly helped as the op went very smoothly and fingers crossed actually feels a better outcome than first round of surgery. Underway with the drop routine, seems easier this time round probably because I’ve done it before and know I can
Sunshine88888888
in
Glaucoma UK
3 years ago
Ductal PCA - Avoid T.U.R.P. and Self Cath
I have serious pissing problems with this cancer and after DX last fall, a TURP was done in December. From that sample, pathology determined this beast to be a Ductal PCA, a very aggressive cancer. Pissing problems returned in March, and the answer was to perform another TURP. Radiation Doc
I have serious pissing problems with this cancer and after DX last fall, a TURP was done in December. From that sample, pathology determined this beast to be a Ductal PCA, a very aggressive cancer. Pissing problems returned in March, and the answer was to perform another TURP. Radiation Doc
DMohr011
in
Advanced Prostate Cancer
3 years ago
Hi Dr signed me off a month re PTSD work contacted Council HR Occ Health today think they’ll sack me anyone got any knowledge re this issue
Knowledge on well-being and PTSD in the workplace is it a sackable offence? app for EMDR treatment is on the 05/10/21
Knowledge on well-being and PTSD in the workplace is it a sackable offence? app for EMDR treatment is on the 05/10/21
Dumfries
in
Heal My PTSD
3 years ago
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