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End of life information for heart disease sufferers
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
Jessica37
in
British Heart Foundation
6 months ago
What's next?
As I've written before, my husband stopped all treatment and is receiving palliative care. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread? He experiences some pain
As I've written before, my husband stopped all treatment and is receiving palliative care. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread? He experiences some pain
Shamrock46
in
Advanced Prostate Cancer
6 months ago
Hair thinning
This is probably a silly question, however I have had multiple different eye drops over the past 7 years for my Glaucoma, and are currently using Travatan and Combigan. Had anybody noticed any changes in hair thinning or hair loss. I seem to have thinning of my hair and are concerned, if this continues
This is probably a silly question, however I have had multiple different eye drops over the past 7 years for my Glaucoma, and are currently using Travatan and Combigan. Had anybody noticed any changes in hair thinning or hair loss. I seem to have thinning of my hair and are concerned, if this continues
Moana64
in
Glaucoma UK
1 year ago
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Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
6 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
6 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
QoL: "The berries remain, though the leaves are gone."
I travelled to Scotland to see my father for an early Christmas, and then to West Yorkshire to see my mum. My dad had requested a couple of paintings to hang on his wall as a reminder for when I am no longer here, this being part of his adjustment that I am now receiving care for pain management only
I travelled to Scotland to see my father for an early Christmas, and then to West Yorkshire to see my mum. My dad had requested a couple of paintings to hang on his wall as a reminder for when I am no longer here, this being part of his adjustment that I am now receiving care for pain management only
BrentW
in
Advanced Prostate Cancer
6 months ago
Off Topic Friday: Jessie's Woodland Walk VIII
A fellow member of the cabaret group with which I sing (more like squawk and croak nowadays) continues to send me photographs of what she refers to as being 'Brent's Corner'. I in turn do what I can to abstract paintings from them -- meaning in the sense of abstracting an image. This is my eight attempt
A fellow member of the cabaret group with which I sing (more like squawk and croak nowadays) continues to send me photographs of what she refers to as being 'Brent's Corner'. I in turn do what I can to abstract paintings from them -- meaning in the sense of abstracting an image. This is my eight attempt
BrentW
in
Care Community
7 months ago
QoL: Jessie's Woodland Walk VIII
A fellow member of the cabaret group with which I sing (more like squawk and croak nowadays) continues to send me photographs of what she refers to as being '[i]Brent's Corner[/i]'. I in turn do what I can to abstract paintings from them -- meaning in the sense of abstracting an image. This is my eight
A fellow member of the cabaret group with which I sing (more like squawk and croak nowadays) continues to send me photographs of what she refers to as being '[i]Brent's Corner[/i]'. I in turn do what I can to abstract paintings from them -- meaning in the sense of abstracting an image. This is my eight
BrentW
in
Advanced Prostate Cancer
7 months ago
Yes to trial.
And so it starts. I’ve made the decision,. Starting a new post here because the other one was getting too confusing for me. I’ve been asked to go in for an Echocardiogram on Friday. In 2 days time. Preparation for trial. But nothing worries me much right now more than how terrible I am feeling. Just
And so it starts. I’ve made the decision,. Starting a new post here because the other one was getting too confusing for me. I’ve been asked to go in for an Echocardiogram on Friday. In 2 days time. Preparation for trial. But nothing worries me much right now more than how terrible I am feeling. Just
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
CDK12 gene mutation
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
Decktime
in
Advanced Prostate Cancer
7 months ago
First line of treatment
Well, I finally got to see my oncologist at Fred Hutchinson cancer center today. And finally a treatment plan! This all took time because I moved from South Carolina to Seattle for cancer treatment and to be with my kids. My oncologist was grateful I had done all the tests and biopsies prior to my appointment
Well, I finally got to see my oncologist at Fred Hutchinson cancer center today. And finally a treatment plan! This all took time because I moved from South Carolina to Seattle for cancer treatment and to be with my kids. My oncologist was grateful I had done all the tests and biopsies prior to my appointment
monkeygirl62
in
SHARE Metastatic Breast Cancer
7 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
8 months ago
Iopidine
Hello everyone, is anyone having problem with getting GP to prescibe Iopidine eye drops? My GP is refusing to prescribe it, saying its coming up as a red flag. Does anyone know what it means? This was prescribed by a consultant at hospital on 22nd March, when I was put on a waiting list for presserflo
Hello everyone, is anyone having problem with getting GP to prescibe Iopidine eye drops? My GP is refusing to prescribe it, saying its coming up as a red flag. Does anyone know what it means? This was prescribed by a consultant at hospital on 22nd March, when I was put on a waiting list for presserflo
Amjan
in
Glaucoma UK
1 year ago
Palliative care, does it still exist?
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
wheezyof
in
Lung Conditions Community Forum
8 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
8 months ago
saliva and drooling
50m from India diagnosed 2 years back. On pramipax 1:5mg daily, last 3-4 months producing lots of saliva impacting my speech also.would like to know if anyone else has same experience and how to reduce this drooling; it’s really embarrassing
50m from India diagnosed 2 years back. On pramipax 1:5mg daily, last 3-4 months producing lots of saliva impacting my speech also.would like to know if anyone else has same experience and how to reduce this drooling; it’s really embarrassing
Iambest
in
Cure Parkinson's
2 days ago
Itchy eye 3 months post Trabeculectomy
Hello, I’m in my 12th week post op, everything went well, my eye is healed with stable pressure of 8. Last week I has a loose stitch removed after they put me back on steroids for 3 days. Even before that I started to experience sudden very itchy eye just around spot where the bleb is, also on the skin
Hello, I’m in my 12th week post op, everything went well, my eye is healed with stable pressure of 8. Last week I has a loose stitch removed after they put me back on steroids for 3 days. Even before that I started to experience sudden very itchy eye just around spot where the bleb is, also on the skin
Fellowsufferer1
in
Glaucoma UK
3 days ago
Malignant Glaucoma
My official diagnosis is "Malignant glaucoma following macular hole surgery". After two laser treatments I had cataract surgery. The following day my pressure in the right eye went to 60. Later that day I lost the sight in my right eye. The macular hole surgery took place on 6th February. The
My official diagnosis is "Malignant glaucoma following macular hole surgery". After two laser treatments I had cataract surgery. The following day my pressure in the right eye went to 60. Later that day I lost the sight in my right eye. The macular hole surgery took place on 6th February. The
Birdie25
in
Glaucoma UK
5 days ago
Piggy back surgery
HiI recently had cataract surgery I was long sighted now short sighted so as otherveye us long sighted makes it hardcover does anybody know of any wrrr I can get piggy back surgery in the hereford area
HiI recently had cataract surgery I was long sighted now short sighted so as otherveye us long sighted makes it hardcover does anybody know of any wrrr I can get piggy back surgery in the hereford area
Janebirch1
in
Glaucoma UK
5 days ago
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