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Being Mortal Book by Atul Gawande
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
lgutman
in
Advanced Prostate Cancer
2 months ago
Overcoming Pneumonia Susceptibility
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
TuffNuttoCrack
in
Advanced Prostate Cancer
2 months ago
A catchup on my hospital outcome
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
katieoxo60
in
Lung Conditions Community Forum
3 months ago
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Offered palliative care only
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
NJRV
in
Glioblastoma Support
3 months ago
Simbrinza eye drops
I have been prescribed Simbrinza eye drops as a new method of treatment to bring my eye pressures down. My eye pressures are 23 and 20. These new drops are to be taken twice a day together with Bimatoprost once per day. I have done some background reading on these new drops and the side effects were
I have been prescribed Simbrinza eye drops as a new method of treatment to bring my eye pressures down. My eye pressures are 23 and 20. These new drops are to be taken twice a day together with Bimatoprost once per day. I have done some background reading on these new drops and the side effects were
Bill_Evans
in
Glaucoma UK
11 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
3 months ago
My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
3 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
3 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
3 months ago
Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
4 months ago
My story
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
Flowers2024
in
PSP Association
4 months ago
ninny74
I have closed angle Glaucoma and use Monopost eye drops every evening which keeps my pressures around 20. I have had a laser Iridotomy. Just lately I have been feeling very low having lost a couple of friends and been involved in a car accident. I am thinking of taking anti depressants ( first time
I have closed angle Glaucoma and use Monopost eye drops every evening which keeps my pressures around 20. I have had a laser Iridotomy. Just lately I have been feeling very low having lost a couple of friends and been involved in a car accident. I am thinking of taking anti depressants ( first time
ninny74
in
Glaucoma UK
11 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
4 months ago
Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
4 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
4 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
4 months ago
Palliative care
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
Italiansunsets
in
PSP Association
4 months ago
Hiccups
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
Fred12344
in
British Liver Trust
5 months ago
Monopost Eye Drops
Hi, does anyone know of an alternative eye drop to monopost. I have been prescribed this to take in each eye once a day at night but after 2 weeks am finding it unbearable even though I am using eye lubrication drops to try and help with the itchy soreness.
Hi, does anyone know of an alternative eye drop to monopost. I have been prescribed this to take in each eye once a day at night but after 2 weeks am finding it unbearable even though I am using eye lubrication drops to try and help with the itchy soreness.
Barry240
in
Glaucoma UK
1 year ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
5 months ago
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