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Experiences with
Hydroxycarbamide
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Safe to take vitamin D with hydroxycarbamide?
Does anyone know if it's okay to take vitamin D supplement with
hydroxycarbamide
? I also take perindopril, clopidogrel and an atorvastatin. Just interested in the results from the calcifediol research with covid.
Does anyone know if it's okay to take vitamin D supplement with
hydroxycarbamide
? I also take perindopril, clopidogrel and an atorvastatin. Just interested in the results from the calcifediol research with covid.
carlyjo
in
MPN Voice
3 years ago
Vaccine effects on blood and BP
Hello everyone, am wondering if anyone experienced a spike in RBC WBC and Platelets after taking the vaccine? as my husband who has PV and has taken the first Pfizer shot is presently experiencing high blood counts (RBC 8.24 and WBC 24,200 and PLT 491 and HCT 45) and his BP has also shot up to 170/
Hello everyone, am wondering if anyone experienced a spike in RBC WBC and Platelets after taking the vaccine? as my husband who has PV and has taken the first Pfizer shot is presently experiencing high blood counts (RBC 8.24 and WBC 24,200 and PLT 491 and HCT 45) and his BP has also shot up to 170/
Rheanick
in
MPN Voice
3 years ago
Sarcoma and My Daughter
Well had my three monthly review with my Haematologist last week, and glad to say that my Platelets have come down with the increase of
Hydroxycarbamide
by one extra tablet a week so good news there.
Well had my three monthly review with my Haematologist last week, and glad to say that my Platelets have come down with the increase of
Hydroxycarbamide
by one extra tablet a week so good news there.
Superwoman
in
MPN Voice
3 years ago
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Interferon-Alpha Improves MFS and OS Over Standard Approaches in Polycythemia Vera
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
JT_Marlin
in
MPN Voice
3 years ago
PV pinching - seriously can’t take it!
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hidden
in
MPN Voice
3 years ago
PV pinching - seriously can’t take it!
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hi everyone... just need to put this out to people who would understand.... i was diagnosed with PV 3 years ago and had some kind of uneventful itching for years before that but I’m now at a point where I am just so tired of the intense pinching/itching which started a year ago....... I can’t
Hidden
in
MPN Voice
3 years ago
Germany not giving Astra Zeneca vaccine to over 65 year olds
I am very concerned as I have PV and take
hydroxycarbamide
so therefore immunosuppressant and I had the Astra Zeneca vaccine last Thursday.
I am very concerned as I have PV and take
hydroxycarbamide
so therefore immunosuppressant and I had the Astra Zeneca vaccine last Thursday.
Hughley
in
MPN Voice
3 years ago
Italfarmaco Announces Publication of Positive Long-term Data for Givinostat in Polycythemia Vera Patients in Blood Cancer Journal
« — Four-year mean follow-up data demonstrate an overall response rate (ORR) of over 80% throughout the follow-up period — — Randomized, double-blind Phase 3 study to assess the efficacy and safety of GIVinostat versus hydroxyurea IN JAK2V617F-positive high-risk Polycythemia Vera patients (GIV-IN PV
« — Four-year mean follow-up data demonstrate an overall response rate (ORR) of over 80% throughout the follow-up period — — Randomized, double-blind Phase 3 study to assess the efficacy and safety of GIVinostat versus hydroxyurea IN JAK2V617F-positive high-risk Polycythemia Vera patients (GIV-IN PV
Manouche
in
MPN Voice
3 years ago
Extremely vulnerable
I wasdiagnosed with ET and JAK mutation about 3 months ago and take
hydroxycarbamide
and clopidogrel. My platelets were in the 900 s then 6 weeks later in the 800 s now 6 weeks later down to 600 so I was feeling pleased with myself.
I wasdiagnosed with ET and JAK mutation about 3 months ago and take
hydroxycarbamide
and clopidogrel. My platelets were in the 900 s then 6 weeks later in the 800 s now 6 weeks later down to 600 so I was feeling pleased with myself.
Hidden
in
MPN Voice
3 years ago
Covid Antibodies and MPNs
I am a 71 year old male with ET jak2+, taking
hydroxycarbamide
.
I am a 71 year old male with ET jak2+, taking
hydroxycarbamide
.
Ovingite
in
MPN Voice
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Hydroxyurea side effects?
I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have Phlebotomy about every 6 weeks to keep my Hematocrit below 45.Platelets around 600. Hemoglobin 13 and WBC on high side at 1750. I am considering Hydroxyurea or Busulfan oral. I know this has been discussed previously but
I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have Phlebotomy about every 6 weeks to keep my Hematocrit below 45.Platelets around 600. Hemoglobin 13 and WBC on high side at 1750. I am considering Hydroxyurea or Busulfan oral. I know this has been discussed previously but
Ridenez
in
MPN Voice
3 years ago
COVID and hydroxycarbamide
Has anyone had COVID whose is taking
hydroxycarbamide
.
Has anyone had COVID whose is taking
hydroxycarbamide
.
Linnie5
in
MPN Voice
3 years ago
Diagnosed with CLL and ET
I was diagnosed with both CLL and ET in 2017. Looking for info on implications of having both. Still in “watch & wait” for my CLL and on hydroxyurea for the ET. (Was also diagnosed wth breast cancer at the same time.) Everything is stable at this point.
I was diagnosed with both CLL and ET in 2017. Looking for info on implications of having both. Still in “watch & wait” for my CLL and on hydroxyurea for the ET. (Was also diagnosed wth breast cancer at the same time.) Everything is stable at this point.
Lambo1
in
CLL Support
3 years ago
Interferon-alpha for treating polycythemia vera yields improved myelofibrosis-free and overall survival
« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
Manouche
in
MPN Voice
3 years ago
Hydroxyurea symptoms? Zoom meeting?
Did anyone attend the zoom meeting yesterday? Is anyone taking hydroxyurea and having any regrets or withdrawals? I live alone and feel as if I need some expert advice on what to look out for and how to cope and manage this medication versus me trying to figure it out on my own. My doctors are great
Did anyone attend the zoom meeting yesterday? Is anyone taking hydroxyurea and having any regrets or withdrawals? I live alone and feel as if I need some expert advice on what to look out for and how to cope and manage this medication versus me trying to figure it out on my own. My doctors are great
johnnie5
in
Living with Sickle Cell Disease
3 years ago
swallowing hydroxycarbamide
I find the
hydroxycarbamide
capsules too large to swallow so have been told to empty contents into water. It doesn't seem right really.Is anyone else doing this?
I find the
hydroxycarbamide
capsules too large to swallow so have been told to empty contents into water. It doesn't seem right really.Is anyone else doing this?
Hidden
in
MPN Voice
4 years ago
Sodabread
I am on
hydroxycarbamide
has anyone had the vaccine who is also on Hydroxy. Enjoy Christmas
I am on
hydroxycarbamide
has anyone had the vaccine who is also on Hydroxy. Enjoy Christmas
Sodabread
in
MPN Voice
4 years ago
Immune Boosting Echinacea
Has anyone taken Echinacea while on
Hydroxycarbamide
?
Has anyone taken Echinacea while on
Hydroxycarbamide
?
Kari1961
in
MPN Voice
4 years ago
Hydroxycarbamide
H, I have ET and was dreading going on
Hydroxycarbamide
. I take 1 a day and I started four weeks ago. My platelets were 980 and now they are 340. I take vitamin D and B everyday and my diet is very strict.
H, I have ET and was dreading going on
Hydroxycarbamide
. I take 1 a day and I started four weeks ago. My platelets were 980 and now they are 340. I take vitamin D and B everyday and my diet is very strict.
Waterwoman
in
MPN Voice
4 years ago
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