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Burning tongue and metallic taste .
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
2 months ago
Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
Severe coronary atherosclerosis and ADT
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
spencoid2
in
Advanced Prostate Cancer
8 months ago
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A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
8 months ago
In hospital again over oxygen levels & new happening Dizzy spells & panic attacks
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Sara_2611
in
Lung Conditions Community Forum
2 months ago
Have you had chemo via cannula?
Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare aggressive mucinous ovarian cancer, I had the good news that the cancer hasn’t spread to my lymph nodes which makes it 1C. While my oncologist explained that it’s difficult to quantify the benefits of adjuvant chemo due to
Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare aggressive mucinous ovarian cancer, I had the good news that the cancer hasn’t spread to my lymph nodes which makes it 1C. While my oncologist explained that it’s difficult to quantify the benefits of adjuvant chemo due to
OCacc
in
My Ovacome
8 months ago
Ibandronic Acid
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
rathlee
in
AF Association
5 months ago
Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
2 months ago
Taking Biotin prior to full Blood count
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
dipsyqueen
in
Thyroid UK
5 months ago
bum issues
hello, I began bleeding bright red blood from my bum in May so I I went to a walk in service as they checked my bum. They said nothing seems abdominal. Again more blood in June, so I went up A & E the doctor just looked at bum and said to get cream from the pharmacy. Next week again more bleeding.
hello, I began bleeding bright red blood from my bum in May so I I went to a walk in service as they checked my bum. They said nothing seems abdominal. Again more blood in June, so I went up A & E the doctor just looked at bum and said to get cream from the pharmacy. Next week again more bleeding.
Pinkizzy
in
IBS Network
5 months ago
enlarged lymp node
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
DianeSH
in
CLL Support
8 months ago
Break ups?? Walk in the park
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
detour13
in
Anxiety and Depression Support
2 months ago
Study reveals genetic chain reaction that drives the spread of prostate cancer
[i]Science keeps getting closer to stopping the spread of cancer.[/i] [i]Scout[/i] From the Male Care Prostrate news letter [i][/i] NOVEMBER 6, 2023 New research from scientists at VCU Massey Comprehensive Cancer Center and the VCU Institute of Molecular Medicine (VIMM) determined that a particular
[i]Science keeps getting closer to stopping the spread of cancer.[/i] [i]Scout[/i] From the Male Care Prostrate news letter [i][/i] NOVEMBER 6, 2023 New research from scientists at VCU Massey Comprehensive Cancer Center and the VCU Institute of Molecular Medicine (VIMM) determined that a particular
Scout4answers
in
Advanced Prostate Cancer
8 months ago
Wednesday's Word
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Does this look like a malar rash? Would it be seen as one by a doctor, do you think?
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
Fluffymella
in
LUPUS UK
5 months ago
Trametinib!
Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after debunking and several rounds of chemotherapy remission for 7 years, now the big C is back again, I have been offered the new drug Trametinib which I need to start soon, reading on the all side effects gives me a real scare
Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after debunking and several rounds of chemotherapy remission for 7 years, now the big C is back again, I have been offered the new drug Trametinib which I need to start soon, reading on the all side effects gives me a real scare
Izoominka
in
My Ovacome
8 months ago
4 year old (5 in May) soiling at school
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Senmumma
in
ERIC
5 months ago
antispasmodic medication for irritable bowel syndrome
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
halperinchen
in
Restless Legs Syndrome
5 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
2 months ago
Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
2 months ago
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