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Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
8 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
4 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
8 months ago
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natural modified fet
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
keepfaith1982
in
Fertility Network UK
5 months ago
Ebus failure
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Mindini1964
in
The Roy Castle Lung Cancer Foundation
8 months ago
Last vitamin results
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
Thywotsit
in
Thyroid UK
5 months ago
Radiation therapy or Turp first?
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
3putt
in
Advanced Prostate Cancer
8 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
8 months ago
Not sure what to do next
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Sootymouse
in
Acoustic Neuroma Support
8 months ago
Gastric endo - help!
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
applebird
in
Endometriosis UK
5 months ago
High Folate with PA terrible GP
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
EllaNore
in
Pernicious Anaemia Society
5 months ago
Small cell advanced prostate cancer spread to liver and lungs.
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
lcfcpolo
in
Advanced Prostate Cancer
8 months ago
Advances in solid tumors: finnish clinical trial
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Maxone73
in
Advanced Prostate Cancer
8 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
4 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
4 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
4 months ago
Need to Change Treatment
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
Trissh
in
SHARE Metastatic Breast Cancer
8 months ago
Hello!
Hey folks, Not entirely sure where to start here, first post. - I recently had a cholecystectomy (gallbladder removal) due to some on-going issues which were identified as gallstones. - During this, and also backed up by biopsy/blood tests it seems I have some issues going on with my liver L3 fibrosis
Hey folks, Not entirely sure where to start here, first post. - I recently had a cholecystectomy (gallbladder removal) due to some on-going issues which were identified as gallstones. - During this, and also backed up by biopsy/blood tests it seems I have some issues going on with my liver L3 fibrosis
Jmcdongle
in
British Liver Trust
1 day ago
Question re: Ablation of Liver Mets
Hello! I've had liver mets - in addition to bone - for a little over a year. When I was scheduled for a biopsy of the liver (a year ago), I asked my doc if they could ablate the tumor at that time and she "found/chose" a surgeon who would do this. So it seemed to be non-routine. I received a bill
Hello! I've had liver mets - in addition to bone - for a little over a year. When I was scheduled for a biopsy of the liver (a year ago), I asked my doc if they could ablate the tumor at that time and she "found/chose" a surgeon who would do this. So it seemed to be non-routine. I received a bill
Gallivanter
in
SHARE Metastatic Breast Cancer
8 months ago
Post ablation tubal sterilisation syndrome (PATTS)
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
MalachiteAli
in
Endometriosis UK
5 months ago
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