Experiences with

Heart valve diseases

An interview with 2 PCa MO's -- excellent for learning how they think and treatment tools as of July 2024. I highly recommend viewing it. https://www.youtube.com/watch?v=6NqT9z1c8aw&t=2332s

Saw this link this morning. Any update on this research or trials? Kinda describes my situation: after surgery and radiation PSA climbing. PSMA showed metastatic lymph nodes. Rather than watch and wait, they were radiated. PSA now seems to have dropped. Thanks. https://youtu.be/usXbPe_1YYc?si=cZB8L4YZ7y0w7qSJ

Hi, guys, Its been 3 years since I last wrote. I had some liver issues back then which which disappeared some time at the end of 2021 .During that time I had made 6 fibroscans in different medical facilities, I had 2 biopsies, gastroscopy...blood tests and so on. It show nothing but Hepatitis C with

My hypothyroidism was finally acknowledged six weeks ago. I've been on 50mcg daily. I've just had the first blood test since starting treatment. My fT4 has 'risen' from 8.8% to 9.3%. My TSH has dropped below 1 (0.7) for the first time according to blood tests going back to 2007. I'm a bit disappointed

Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8

We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely

Hi, I'm currently being investigated for Crohn's. I've had bowel issues for over 20 years and always been told it's IBS. Anyway three years ago, I had my gallbladder removed and my symptoms went in to overload mode. My calprotectin levels were in the hundreds. Since then I've had three colonoscopies

Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments

Been on Zytiga over a year, taken with Xgeva and Lupron. During the two pill test period of Zytiga, no food - 2hrs and + 1hr, my T and PSA became undetectable. Convinced the powers to continue with 2 pills to possibly reduce side effects and prolong effectiveness. T and PSA undetectable after a year

Any lupus warriors here who have had Lyme disease and if so can you share your experience? I have sle and am on methotrexate, hydroxycloriquine and prednisolone— I went on a backpacking trip 4 weeks ago and ended up with a bite that developed into a bullseye rash. Before I knew what it was I started

I had a chest CT scan and read the results on MyChart. They found a 4.6 aneurysmal dilation in my ascending aorta. I sent a message to my doctor yesterday regarding this and I have heard nothing! I’m quite anxious and surprised to not have heard anything back yet. I guess I’m just wondering if my

Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate

I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the

After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone

I had a heart attack whilst i was on my own at home. I had just sat down to watch tv and was having a dip of JD & coke when i developed a pain in my chest. I thought it was indegestion as i hadn't eaten very well that day, but then i got pain in my wrist that spread to my hand. This was the alarm bell

My PSA is low but on the rise. <.006 in January and .042 now. I'm not on ADT. See bio for history. I hate to stand on the sidelines and watch it rise. Is there something I can do, or do I have to wait until PSA rises then have a scan? What is SOC? Your comments are appreciated.

Hey y’all, Almost 3 weeks of Zanu. Bloodwork is “as expected “ for first line treatment, WBC 220 and Hemo 9. Feeling pretty good, most lymph node pain gone, more energy! Still have manageable side effects, diarrhea, nausea. Feeling really good about this treatment! Have a great day🤗

They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html

I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level < 0.5 U/mL [0.0 - 6.9]; Negative <7 Equivocal 7 - 10 Positive >10 I can't even work out which part of the above is the result? I receive B12

Hello: Just wanted to post my experience with taking Renadyl. First, my Nephrologist never recommended it and I wondered why? Of course, if this did work for me, he couldn't recommend dialysis or a transplant and make money from it. A Renal Dietitian did recommend it. I tried Renadyl for six months but