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How Much Carbidopa Levodopa After 5-10 Years? Any other meds?
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
jimcaster
in
Cure Parkinson's
3 months ago
Crohns/IBD
I have undiagnosed Crohns/IBD and continuous flares. I had surgery in 2011 resection of 20cm colon. What treatments are effective?
I have undiagnosed Crohns/IBD and continuous flares. I had surgery in 2011 resection of 20cm colon. What treatments are effective?
Lalande
in
Thyroid UK
3 months ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
3 months ago
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Norpace?
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
MeganMN
in
AF Association
11 months ago
Norpace
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
MeganMN
in
Arrhythmia Alliance
11 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
3 months ago
Covid
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
JLAR01
in
LUPUS UK
6 months ago
Psa level
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
littlemount
in
Advanced Prostate Cancer
3 months ago
fibroscan score 7.9 f1 finrosis
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
TacosPizzaIcecream
in
British Liver Trust
3 months ago
My gfr is om 15 % already but I dont want dialysis
Hi everyone happy Easter, hope everyone is well so I'm already at 15 % gfr and so worried I do want to get in dialysis I want to go straight to the transplants . I when to recently get blood work at my gyno and it should my gfr 15 % but I have a cold and was a bit dehydrated since I drank k 2 bottle
Hi everyone happy Easter, hope everyone is well so I'm already at 15 % gfr and so worried I do want to get in dialysis I want to go straight to the transplants . I when to recently get blood work at my gyno and it should my gfr 15 % but I have a cold and was a bit dehydrated since I drank k 2 bottle
jennifer24
in
Early CKD Support
3 months ago
Bisoprolol/flecanide/amytriptiline
Looking for some advice. I've been on varying doses of Bisoprolol for 2 years now, hate the stuff, feel lethargic and foggy headed and seem unable to lose weight, despite the fact I keep the dose as low as I can. The arrhythmia nurse did try changing it to verapamil and that led to the only AF episode
Looking for some advice. I've been on varying doses of Bisoprolol for 2 years now, hate the stuff, feel lethargic and foggy headed and seem unable to lose weight, despite the fact I keep the dose as low as I can. The arrhythmia nurse did try changing it to verapamil and that led to the only AF episode
KaliBill
in
AF Association
11 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
3 months ago
Is Jevtana easier to tolerate than docetaxel?
I have noticed that some men on this site have had over 30 infusions of Jevtana. My husband has had completed 10 sessions of docetaxel. The last three were given with a second dose of Carboplatin. Jevtana is new to us. How is it tolerated? Why can it be given at such a high number of doses?
I have noticed that some men on this site have had over 30 infusions of Jevtana. My husband has had completed 10 sessions of docetaxel. The last three were given with a second dose of Carboplatin. Jevtana is new to us. How is it tolerated? Why can it be given at such a high number of doses?
roboocme
in
Advanced Prostate Cancer
3 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
3 months ago
Husband with PSP
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Poodlelady1
in
PSP Association
3 months ago
Cat's Claw
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
b-bobble
in
Cure Parkinson's
3 months ago
Kidney issues because of CLL
Hello all! Anyone had kidney issues related to CLL? I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells
Hello all! Anyone had kidney issues related to CLL? I will do the treatment not because of my lab results but because CLL filled my kidneys with white cells and led my to nephrotic syndrome. My hematologist is confident that with the treatment they will start to work again because those with cells
BMFCDRW
in
CLL Support
3 months ago
Liver tumor
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
dibk
in
British Liver Trust
3 months ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Photopharmics kickstarts phototherapy trial for Parkinson’s disease
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
Farooqji
in
Cure Parkinson's
3 months ago
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