Hi there
My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s
He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor
His mobility is very poor, he had another fall today.
The lack of empathy is very common and he is very self centred
Hi P'lady, sorry to hear ur news. I am 82 and PSP diagnosis 5 yrs ago. Seems the older we are the slower it develops. Still active/able but no driving now. I have made a 7page summary of my history/actions/attempts to get better, and other stuff, and happy to share it. Just send me ur email address, and I will send.. Very best to you both. TimbowPSP
Hi timbowpsp, I’m only 67 but was diagnosed with psp this year, 2024. I think I’m deteriorating. Just had a fall 2 days ago at a mall in front of a supermarket. good thing there were no broken bones. I’m interested in how you manage to get better. I attend the gym twice a week and the physiotherapists are aware of my condition.
Hi Susanac, thanks for contact ....it's all. bit of a bugger aint it? ..... and PSP stands for PLease Stay Positive! Like u I am deteriorating - specially with mobility. I am male 83, diag 7 yrs ago, no more driving or swimming, but doing what exercise I can, ncluding on-line exercise classes with Neuro Heeroes weekly, sponsored by the PSP Assoc. Ask them, if that sounds interesting.I neeed a walker to get our and about, and am on homeopathy, mediterannean veg diet mostly, supplements and a Red light headset. Combination seems helpfut, but must cost about £3-4K p.a. There's more, and if you like I can send other stuff .... BUT AM SLOW AT IT, and need ur personal email please. Keep on loving, living amd keeping on!
V best wishes Tim Willcocks
Hi Susanac, thanks for contact ....it's all. bit of a bugger aint it? ..... and PSP stands for PLease Stay Positive! Like u I am deteriorating - specially with mobility. I am male 83, diag 7 yrs ago, no more driving or swimming, but doing what exercise I can, ncluding on-line exercise classes with Neuro Heeroes weekly, sponsored by the PSP Assoc. Ask them, if that sounds interesting.I neeed a walker to get our and about, and am on homeopathy, mediterannean veg diet mostly, supplements and a Red light headset. Combination seems helpfut, but must cost about £3-4K p.a. There's more, and if you like I can send other stuff .... BUT AM SLOW AT IT, and need ur personal email please. Keep on loving, living amd keeping on!
V best wishes Tim Willcocks
Hi Tim, my email address is Susana.crooks@gmail.com. I’m in Australia. But was born in the Philippines. The gym at kirwan hospital has asked that someone picks me up. I go there Tuesdays and Thursdays. My son who lives with me still hasn’t accepted that I have psp. I have contacted the RSPCA and Angel Paws as I am going to surrender my dog as I can’t bend to feed him anymore. I can feel my legs being painful whenever I walk. I use a cane and a walker. I can still drive but I think I will have to give up driving soon.
Hi sorry about your husband’s diagnosis. I can relate to how you feel. Karol is the very same and it’s hard to accept it. Karol is 79 next week diagnosed in2022 but signs 2years prior with a big decline in the last 6 months. Been in hospital 5 weeks and has had a peg fitted as he’s nil by mouth. Stay strong hugs from Bonnie Scotland 💜
So sorry you are in this terrible situation that a number of us find ourselves in. My husband also showed signs of what I thought was Parkinson’s due to the hand tremor. He was very restless and slept most of the day. He was diagnosed with PSP and started on Madopar which stopped the restlessness and slowed down his tremor.
He also suffers with apathy and hardly speaks. We have good and bad days. My only advice is try to stay strong and take time to look after yourself. Take each day at a time and know you can’t predict what will happen or when.
my dad has recently been diagnosed with PSP. Recently started madopar but his symptoms seemed to have got worse since starting it. Any advise or anyone who has had similar experience???
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