Search
Search
About
Log in
Join
Experiences with
Heart valve diseases
Posts
Communities
47,426 public posts
Filter results
New PA diagnosis
Hi all Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3 I was given the B12 loading dose of 6 injections. I read since a high intake of B12 is not good for the kidneys? Does anyone know if this is the case
Hi all Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3 I was given the B12 loading dose of 6 injections. I read since a high intake of B12 is not good for the kidneys? Does anyone know if this is the case
Bacca
in
Pernicious Anaemia Society
2 months ago
southampton heartbeat house
Has anyone stayed at Heartbeat House in Southampton while a relative is having heart surgery? I sounds an amazing facility, but I did wonder what it was like to stay there.
Has anyone stayed at Heartbeat House in Southampton while a relative is having heart surgery? I sounds an amazing facility, but I did wonder what it was like to stay there.
Kristin1812
Heart Star
in
British Heart Foundation
9 months ago
Different Types of MS
I was reading a post on another online group earlier today and realized I really needed this for clarity. Maybe you do too. Robbie Multiple sclerosis (MS) is a chronic disease that affects the brain and spinal cord. It is thought to be an autoimmune disease. This means that the body's immune system
I was reading a post on another online group earlier today and realized I really needed this for clarity. Maybe you do too. Robbie Multiple sclerosis (MS) is a chronic disease that affects the brain and spinal cord. It is thought to be an autoimmune disease. This means that the body's immune system
robster1
in
My MSAA Community
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Terrified Before Appointment
Hey all! I’m a female, in my 30s and looking for a little support as I freak out about an upcoming doctor appointment. Long story short, I have diagnosed hypothyroidism and have been treated for years for it. Low thyroid is my issue (important fact). My MD referred me to an endocrinologist, who is
Hey all! I’m a female, in my 30s and looking for a little support as I freak out about an upcoming doctor appointment. Long story short, I have diagnosed hypothyroidism and have been treated for years for it. Low thyroid is my issue (important fact). My MD referred me to an endocrinologist, who is
Totmama
in
My MSAA Community
2 months ago
and more promising (in vitro) CRISPR, this time used directly against cancer and not to help studying it
we are moving… https://crisprmedicinenews.com/news/crispr-targets-pancreatic-cancer-mutations/
we are moving… https://crisprmedicinenews.com/news/crispr-targets-pancreatic-cancer-mutations/
Maxone73
in
Advanced Prostate Cancer
2 months ago
Hello 👋🏿
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
RessieBare02
in
My MSAA Community
2 months ago
No thyroid
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Sleepyasf--k
in
Thyroid UK
2 months ago
Medication not working
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
Lornap1
in
NRAS
2 months ago
biologics
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
Mybirthday1975
in
NRAS
2 months ago
Heat does it cause problems
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Castroll
in
Thyroid UK
2 months ago
so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
Bigdave79
in
LUPUS UK
2 months ago
Heart failure and Entresto anyone?
I have had AFib for 11 years did well on Multaq for the last 7 and all of a sudden it stopped working. Spent 4 days in the hospital and they told me I now have heart failure - cardiologist has recommended a pace and ablate in January and offered me Entresto but I hate to add new meds to my already mix
I have had AFib for 11 years did well on Multaq for the last 7 and all of a sudden it stopped working. Spent 4 days in the hospital and they told me I now have heart failure - cardiologist has recommended a pace and ablate in January and offered me Entresto but I hate to add new meds to my already mix
PamJN
in
Atrial Fibrillation Support
9 months ago
Results from blood tests
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
Salsybar73
in
Thyroid UK
2 months ago
Disease remission achieved in SLE with dual-target CAR T-cell therapy
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Feeling rubbish
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
bellemia
in
Thyroid UK
2 months ago
NRAS Live: How Important is Nutrition & Diet when Managing Rheumatoid Arthritis?
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Aribah-NRAS
NRAS
in
NRAS
2 months ago
thank you for the help! ❤️
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
Loobie72
in
LUPUS UK
2 months ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
2 months ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
2 months ago
Lupus toothpaste reaction
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
LupusMigraineetc
in
LUPUS UK
2 months ago
1
...
28
29
30
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5823 results
Atrial Fibrillation Support
5573 results
British Liver Trust
4549 results
View top 10 communities
Sort by
Most Relevant
Newest