Experiences with

Heart valve diseases

hi , haven’t posted for a while. I have now after 2 years come down to 2 and a half milligrams per day having slowly reduced from 50 milligrams per day and I have found my rheumatoid arthritis is now getting worse especially in my hands. My rheumatologist has suggested I reduce only by half a milligram

Autoimmune Community Summit 2024 -- if you Google this there is information about registering and topics to be discussed. This is a very informative association to belong to get notifications of upcoming events as well updates on autoimmune diseases.

I have been treated for PMR and been on prednisone since July 2021. I have had 13 infusions of Actemra over the past year. I have had many ups and downs, including being weaned very slowly off prednisone and having to go back on it. Although there is no proof, I truly believe that having two shoulder

Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for the best specialist in UK. Any idea whom I could approach? Thnk. U

Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?

Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully treated with NDT medication. I have also recently been diagnosed with b12 deficiency and have started b12 injections every other day for 3 weeks

I was visiting my family early in December (2023) After a few days I had a tightness/pain in my chest which went away after sitting down. All was well for the next few days and the same thing happened again. The third time it happened, my wife suggested we visit A&E. A number of tests were done and

I feel so unwell and fatigued. I was on 120 Levothyroxine and was reduced to 100 my Dr said my T4 was high but my TSH was normal. I can't sleep at night but tired all the time. My face is puffy and my stomach distended I have had an underactive thyroid for 28 years and was told my thyroid was the size

What is an Autoimmune disease? Answered by Samantha Lebsock Pharm D https://youtu.be/eWsU7CiY5a4 For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list

Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?

Hi everyone,This is only my second post and I found all your responses very helpful. I hadn't heard of electrophysiologists until I joined the group, but I have done some research and there are electrophysiologists in a hospital near me. I have a constant fast heartbeat and am diagnosed with bigeminy

Husband due for surgery for replacement of mitral valve shortly. If you have had similar how long before you, 1 , recovered from the op ? 2, before you felt any improvement regarding fatigue and breathlessness. ? Thank you for any advice given.

Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom. I had lots of symptoms including neurological symptoms such as heart palpitations, pins and needles, visual disturbances, facial neuralgia, extreme

I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year

[i]13. The Grain of Truth[/i] [i]Uncharted with Hannah Fry[/i] [i]Amid the desperation of war-starved Netherlands a doctor finds a way of curing a group of gravely ill children. His finding challenges accepted medical wisdom, and provokes opposition from Catholics. But why had the rest of

Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?

Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back home on the 3/6/23 (after the post-fire refurb) my husband had a stroke. Luckily not a serious stroke. He was hospitalised and off work a while

Thyroid function test Serum TSH level < 0.01 mu/L [0.3 - 5.0]; Below low reference limit Serum free T4 level 50.4 pmol/L [7.9 - 16.0]; Above high reference limit Thyroid function test Serum free triiodothyronine level 13.1 pmol/L |3.8 - 6.0]; Above high reference limit ANTI THYROID PEROXIDASE 65

I was diagnosed recently with underactive thyroid and prescribed Levothyroxine. I wasn’t happy about taking any medication without further investigation so requested a T3 blood test. My results were T4 = 10.9, TSH = 2.82, T3 = 3.1 From this I gather that the TSH and T3 are within the normal range

FDA grants fast track designation to CAR T-cell therapy for SLE Caribou's CB-010 candidate designed for treatment-resistant lupus by Andrea Lobo, PhD The U.S. Food and Drug Administration (FDA) has granted fast track designation to Caribou Biosciences‘ CAR T-cell therapy CB-010 for systemic lupus