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Lymphoproliferative disorder diagnosis following PET scan
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
Kimlescam
in
British Liver Trust
12 days ago
Most effective ablation method?
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
Jafib
in
Atrial Fibrillation Support
1 month ago
PAF … ? Further echo
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Sniggetts
in
Atrial Fibrillation Support
2 months ago
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Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
3 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
3 months ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
3 months ago
Persistent Atrial Fibrillation
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
Gill123
in
Atrial Fibrillation Support
5 months ago
Robotic surgery?
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
Ptschannen
in
Atrial Fibrillation Support
5 months ago
Incruse Elipta 55 advice ?
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Kiki54
in
Lung Conditions Community Forum
5 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
5 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Anticoagulation Support
5 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
5 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Mitral Valve Regurgitation?
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
nikonBlue
in
Atrial Fibrillation Support
5 months ago
mitral valve regurgitation and AF
Hello . I was diagnosed with mild to moderate MVR last November . No symptoms other than slight breathlessness . Yesterday on another echocardiogram I was informed I have AF - no symptoms at all . It has made me very anxious . Has anyone else experience of both ? I am 57 , very very fit , not overweight
Hello . I was diagnosed with mild to moderate MVR last November . No symptoms other than slight breathlessness . Yesterday on another echocardiogram I was informed I have AF - no symptoms at all . It has made me very anxious . Has anyone else experience of both ? I am 57 , very very fit , not overweight
Mumthree
in
Atrial Fibrillation Support
6 months ago
INR readings
Can anyone explain INR reading and their importance please? My wife needs to be at a 1.8 but is currently at a 1.6. They've put her on a shot to raise her level but we're not sure what that really means. We're very new to this new lifestyle change. 1 week ago she had mitral valve replacement. Thanks
Can anyone explain INR reading and their importance please? My wife needs to be at a 1.8 but is currently at a 1.6. They've put her on a shot to raise her level but we're not sure what that really means. We're very new to this new lifestyle change. 1 week ago she had mitral valve replacement. Thanks
scooterLOVE
in
Anticoagulation Support
3 days ago
Permanent AF how do you manage?
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Fattypatty
in
Atrial Fibrillation Support
6 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
7 months ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
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