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UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
4 months ago
Chronic kidney disease
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
MaggieSylvie
in
MPN Voice
8 months ago
Severe Lung Scarring from Pneumonia
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
ForMyPapa
in
ICUsteps
8 months ago
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Coming off Amiodarone
After developing Afib (thanks to Covid) I was put on amiodarone, bisoprolol and edoxaban. A terrible two to three weeks followed without a wink of sleep getting the amiodarone into my system. I had a cardioversion a few months later (delayed thanks to doctors and nurses strikes). That worked and I felt
After developing Afib (thanks to Covid) I was put on amiodarone, bisoprolol and edoxaban. A terrible two to three weeks followed without a wink of sleep getting the amiodarone into my system. I had a cardioversion a few months later (delayed thanks to doctors and nurses strikes). That worked and I felt
JoDogBlue
in
Atrial Fibrillation Support
6 months ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
"First ever successful experimental stem cell therapy for Parkinson's Disease"
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
MBAnderson
in
Cure Parkinson's
8 months ago
Ureteral cytosis
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
CWT53
in
Advanced Prostate Cancer
8 months ago
Had appointment with cardiologist- update
We had appointment today with cardiologist which we booked privately. In my previous post I said I’d update on how it went. The cardiologist has decided that he will put a heart rate monitor on mum for a week, and see what’s going on. I explained the current anxiety symptoms were so frequent now, like
We had appointment today with cardiologist which we booked privately. In my previous post I said I’d update on how it went. The cardiologist has decided that he will put a heart rate monitor on mum for a week, and see what’s going on. I explained the current anxiety symptoms were so frequent now, like
Nickybhf
in
AF Association
6 months ago
Liver Disease
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Uxori
in
British Liver Trust
8 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
1 month ago
Scared
I have copd/emphysema my pulse oxymeter is showing my oxy 91 I'm absolutely petrified
I have copd/emphysema my pulse oxymeter is showing my oxy 91 I'm absolutely petrified
Purple_1963
in
Lung Conditions Community Forum
6 months ago
New to all this!
Hi. I am new to this and feel overwhelmed by it all. I've just been in A&E and have now added yet another condition to the already long list I have. Due to autoimmune hypothyroidism I have had lots of problems with my health and have struggled with finding the right solutions. Now on more Bisoporol
Hi. I am new to this and feel overwhelmed by it all. I've just been in A&E and have now added yet another condition to the already long list I have. Due to autoimmune hypothyroidism I have had lots of problems with my health and have struggled with finding the right solutions. Now on more Bisoporol
Catlover3
in
AF Association
6 months ago
Causes of Afib
I have a question: One of the programs available at the HealthUnlocked "my hub" site from the AFA is entitled: "Atrial Fibrillation and You" It lists common causes of Afib: High blood pressure Coronary heart disease Mitral valve disease (caused by rheumatic heart disease, valve problems at birth
I have a question: One of the programs available at the HealthUnlocked "my hub" site from the AFA is entitled: "Atrial Fibrillation and You" It lists common causes of Afib: High blood pressure Coronary heart disease Mitral valve disease (caused by rheumatic heart disease, valve problems at birth
fibnum
in
AF Association
6 months ago
Post Cardioversion
In my previous post I explained that my 3rd carioversion did not work even after one hour I was back into afib. However something strange is happening or at least it seems strange to me but may be normal. Five days after my cardio I got up around 2:30-3:00 am to use the loo. I could feel my heart in
In my previous post I explained that my 3rd carioversion did not work even after one hour I was back into afib. However something strange is happening or at least it seems strange to me but may be normal. Five days after my cardio I got up around 2:30-3:00 am to use the loo. I could feel my heart in
dindy
in
Atrial Fibrillation Support
6 months ago
Ketogenic diet alters the epigenetic and immune landscape of prostate cancer to overcome resistance to immune checkpoint blockade therapy.
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
cigafred
in
Fight Prostate Cancer
2 months ago
Covid
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
JLAR01
in
LUPUS UK
6 months ago
amiodarone
Was admitted via A&E to hospital last October with fast AF, 174 bpm., Sob, high bp. Because of other underlying problems with CKD, doc put me on Amiodarone 200mg daily, along with Nebivolol bi-daily, replacing Bisoprolol. Was discharged after 6 days when heart rate was consistently below 80bpm. Now
Was admitted via A&E to hospital last October with fast AF, 174 bpm., Sob, high bp. Because of other underlying problems with CKD, doc put me on Amiodarone 200mg daily, along with Nebivolol bi-daily, replacing Bisoprolol. Was discharged after 6 days when heart rate was consistently below 80bpm. Now
mallet-head
in
Atrial Fibrillation Support
6 months ago
do I need my inhaler ?
hi all, I’m new to this forum and new to my illness which I haven’t really been informed of in much detail. I had a collapsed lung in September last year and they did a cat scan 3 weeks later. The results letter that they sent my doctor was also sent to me. I’ve gathered that I have emphysema and bronchial
hi all, I’m new to this forum and new to my illness which I haven’t really been informed of in much detail. I had a collapsed lung in September last year and they did a cat scan 3 weeks later. The results letter that they sent my doctor was also sent to me. I’ve gathered that I have emphysema and bronchial
50shadesofgrey
in
Lung Conditions Community Forum
6 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
1 month ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
1 month ago
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