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Had to fall back on Rx Sinemet for 2days&Mental focus poor
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
BUZZ1397
in
Cure Parkinson's
6 years ago
New Guy on the Block
Hi everybody, I'm brand new to this site and so glad I found it. So, I'm 76 diagnosed at 71 but more non-motor symptoms than motor symptoms. I am on high doses of Carbi/Levo (2 25/100's every 2 hours. Tremor wakes me 2-3 times a night, along with 4-5 trips to the bathroom. Sleep is terrible and pay for
Hi everybody, I'm brand new to this site and so glad I found it. So, I'm 76 diagnosed at 71 but more non-motor symptoms than motor symptoms. I am on high doses of Carbi/Levo (2 25/100's every 2 hours. Tremor wakes me 2-3 times a night, along with 4-5 trips to the bathroom. Sleep is terrible and pay for
martinstevens1
in
Cure Parkinson's
6 years ago
Dietary method for reducing fluctuations in PD (1987)
What are good updates to this 1987 study which is open access? Dietary method for reducing fluctuations in Parkinson's disease. Pincus JH, et al. Yale J Biol Med. 1987 Mar-Apr. Abstract. Motor fluctuations and non-response to carbidopa-levodopa (Sinemet) therapy are major problems in the long-term management
What are good updates to this 1987 study which is open access? Dietary method for reducing fluctuations in Parkinson's disease. Pincus JH, et al. Yale J Biol Med. 1987 Mar-Apr. Abstract. Motor fluctuations and non-response to carbidopa-levodopa (Sinemet) therapy are major problems in the long-term management
aspergerian
in
Cure Parkinson's
6 years ago
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Changing meds
Have been on ropinirole hcl 2mg for at least 5 years. Not working anymore.....I've been dealing with the increased frequency of "bad nights" but after a recent total hip replacement I'm done! Got back to my room about 11 am and around 4 pm the "feelings" began and unfortunately it was in the left leg
Have been on ropinirole hcl 2mg for at least 5 years. Not working anymore.....I've been dealing with the increased frequency of "bad nights" but after a recent total hip replacement I'm done! Got back to my room about 11 am and around 4 pm the "feelings" began and unfortunately it was in the left leg
tweedy66
in
Restless Legs Syndrome
6 years ago
New here!
Hi all! Diagnosed in 2013, with FXTAS, that's fragile X tremor/ataxia syndrome. The characteristic features of FXTAS are intention tremor, which is trembling or shaking of a limb when trying to perform a voluntary movement such as reaching for an object,and problems with coordination and balance (
Hi all! Diagnosed in 2013, with FXTAS, that's fragile X tremor/ataxia syndrome. The characteristic features of FXTAS are intention tremor, which is trembling or shaking of a limb when trying to perform a voluntary movement such as reaching for an object,and problems with coordination and balance (
tellme
in
Cure Parkinson's
6 years ago
Trials
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Hidden
in
Cure Parkinson's
6 years ago
DR. COSTANTINI & DR. COLANGELI ANSWER 58 FREQUENTLY ASKED QUESTIONS (FAQs) ABOUT HDT / THIAMINE / B1 PROTOCOL / Email : carapetata@libero.it
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Hidden
in
Cure Parkinson's
6 years ago
PROBLEMS WITH FREEZING
I'm 78 years old and was diagnosed with PD 6 years ago. Freezing has been the main symptom I've dealt with and now It's to the point now where I can't move unless I take weight off one side by putting pressure on my walker. That gets me going but it's very hard on my shoulders because I have to continue
I'm 78 years old and was diagnosed with PD 6 years ago. Freezing has been the main symptom I've dealt with and now It's to the point now where I can't move unless I take weight off one side by putting pressure on my walker. That gets me going but it's very hard on my shoulders because I have to continue
cerstadd
in
Cure Parkinson's
6 years ago
My Thiamine journey
Started with Thiamine yesterday after email exchange with Dr Constantini. I am Tremor dominant autonomic diagnosed about two years, 64 Reluctant to take prescribed Sinemet. Have tried various herbal sedatives such as Valerian. Looking like we all are to address the root cause . Not just relieve the
Started with Thiamine yesterday after email exchange with Dr Constantini. I am Tremor dominant autonomic diagnosed about two years, 64 Reluctant to take prescribed Sinemet. Have tried various herbal sedatives such as Valerian. Looking like we all are to address the root cause . Not just relieve the
Hidden
in
Cure Parkinson's
6 years ago
DBS
Has anyone undergone DBS?I'm being offered that as a solution to taking too much Sinemet to control my tremors (1800 mg per day).
Has anyone undergone DBS?I'm being offered that as a solution to taking too much Sinemet to control my tremors (1800 mg per day).
martinstevens1
in
Cure Parkinson's
6 years ago
Reduce resting tremrs
Does sinemet 25/100 reduce the resting tremors at proper dosage, if not what can help?
Does sinemet 25/100 reduce the resting tremors at proper dosage, if not what can help?
versakon
in
Cure Parkinson's
6 years ago
Shortness of breath in PD “respiratory dyskinesia”
Shortness of breath can have many causes, but someone with Parkinson’s disease has an unusual possibility, called “respiratory dyskinesia” (which just means “abnormal movement of the muscles of breathing”). This is an involuntary rapid breathing that causes distress, and it usually happens an hour after
Shortness of breath can have many causes, but someone with Parkinson’s disease has an unusual possibility, called “respiratory dyskinesia” (which just means “abnormal movement of the muscles of breathing”). This is an involuntary rapid breathing that causes distress, and it usually happens an hour after
Farooqji
in
Cure Parkinson's
6 years ago
Relationship Between Levodopa and Dyskinesias and How Thiamine Can Help
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
Kia17
in
Cure Parkinson's
6 years ago
Post DBS Surgery
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
annmariebaird
in
Cure Parkinson's
6 years ago
Post DBS Surgery
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I increase what the Medtronic device is providing and decrease meds. My meds at this time are 1 extended release 25/100 sinemet and 1/4 regular relelase
annmariebaird
in
Cure Parkinson's
6 years ago
Travelling issue
Hi PWP I am an Australian travelling at present in the USA and sent some baggage to my next destination. I will not get there for another week. I realised that I sent my Madopar 250 (3 x daily) with the baggage by mistake. I organised an MD visit and there is no Madopar in the USA. I have been given
Hi PWP I am an Australian travelling at present in the USA and sent some baggage to my next destination. I will not get there for another week. I realised that I sent my Madopar 250 (3 x daily) with the baggage by mistake. I organised an MD visit and there is no Madopar in the USA. I have been given
Bron60
in
Cure Parkinson's
6 years ago
Neurologist's tips for taking SINEMET
https://youtu.be/kiJ439n1v-o
https://youtu.be/kiJ439n1v-o
Hidden
in
Cure Parkinson's
6 years ago
Xadago and mucuna pruriens
My neurologist has prescribed me the MAOB inhibitor Xadago for the purpose of prolonging my ‘ON’ time on Sinemet Plus. I wonder if Xadago would work the same way with mucuna pruriens?
My neurologist has prescribed me the MAOB inhibitor Xadago for the purpose of prolonging my ‘ON’ time on Sinemet Plus. I wonder if Xadago would work the same way with mucuna pruriens?
Skydome
in
Cure Parkinson's
6 years ago
My visit to Dr. Costantini in Italy
Finding myself in Rome with an extra day to explore, I came upon a plan to make a visit to Viterbo, home of Dr. Costantini and the B1 treatment. This post will focus only on the trip logistics for anyone else planning a visit. First, what's not to like about Italy? Pasta, pizza and good red wine amongst
Finding myself in Rome with an extra day to explore, I came upon a plan to make a visit to Viterbo, home of Dr. Costantini and the B1 treatment. This post will focus only on the trip logistics for anyone else planning a visit. First, what's not to like about Italy? Pasta, pizza and good red wine amongst
meandpd
in
Cure Parkinson's
6 years ago
Slow Developing Parkinson's Symptoms
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
sandog
in
Cure Parkinson's
6 years ago
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