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Need help please
Hi everyone, I’ve recently been diagnosed with EGPA Vasculitis after suffering different symptoms for a few years and then fighting for my life at Christmas with severe pneumonia. I came out the other side a changed man but I’m struggling to come to terms with what is happening with my body at times!
Hi everyone, I’ve recently been diagnosed with EGPA Vasculitis after suffering different symptoms for a few years and then fighting for my life at Christmas with severe pneumonia. I came out the other side a changed man but I’m struggling to come to terms with what is happening with my body at times!
Rarity1
in
Vasculitis UK
4 years ago
Protocol supports hwp.
I was asked to share my hwp Protocol - I share only because it is supporting him and he is not on any Parkinson medications. Daily Brain (30 day supplement) breakfast prepackaged - inc. grapeseed extract, phosphatidylserine, curcumin, omega-3 EPA/DHA, 10 billion Probiotic. Check out nationalnutrition.ca
I was asked to share my hwp Protocol - I share only because it is supporting him and he is not on any Parkinson medications. Daily Brain (30 day supplement) breakfast prepackaged - inc. grapeseed extract, phosphatidylserine, curcumin, omega-3 EPA/DHA, 10 billion Probiotic. Check out nationalnutrition.ca
Spencer53
in
Cure Parkinson's
4 years ago
Dealing with a cold
I have had a cold for about a week and before this have not been sick since 1/21/19...so good run....my question is I am pretty early in my CLL my wc is around 35k....should expect my body's ability to fight this cold not to be hinder by my CLL at this point?
I have had a cold for about a week and before this have not been sick since 1/21/19...so good run....my question is I am pretty early in my CLL my wc is around 35k....should expect my body's ability to fight this cold not to be hinder by my CLL at this point?
Nick2121
in
CLL Support
4 years ago
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Dodging the storm
Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_source=facebook&utm_medium=social&utm_campaign=bcon-jacksonlabs_article_2 - a new platform designed to forecast ‘cytokine storms’. Caveat: article is a paid-for advertisement and method is not yet tested in human subjects. Claims
Published in Nature https://www.nature.com/articles/d42473-020-00442-z?utm_source=facebook&utm_medium=social&utm_campaign=bcon-jacksonlabs_article_2 - a new platform designed to forecast ‘cytokine storms’. Caveat: article is a paid-for advertisement and method is not yet tested in human subjects. Claims
bennevisplace
in
CLL Support
4 years ago
Cold before embryo transfer.
Hi all, I’m having my frozen embryo transfer on Monday but feel a cold coming on. Not aches and shivers , more a runny nose. My first born has has had it. I’m freaking out that having a cold could affect things. Any advice, words to calm , previous experience of this would be hugely appreciated. Thank
Hi all, I’m having my frozen embryo transfer on Monday but feel a cold coming on. Not aches and shivers , more a runny nose. My first born has has had it. I’m freaking out that having a cold could affect things. Any advice, words to calm , previous experience of this would be hugely appreciated. Thank
Joanna-Arabella1984
in
Fertility Network UK
4 years ago
Dad Damaged lungs after covid pneumonia
Hello I was hoping to find someone with a recovery story in the state my dad is right now. He tested positive Jan 9, Hospitalized Jan 17, Ventilator Jan 25. That is about 1.5 Mo. As of today my dad is still on the Vent 100%. They say he has fibrosis and pneumonia. He is no longer covid positive, but
Hello I was hoping to find someone with a recovery story in the state my dad is right now. He tested positive Jan 9, Hospitalized Jan 17, Ventilator Jan 25. That is about 1.5 Mo. As of today my dad is still on the Vent 100%. They say he has fibrosis and pneumonia. He is no longer covid positive, but
lbohorquez
in
ICUsteps
4 years ago
Gazyva reaction
Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion reaction both days which resolved. Now 4 days later have muscle aches like the flu. Already had my flu shot and don’t have any other symptoms. My Oncologist says that you can get muscle aches from the Gazyva. Has anyone
Had my first 2 gazyva infusions last Thursday and Friday. Had a brief infusion reaction both days which resolved. Now 4 days later have muscle aches like the flu. Already had my flu shot and don’t have any other symptoms. My Oncologist says that you can get muscle aches from the Gazyva. Has anyone
jjaarons
in
CLL Support
4 years ago
Long covid and cognitive problems
I've been home after having covid pneumonia and bring in CCU since 30th December. My vitamin D was in my boots, that's now sorted. I'm really struggling with the cognitive side, I can't think of words or phrases, forget things, I've ordered things that are wrong and the list goes on.... Has anyone else
I've been home after having covid pneumonia and bring in CCU since 30th December. My vitamin D was in my boots, that's now sorted. I'm really struggling with the cognitive side, I can't think of words or phrases, forget things, I've ordered things that are wrong and the list goes on.... Has anyone else
Hevhod
in
ICUsteps
4 years ago
Side effects of flagyl? Thrush? Help!
Took flagyl for 5 days, experienced/currently experiencing weird bleeding ? Thought it was my period but it’s thin blood (thin in viscosity/light colored but heavy flow) with lots of small clots which isn’t normal for my period. Smells like raw meat tbh which is disturbing :/ Also experienced persistent
Took flagyl for 5 days, experienced/currently experiencing weird bleeding ? Thought it was my period but it’s thin blood (thin in viscosity/light colored but heavy flow) with lots of small clots which isn’t normal for my period. Smells like raw meat tbh which is disturbing :/ Also experienced persistent
skimasktheslumpgod
in
BASHH
4 years ago
Covid symptoms
Long covid symptoms seem to be the same as I am suffering from 6 years after sepsis and pneumonia is there a connection can anyone help. I think it is more to do with being put into a coma than the infection is this a possibility
Long covid symptoms seem to be the same as I am suffering from 6 years after sepsis and pneumonia is there a connection can anyone help. I think it is more to do with being put into a coma than the infection is this a possibility
bunnyrabbit1234
in
ICUsteps
4 years ago
My hospital experience
I haven't done any posts for a while. I have IPF. Last year I became very ill and husband called an ambulance, I was in A&E for 9 hours, the bed was so hard my backside was numb, they put me in an emergency dependence ward with severe pneumonia after 5 days was transferred to a general ward I had never
I haven't done any posts for a while. I have IPF. Last year I became very ill and husband called an ambulance, I was in A&E for 9 hours, the bed was so hard my backside was numb, they put me in an emergency dependence ward with severe pneumonia after 5 days was transferred to a general ward I had never
Margot13
in
Lung Conditions Community Forum
4 years ago
Positive for the LRRK2 gene
I am positive for the LRRK2 gene. My father has pd and so did his Dad, as well as my mother’s Mom. I have two girls and 3 sisters. This news can be a curse or a blessing. If you have any words of wisdom I would really appreciate hearing them
I am positive for the LRRK2 gene. My father has pd and so did his Dad, as well as my mother’s Mom. I have two girls and 3 sisters. This news can be a curse or a blessing. If you have any words of wisdom I would really appreciate hearing them
Missy0202
in
Cure Parkinson's
4 years ago
Cough while on Imbruvica?
My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva and is now on Imbruvica. His counts are good. He has had a cough (something like chronic bronchitis) for at least two years. In the mornings, esp. he coughs and coughs and coughs up mucus that he needs to spit out. Has
My husband (70 yoga) was diagnosed w/CLL in 2017. He had two rounds of guzyva and is now on Imbruvica. His counts are good. He has had a cough (something like chronic bronchitis) for at least two years. In the mornings, esp. he coughs and coughs and coughs up mucus that he needs to spit out. Has
Gustac
in
CLL Support
4 years ago
My blood results...im confused with there ranges
From medichecks TSH 1.63 mIu/L ( 0.27-4.2 ) T3 5.76 pmoI/L ( 3.1-6.8) F thyroxine 14.9 pmoI/L (12-22) Thyroglobulin antibodies >10 KIU /L ( 0 - 115) TPA 11.3 kIU/L ( 0-34) Vb12 active b12 150 pmoI/L ( 37.5 - 187.5) Folate 9.2 ug/L ( 3.89 - 19.45) Vitamin
From medichecks TSH 1.63 mIu/L ( 0.27-4.2 ) T3 5.76 pmoI/L ( 3.1-6.8) F thyroxine 14.9 pmoI/L (12-22) Thyroglobulin antibodies >10 KIU /L ( 0 - 115) TPA 11.3 kIU/L ( 0-34) Vb12 active b12 150 pmoI/L ( 37.5 - 187.5) Folate 9.2 ug/L ( 3.89 - 19.45) Vitamin
Mlj01
in
Thyroid UK
4 years ago
COPD/Bronchitis. Are they linked.
I keep getting recurring chest infections and most days feel ill. My gp says it is my COPD but I'm wondering why I keep getting these chest infections constantly and feel so unwell. Any advice please?
I keep getting recurring chest infections and most days feel ill. My gp says it is my COPD but I'm wondering why I keep getting these chest infections constantly and feel so unwell. Any advice please?
Pollyposh1
in
COPD Friends
4 years ago
PMG and virus
Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go to 8mg and managed to keep up with regular exercise. Two weeks ago my husband picked up a virus, tickly throat, chesty cough (its not covid) 4 days later he started getting better and I got it but I didn't get better, saw
Hi I have PMG and am doing really well, have lowered prednisone to 9mg due to go to 8mg and managed to keep up with regular exercise. Two weeks ago my husband picked up a virus, tickly throat, chesty cough (its not covid) 4 days later he started getting better and I got it but I didn't get better, saw
Renesch
in
PMRGCAuk
4 years ago
Help with pseudomonas infection had since Dec and struggling
Had high dose of ciprofloxacin 750 And steroids pneumonia in feb never been this unwell I’m a bronchiectasis suffer- since a child
Had high dose of ciprofloxacin 750 And steroids pneumonia in feb never been this unwell I’m a bronchiectasis suffer- since a child
Redrum46
in
Lung Conditions Community Forum
4 years ago
Vaccines and flare up's?
Hi I'm new on here. I have 3 auto-immune conditions, including R.A. I was just wondering if anyone had a flare up after their covid vaccine? I had a pneumonia jab in September, a flu jab in November and the covid vaccine 4 weeks ago and the last few weeks I have been really struggling. It may be
Hi I'm new on here. I have 3 auto-immune conditions, including R.A. I was just wondering if anyone had a flare up after their covid vaccine? I had a pneumonia jab in September, a flu jab in November and the covid vaccine 4 weeks ago and the last few weeks I have been really struggling. It may be
debjw
in
NRAS
4 years ago
Sinus issues and endo?
Hi ladies I’m just interested to hear if anyone suffers with sinus issues? I thought it could have been from breaking my nose when I was 20 but after ENT checking with a camera they said it was clear. For the past 7 years I’ve had several flares of sinusitis but the main thing is that every single day
Hi ladies I’m just interested to hear if anyone suffers with sinus issues? I thought it could have been from breaking my nose when I was 20 but after ENT checking with a camera they said it was clear. For the past 7 years I’ve had several flares of sinusitis but the main thing is that every single day
Dartmouth93
in
Endometriosis UK
4 years ago
Coughing up blood in phlegm
Sorry its a bit gross! But last year I had a bad chest infection where I was very ill and it lasted for months. I was coughing up blood in green phlegm and totally wiped out. This resulted in 6 lots of antibiotics, chest xray, CT scans etc and I was told I had recurrent bronchitis. Has anyone else experienced
Sorry its a bit gross! But last year I had a bad chest infection where I was very ill and it lasted for months. I was coughing up blood in green phlegm and totally wiped out. This resulted in 6 lots of antibiotics, chest xray, CT scans etc and I was told I had recurrent bronchitis. Has anyone else experienced
Cristina1992
in
Asthma Community Forum
4 years ago
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