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PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
7 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
She-66
in
PBC Foundation
7 months ago
Wellue 24 hr monitor
I've been using the wellue 24 hour monitor for about 6 months it's a very useful device as it is small and you just place it on the left below the collar bone with ECG sticky pads after the 24 hours you upload it to a program that you install on a laptop.I recently had a reading that includes short
I've been using the wellue 24 hour monitor for about 6 months it's a very useful device as it is small and you just place it on the left below the collar bone with ECG sticky pads after the 24 hours you upload it to a program that you install on a laptop.I recently had a reading that includes short
fairgo45
in
Atrial Fibrillation Support
3 months ago
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pace and ablate
I lost my first post so I hope Im not repeating myself. Im a 63 year old woman with persistent AFib since 2020. After 2 years medication wasnt holding me and I could barely walk to the front door. Changed GP and cardiologist. 3 failed ablations later and I know in 2 weeks he will suggest pace and
I lost my first post so I hope Im not repeating myself. Im a 63 year old woman with persistent AFib since 2020. After 2 years medication wasnt holding me and I could barely walk to the front door. Changed GP and cardiologist. 3 failed ablations later and I know in 2 weeks he will suggest pace and
swimminglove
in
Atrial Fibrillation Support
3 months ago
Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
I wonder how many of us have this gene snip?It seems responsible for some autoimmune Thyroid disease and is quite rare
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
Manjushri
in
Thyroid UK
4 months ago
Advanced Prostate Cancer
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
Retrievertrainer
in
Advanced Prostate Cancer
7 months ago
T3 when to take it
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
elwins
in
Thyroid UK
4 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
4 months ago
Dealing with an AFib episode without meds.
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
Jomaur
in
Atrial Fibrillation Support
3 months ago
Heart rate smart watch
Hi,I have a 2 lead pacemaker for total heart block following AV ablation and 2yrs later since the procedure I'm in heart failure & afib and take ramipril, bisoprolol, dapagliflozin and having a few issues, which has resulted in me having to attend the pacemaker clinic 3x in last 3 weeks. I struggled
Hi,I have a 2 lead pacemaker for total heart block following AV ablation and 2yrs later since the procedure I'm in heart failure & afib and take ramipril, bisoprolol, dapagliflozin and having a few issues, which has resulted in me having to attend the pacemaker clinic 3x in last 3 weeks. I struggled
Nomis21
in
Atrial Fibrillation Support
3 months ago
Looking at DHEA again and the Cortisol link popped up...
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
TiggerMe
in
Thyroid UK
7 months ago
Worried about low heart rate now
Ok so I posted up before because was a bit anxious about my heart rate anyway. I have just started and only completed one run on last Tuesday. I felt so wiped out the days following that. I have a doctor's phone consultation on 30th which I originally booked just to get the ok to go ahead with C25K
Ok so I posted up before because was a bit anxious about my heart rate anyway. I have just started and only completed one run on last Tuesday. I felt so wiped out the days following that. I have a doctor's phone consultation on 30th which I originally booked just to get the ok to go ahead with C25K
DanDSC
in
Couch to 5K
3 months ago
There is hope
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
Oldbits
in
British Liver Trust
7 months ago
changed time of taking Clopidogrel.
Since starting to take Clopidogrel at night, alongside Atorvastatin, I noticed an increase in ectopic/irregular heartbeats. I decided I had endured the anxiety associated with the symptoms long enough so am now taking Clopidogrel in the morning and my Atorvastatin in the evening. The result is…..a much
Since starting to take Clopidogrel at night, alongside Atorvastatin, I noticed an increase in ectopic/irregular heartbeats. I decided I had endured the anxiety associated with the symptoms long enough so am now taking Clopidogrel in the morning and my Atorvastatin in the evening. The result is…..a much
Ladylovesmilktray
in
Anticoagulation Support
3 months ago
Progression
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
Blitzford72
in
PSP Association
3 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
4 months ago
Detecting undiagnosed AF
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
john-boy-92
in
Atrial Fibrillation Support
3 months ago
My brother got into a car acciddent and nurses put him back to sleep eveytime he gets agitated (please help)
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
casleyva
in
ICUsteps
7 months ago
Ablation or Not?
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
Peakoverload
in
Atrial Fibrillation Support
3 months ago
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