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Stills disease or other arthritis pain
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Stills
in
NRAS
2 months ago
Can pernicious anaemia be caused by long term use of lansoprazole?
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
wiserlady
in
Pernicious Anaemia Society
2 months ago
xtandi beginning to fail?
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Echotango51
in
Advanced Prostate Cancer
6 months ago
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documentary one in 37 by Cure Parkinson’s NZ
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
LAJ12345
in
Cure Parkinson's
6 months ago
chronic pain interview
In case these might be of use, here’s a very good interview with Kirsty Young (who has fibromyalgia and rheumatoid arthritis) to coincide with the International Association for the Study of Pain World Congress in Amsterdam. And a link to a useful site on living with chronic pain. The interview is only
In case these might be of use, here’s a very good interview with Kirsty Young (who has fibromyalgia and rheumatoid arthritis) to coincide with the International Association for the Study of Pain World Congress in Amsterdam. And a link to a useful site on living with chronic pain. The interview is only
Sibelius5
in
PMRGCAuk
2 months ago
PSA, total
Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’m not there yet. I had a RP June 2023 I just got the results from my forth PSA test the first three were a post prostatectomy PSA test and all three were 0.02 this last one was a PSA, total. That’s what the Urologist wanted
Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’m not there yet. I had a RP June 2023 I just got the results from my forth PSA test the first three were a post prostatectomy PSA test and all three were 0.02 this last one was a PSA, total. That’s what the Urologist wanted
Elkguide
in
Advanced Prostate Cancer
6 months ago
Is this real? Prevent & Reverse Autoimmune disease
Have you read, or do you know anyone who has, this book: 'Top 20 Foods to Help Prevent & Reverse Autoimmune Disease' ? It's available free as a download from Eric, Wisdom for Life if you enter your name and email address. It sounds too good to be true but perhaps you know better?
Have you read, or do you know anyone who has, this book: 'Top 20 Foods to Help Prevent & Reverse Autoimmune Disease' ? It's available free as a download from Eric, Wisdom for Life if you enter your name and email address. It sounds too good to be true but perhaps you know better?
thyr01d
in
Thyroid UK
2 months ago
looking for next steps for my young husband
Out of desperation I am writing this -we are looking for nothing short of a miracle. My husband was diagnosed in 2021 at age 45 with Stage 4 Prostate Cancer. We have 3 small children ages 7,3 and 2 and we need something to give my husband time with his family. Sharing our journey in hopes that it can
Out of desperation I am writing this -we are looking for nothing short of a miracle. My husband was diagnosed in 2021 at age 45 with Stage 4 Prostate Cancer. We have 3 small children ages 7,3 and 2 and we need something to give my husband time with his family. Sharing our journey in hopes that it can
shaunaliz15
in
Advanced Prostate Cancer
6 months ago
New Drug May Repair Myelin
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
NanciG
in
My MSAA Community
2 months ago
PSA after one month on lupron
I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in December. Biopsy and MRI showed all 12 cores malignant with "likelihood of extra-capsular extension". PSMA PET scan showed no mets as of December 15. I began treatment on February 26 with a week of Casodex followed by a Lupron
I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in December. Biopsy and MRI showed all 12 cores malignant with "likelihood of extra-capsular extension". PSMA PET scan showed no mets as of December 15. I began treatment on February 26 with a week of Casodex followed by a Lupron
CavScout
in
Advanced Prostate Cancer
6 months ago
Joint pain very common in lupus, affects patients’ life quality: Study
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Hashimoto's and gut
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
LifeintheMed
in
Thyroid UK
2 months ago
feeling unwell
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
Prosecco1997
in
Thyroid UK
2 months ago
Anyone on Nubeqa mono therapy with prostate in place?
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
Steel67
in
Advanced Prostate Cancer
6 months ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Corriemay15
in
British Liver Trust
6 months ago
What a week!! (Starting HD, continued)
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
PeaB4YouGo
in
Kidney Dialysis
6 months ago
Test Results - How bad is it?
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
LeanneMK
in
Thyroid UK
2 months ago
Botox and autoimmune illness
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Topes009
in
Thyroid UK
2 months ago
EU Approves Subcutaneous Formulation of Ocrelizumab for Multiple Sclerosis Treatment
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
BettysMom
in
My MSAA Community
2 months ago
Just Asking For Advice/ Opinions.
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
Sparklingsunshine
in
Hughes Syndrome APS Forum
2 months ago
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