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RLS Ropinirole withrawl
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
Nahfranz
in
Restless Legs Syndrome
1 year ago
3pd5t and cabergoline for prolactin
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
Babygirllllll
in
Fertility Network UK
1 year ago
Experimenting on myself, don't all try this at home
This is long but I wanted to share this in the hope this inspires someone, some may think I'm crazy but I just had to find out. I have HOCM, its quite mild and has been so for years. It's hereditary. Im in my 50's . Was sort of bullied by cardiologists to take Beta blockers and have been on a low dose
This is long but I wanted to share this in the hope this inspires someone, some may think I'm crazy but I just had to find out. I have HOCM, its quite mild and has been so for years. It's hereditary. Im in my 50's . Was sort of bullied by cardiologists to take Beta blockers and have been on a low dose
TonyB1972
in
AF Association
1 year ago
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Tingling sensation in my fingers and hands. Is it caused by augmentation ?
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Jrskyhook32
in
Restless Legs Syndrome
1 year ago
Tortuous
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
Firenze1
in
Restless Legs Syndrome
1 year ago
Advice on codeine v tramadol
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
Night_raven
in
Restless Legs Syndrome
1 year ago
Cannabis and Restless Leg
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Farmgurl1
in
Restless Legs Syndrome
1 year ago
RLS-UK New Film - Ropinirole/Pramipexole/Neupro Patch
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
Kaarina
Administrator
in
Restless Legs Syndrome
1 year ago
Could my son have Ehlers-Danlos? Who to ask about diagnosis?
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
CN4321
in
Ehlers-Danlos Support UK
1 year ago
finished Neupro taper and looking for guidance on increasing my Gabapentin dosage
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
Discopage
in
Restless Legs Syndrome
1 year ago
Guidance for RLS
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
PinkTLC
in
Restless Legs Syndrome
1 year ago
This might be found useful?
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
Dedou
in
Restless Legs Syndrome
1 year ago
Lyrica pregabalin
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
tagaxel
in
Restless Legs Syndrome
1 year ago
Aids post knee replacement
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
greynot
in
NRAS
1 year ago
restless legs
I suffer terribly with pain in my legs,the only med that helps my rls is morphine.
I suffer terribly with pain in my legs,the only med that helps my rls is morphine.
Horsham
in
Restless Legs Syndrome
1 year ago
Gabapentin and Dihydrocodeine
Hello, does anyone have experience in taking Gabapentin with Dihydrocodeine? I was on 5 x Gabapentin 300mg per day (1 in the morning and 4 at night). Gabapentin had worked well for me, but then I was waking with an attack of RLS at around 4am every morning. It usually took about an hour at least to
Hello, does anyone have experience in taking Gabapentin with Dihydrocodeine? I was on 5 x Gabapentin 300mg per day (1 in the morning and 4 at night). Gabapentin had worked well for me, but then I was waking with an attack of RLS at around 4am every morning. It usually took about an hour at least to
HelenJS
in
Restless Legs Syndrome
1 year ago
Tramadol and Gabapentin?
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
Springfiel1
in
Restless Legs Syndrome
1 year ago
IBS Anxiety
HelloI'm new to this and I can't believe how many people are suffering with IBS or similar. It's astonishing! I'm 65 and have been managing it for 15 years when it started at the age of 50. I've managed it quite well with food, supplements, trial and error, and realized some time ago that symptoms
HelloI'm new to this and I can't believe how many people are suffering with IBS or similar. It's astonishing! I'm 65 and have been managing it for 15 years when it started at the age of 50. I've managed it quite well with food, supplements, trial and error, and realized some time ago that symptoms
Misspomfrey
in
IBS Network
1 year ago
A couple of runs
After almost five weeks away and one short run done, I went to the park run on Saturday. That particular course floods easily and I turned up unprepared to run through a LOT of flooded paths. It was totally horrid! Needless to say, I didn’t do well and it sapped me energy and confidence, but I did
After almost five weeks away and one short run done, I went to the park run on Saturday. That particular course floods easily and I turned up unprepared to run through a LOT of flooded paths. It was totally horrid! Needless to say, I didn’t do well and it sapped me energy and confidence, but I did
Oldlady64
in
Bridge to 10K
1 year ago
Weaning off high dose Pramipexole
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
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