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Gorlin syndrome
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40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
8 months ago
High bp, then not high bp
Hello everyone, I was feeling so ill , liie dying for very long time . Then a chemist say I have high bp. Then she told doctors . And stupidly I say I will try garlic and other vits to lower my bp. So for 6 months I try , but then vits seem stop work. So then I go back to doctors , and say I wish to
Hello everyone, I was feeling so ill , liie dying for very long time . Then a chemist say I have high bp. Then she told doctors . And stupidly I say I will try garlic and other vits to lower my bp. So for 6 months I try , but then vits seem stop work. So then I go back to doctors , and say I wish to
Goldengirl69
in
British Heart Foundation
1 year ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
9 months ago
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coming off Pramipexole
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
Moretravel1
in
Restless Legs Syndrome
9 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
7 months ago
Help ! 1 week post circumcision sensitivity
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Megatron2000
in
Sexual Health India
11 months ago
LDN and Primary Sclerosing Cholangitis?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
TruthWillSetUFree
in
LDN Research Trust
11 months ago
Anyone with ET tried ginseng, ginko bilboa, or pomegranates to lower PC?
My son (19y/o) has ET, is JAK2+, and is home from college for the summer. He is currently on a daily aspirin, but I am concerned about his PC continuing to increase over the last month (from 1200 ish to 1400ish). His MPN specialist in NYC is awesome and has said that PC can be finicky. Perhaps finals
My son (19y/o) has ET, is JAK2+, and is home from college for the summer. He is currently on a daily aspirin, but I am concerned about his PC continuing to increase over the last month (from 1200 ish to 1400ish). His MPN specialist in NYC is awesome and has said that PC can be finicky. Perhaps finals
trainerliz
in
MPN Voice
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
9 months ago
Restless legs medication
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
Lin58
in
Restless Legs Syndrome
9 months ago
Ropinirole to Pregabalin
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
missrees
in
Restless Legs Syndrome
9 months ago
Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
9 months ago
gabapentin side effects
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
Hublot
in
Restless Legs Syndrome
9 months ago
UK herbal remedy ingredient check by UCL School of Pharmacy: Many poor quality products, though those with the THR label fare better
Do herbal supplements contain what they say on the label?
https://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label This research, recently reported by the BBC, is not a new problem or just restricted to the UK. It's in part because
Do herbal supplements contain what they say on the label?
https://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label This research, recently reported by the BBC, is not a new problem or just restricted to the UK. It's in part because
AussieNeil
Partner
in
CLL Support
1 year ago
ibuprofen & Pramipexole
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Millersman
in
Restless Legs Syndrome
9 months ago
Torturous world of RLS
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
Hidden
in
Restless Legs Syndrome
9 months ago
RLS medication side effects
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
whitney2044
in
Restless Legs Syndrome
9 months ago
Ropinirole should be banned.
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
DCM556
in
Restless Legs Syndrome
9 months ago
Been smelling smoke for a week after bonfire.
Constantly smelling smoke when the wind changed direction as I burnt some conifer branches. It's happened before but never continued for this long. Cut my nose hair, tried nasal sprays, irrigation etc; to no effect. Only thing that helps is Olbas oil which counters the stink. Googled it and it came
Constantly smelling smoke when the wind changed direction as I burnt some conifer branches. It's happened before but never continued for this long. Cut my nose hair, tried nasal sprays, irrigation etc; to no effect. Only thing that helps is Olbas oil which counters the stink. Googled it and it came
pffft2017
in
Thyroid UK
11 months ago
So this is where it begins
NRC half marathon plan.I've started this plan before but just didn't have the time or energy to do the longer runs so ended up just not going. Now I have time, lots of it. I had planned to start this as soon as I retired but that didn't happen. I've been running and walking more though and now feels
NRC half marathon plan.I've started this plan before but just didn't have the time or energy to do the longer runs so ended up just not going. Now I have time, lots of it. I had planned to start this as soon as I retired but that didn't happen. I've been running and walking more though and now feels
SueAppleRun
60minGraduate
in
Bridge to 10K
1 year ago
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