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Experiences with
Glycerol phenylbutyrate
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Brand change in oral solution
Morning and hope everyone has had a lovely Easter . I have just received my prescription and it is a different brand to that which I’ve had since the end of December. Some posts have said to be careful on switching brands . Initially I was taking Teva. The new brand is Mercury Pharmaceuticals. Please
Morning and hope everyone has had a lovely Easter . I have just received my prescription and it is a different brand to that which I’ve had since the end of December. Some posts have said to be careful on switching brands . Initially I was taking Teva. The new brand is Mercury Pharmaceuticals. Please
Benjipuss
in
Thyroid UK
1 month ago
At last I’ve managed 2x5minute runs🤣 and shoe porn 🤣🤣
We’ll after at least 2 months of physio and exercises I’ve finally got to 2x5 minutes of running. I still felt som pain but physio did say that I could carry on so long as it wasn’t too severe. So now I think I will stick with this regime for a while and I’ll try 2 runs a week. It’s slow progress but
We’ll after at least 2 months of physio and exercises I’ve finally got to 2x5 minutes of running. I still felt som pain but physio did say that I could carry on so long as it wasn’t too severe. So now I think I will stick with this regime for a while and I’ll try 2 runs a week. It’s slow progress but
Scruff55
60minGraduate
in
Bridge to 10K
2 months ago
Advice needed please about liquid Levothyroxine side effects
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Annie567
in
Thyroid UK
2 months ago
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I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
4 months ago
Faecal loading
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
Laxido21
in
IBS Network
4 months ago
Sorbolene Lotion experience and my RLS
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
bernardnz
in
Restless Legs Syndrome
4 months ago
Morphine constipation help
Only taking 7mg of morphine. In my third month. It is helping my PLMD but the constipation is horrible, and also sedation/fatigue has set in, and while I can drink caffeine it doesn't seem to have any effect. (I wish I had stayed at 4mg--it was helping less but I had more energy and controllable constipation
Only taking 7mg of morphine. In my third month. It is helping my PLMD but the constipation is horrible, and also sedation/fatigue has set in, and while I can drink caffeine it doesn't seem to have any effect. (I wish I had stayed at 4mg--it was helping less but I had more energy and controllable constipation
wantokporo
in
Restless Legs Syndrome
5 months ago
Flecainide & Constipation!
Hi, Ever since my Flecainide was increased to 150mg twice daily I have suffered with never-ending constipation causing very impacted and large hard to pass stools. Naturally I have tried all sorts of remedies (have always consumed prunes every day together with a high fibre oats/wheat-bran/toasted
Hi, Ever since my Flecainide was increased to 150mg twice daily I have suffered with never-ending constipation causing very impacted and large hard to pass stools. Naturally I have tried all sorts of remedies (have always consumed prunes every day together with a high fibre oats/wheat-bran/toasted
Fib36
in
AF Association
5 months ago
End Game
My wonderful mum has taken her last breath this evening. Whilst the last few weeks have seen days of deterioration and then stabilising, this final stage has been very quick. Two days in bed, unresponsive once we administered anticipatory medication because I wanted to be sure she wasn’t in pain or
My wonderful mum has taken her last breath this evening. Whilst the last few weeks have seen days of deterioration and then stabilising, this final stage has been very quick. Two days in bed, unresponsive once we administered anticipatory medication because I wanted to be sure she wasn’t in pain or
Willowden
in
PSP Association
5 months ago
Biotin and ESR/CRP Testing
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Burroughs123
in
PMRGCAuk
6 months ago
glycerol suppositories.
Hi, I have been prescribed these to use to clear out my rectum as it’s backed up from surgery and lots of pain killers however I have never used these before can anyone share their experiences of how they work once you have inserted it what do you do? How long do you wait for it to happen? Do you need
Hi, I have been prescribed these to use to clear out my rectum as it’s backed up from surgery and lots of pain killers however I have never used these before can anyone share their experiences of how they work once you have inserted it what do you do? How long do you wait for it to happen? Do you need
MyStar86
in
IBS Network
6 months ago
Second Stent
So in 2019 I had a stent after HA. Now four years later getting tightness cross chest, can still walk up 3 steps of stairs ok. Once I stop out walking it settles down again. I’m also asthmatic. My question is has any had a second stent that resolved this. I take glycerin spray once a month. thanks
So in 2019 I had a stent after HA. Now four years later getting tightness cross chest, can still walk up 3 steps of stairs ok. Once I stop out walking it settles down again. I’m also asthmatic. My question is has any had a second stent that resolved this. I take glycerin spray once a month. thanks
SmokeAKipper
in
British Heart Foundation
7 months ago
New, A Bit Scared, Would Appreciate Advice.
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
Sparklingsunshine
in
British Heart Foundation
14 days ago
Undiagnosed: Likely stress cardiomyopathy, MINOCA
I'm in my mid fifties and had an ACS event about four weeks ago (chest pain radiating in a band around my chest and back, weird electrical feelings down both brachial arteries) with raised troponin (100, raising to 1000) and spent four days in hospital. EGC showed inverted T on the bottom line of the
I'm in my mid fifties and had an ACS event about four weeks ago (chest pain radiating in a band around my chest and back, weird electrical feelings down both brachial arteries) with raised troponin (100, raising to 1000) and spent four days in hospital. EGC showed inverted T on the bottom line of the
Takonoca
in
British Heart Foundation
17 days ago
Can’t switch anxiety off - update
Hi everyone, I just wanted to thank everyone who responded to my message relating to being extremely anxious about my Cardiac Stress MRI scan. You provided some extremely helpful tips and methods and also shared your experiences too. I can say after having my scan earlier today that the advise you
Hi everyone, I just wanted to thank everyone who responded to my message relating to being extremely anxious about my Cardiac Stress MRI scan. You provided some extremely helpful tips and methods and also shared your experiences too. I can say after having my scan earlier today that the advise you
Toffodog
in
British Heart Foundation
25 days ago
Raynaud's in dark skinned patients
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
CarerEdi
in
Scleroderma & Raynaud's UK (SRUK)
28 days ago
Stress test results
hi all, I have now had my drug induced stress echo with contrast and the consultant told me there and then that I have a healthy happy heart. What a relief after months of random chest pains. She says I have angina and to carry on with bisoprol and aspirin and to carry a gtn spray with me. My anxiety
hi all, I have now had my drug induced stress echo with contrast and the consultant told me there and then that I have a healthy happy heart. What a relief after months of random chest pains. She says I have angina and to carry on with bisoprol and aspirin and to carry a gtn spray with me. My anxiety
Nottscaz
in
British Heart Foundation
28 days ago
Feeling overwhelmed
After a routine lung screening CT scan I was diagnosed with mild emphysema and some calcification of my heart arteries. I was also referred for a further high definition CT Scan to confirm bronchiectasis. My GP prescribed Salamol which did nothing to help the breathlessness and chest tightness I'd been
After a routine lung screening CT scan I was diagnosed with mild emphysema and some calcification of my heart arteries. I was also referred for a further high definition CT Scan to confirm bronchiectasis. My GP prescribed Salamol which did nothing to help the breathlessness and chest tightness I'd been
Roxdale
in
Lung Conditions Community Forum
30 days ago
Cardiac Stress MRI anxiety
Hello everyone, I have been requested to attend for a Cardiac Stress MRI scan next week to investigate the reason why I am having a high frequency of angina attacks some of which come in clusters every 15-20mins and always at rest. I have been requested to stop using the GTN spray and not take any of
Hello everyone, I have been requested to attend for a Cardiac Stress MRI scan next week to investigate the reason why I am having a high frequency of angina attacks some of which come in clusters every 15-20mins and always at rest. I have been requested to stop using the GTN spray and not take any of
Toffodog
in
British Heart Foundation
1 month ago
Help me
Got swollen hands and feet. When my chest pains get to 9 . I blackout. I've getting chest pain last night and again now. The gtn spray work for half a hour then wears off. What should I do?
Got swollen hands and feet. When my chest pains get to 9 . I blackout. I've getting chest pain last night and again now. The gtn spray work for half a hour then wears off. What should I do?
poppy40
in
British Heart Foundation
1 month ago
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