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5years in of a forecast 5 to 10 years expected survival - age 78 now.
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
Dondodoc
in
Advanced Prostate Cancer
2 years ago
Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Fight Prostate Cancer
2 years ago
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Endo interfering with nerves?
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
Sloany
in
Endometriosis UK
2 years ago
Prostap injections side effects
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
thearoma4
in
Endometriosis UK
2 years ago
coil advise
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
ashleytt
in
Endometriosis UK
2 years ago
Should I go on Prostap/Zoladex?!
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Louisehart1995
in
Endometriosis UK
2 years ago
How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Amber83
in
Endometriosis UK
2 years ago
Keyhole surgery
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
FMohammed
in
Endometriosis UK
2 years ago
On Prostap but worried about starting Tibolone
Hi all - this looks like a really helpful group xx I have been given prostap 3 monthly injection as now on list for a full hysterectomy due to fibroids . Consultant also prescribed Tibolone but when I read the data sheet it terrified me and I haven’t took any yet. I’m feeling more depressed than ever
Hi all - this looks like a really helpful group xx I have been given prostap 3 monthly injection as now on list for a full hysterectomy due to fibroids . Consultant also prescribed Tibolone but when I read the data sheet it terrified me and I haven’t took any yet. I’m feeling more depressed than ever
Batwoman3
in
Endometriosis UK
2 years ago
Prostap - FET
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
TurquoiseWater
in
Fertility Network UK
2 years ago
Advice on Prostap injection
Hi, Quick question: I'm on a mock cycle with a clinic in Spain and need to have a prostap injection on the 30th Dec by a professional. Has anyone done this before? Anyone know where you can get this done in London? Thanks X
Hi, Quick question: I'm on a mock cycle with a clinic in Spain and need to have a prostap injection on the 30th Dec by a professional. Has anyone done this before? Anyone know where you can get this done in London? Thanks X
Hopecontinues
in
Fertility Network UK
2 years ago
Rectal fluttering
I’m at my wits end today…started on prostap, this is my second month on it. My “period” has arrived with massively increased pain (way more than usual) and the blood is more black tissue that’s being expelled which, I hate to say it, really smells horrid. Is this normal?! Also today I’ve noticed when
I’m at my wits end today…started on prostap, this is my second month on it. My “period” has arrived with massively increased pain (way more than usual) and the blood is more black tissue that’s being expelled which, I hate to say it, really smells horrid. Is this normal?! Also today I’ve noticed when
Medicalmenopause
in
Endometriosis UK
2 years ago
Can tibolone make endo worse?
Hi everyone, Quick question but has anyone found tibolone makes their endo worse? I did one month of prostap with no tibolone and after the initial two week awfulness I was actually pain free for the first time in years! Fast forward to second injection and nearly a week of tibolone and my pain is
Hi everyone, Quick question but has anyone found tibolone makes their endo worse? I did one month of prostap with no tibolone and after the initial two week awfulness I was actually pain free for the first time in years! Fast forward to second injection and nearly a week of tibolone and my pain is
Medicalmenopause
in
Endometriosis UK
2 years ago
Prostap
Im new here so dont really know what to say or how to do this! But hi! I am currtnetly on 6th prostap injection, after finally my doctors have listen to me and followed up on something. I have been fighting hard for nearly 6 years now on how i have been feeling just to be brushed off and being ignored
Im new here so dont really know what to say or how to do this! But hi! I am currtnetly on 6th prostap injection, after finally my doctors have listen to me and followed up on something. I have been fighting hard for nearly 6 years now on how i have been feeling just to be brushed off and being ignored
ashleytt
in
Endometriosis UK
2 years ago
Bleeding 2 weeks after first Prostap injection
Hi everyone so I currently have suspected but undiagnosed endometriosis. Dr started me on Prostap 2 weeks ago. I had been bleeding daily up until then (not a lot but noticable when I wipe) and have had lower left side pelvic pain for more than 2 years now and also have the mirena coil fitted. This
Hi everyone so I currently have suspected but undiagnosed endometriosis. Dr started me on Prostap 2 weeks ago. I had been bleeding daily up until then (not a lot but noticable when I wipe) and have had lower left side pelvic pain for more than 2 years now and also have the mirena coil fitted. This
JujuB77
in
Endometriosis UK
2 years ago
bleeding after first prostap injection
I had my first prostap injection on Monday and started my tibolone along with it, I’ve been so exhausted all week, no energy, very emotional, I had some light bleeding but on Saturday (yesterday) I’ve started bleeding more and now it’s like I’m taking my period, has anyone else experienced this? I have
I had my first prostap injection on Monday and started my tibolone along with it, I’ve been so exhausted all week, no energy, very emotional, I had some light bleeding but on Saturday (yesterday) I’ve started bleeding more and now it’s like I’m taking my period, has anyone else experienced this? I have
Tootie2008
in
Endometriosis UK
2 years ago
prostap and livital 2.5 HRT
Hello. I am now on prostap injections every three months and have been given livital HRT tablets to help manage the menopause symptoms. today is my first time trying them and I feel very spaced. My eyes are very fuzzy. I don’t feel with it at all. has anybody else experience this on this tablet
Hello. I am now on prostap injections every three months and have been given livital HRT tablets to help manage the menopause symptoms. today is my first time trying them and I feel very spaced. My eyes are very fuzzy. I don’t feel with it at all. has anybody else experience this on this tablet
Prettythings1
in
Endometriosis UK
2 years ago
QoL - a great gig last night!
As there have been a few posts recently about quality of life, I thought I'd put one out there about my main current avenue of enjoyment - playing bass guitar in a club band. We had a cracking gig last night with a packed dance floor all evening. A highlight for me as the bassist was our new song; a
As there have been a few posts recently about quality of life, I thought I'd put one out there about my main current avenue of enjoyment - playing bass guitar in a club band. We had a cracking gig last night with a packed dance floor all evening. A highlight for me as the bassist was our new song; a
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Prostap SR - first injection, will I have a period? Please help x
I’m so heartbroken to read so many of us struggling, but in a way feel rest assured I’m not the only one. Hats off to you ladies! I was prescribed Ryeqo to stop my periods as I have large fibroids and horrendous bleeding each time I have my period After 2 weeks of taking Ryeqo, I had to go to A&E
I’m so heartbroken to read so many of us struggling, but in a way feel rest assured I’m not the only one. Hats off to you ladies! I was prescribed Ryeqo to stop my periods as I have large fibroids and horrendous bleeding each time I have my period After 2 weeks of taking Ryeqo, I had to go to A&E
Alisonclements
in
Endometriosis UK
2 years ago
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