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endometriosis centre
My surgeon has referred me to the endometriosis centre in Manchester. Has anyone else ever had to wait upto a year to see them? My surgeon isn’t in my area I have moved to so I’m struggling with what to do now as my treatment has finished this month after being on prostap for stage 4 endo.
My surgeon has referred me to the endometriosis centre in Manchester. Has anyone else ever had to wait upto a year to see them? My surgeon isn’t in my area I have moved to so I’m struggling with what to do now as my treatment has finished this month after being on prostap for stage 4 endo.
Red476
in
Endometriosis UK
3 days ago
prostap
I’ve been on prosap for 7 months, how soon after stopping will my period come back? And the hot flushes stop
I’ve been on prosap for 7 months, how soon after stopping will my period come back? And the hot flushes stop
Red476
in
Endometriosis UK
3 days ago
MRI false positive?
After waiting 16 months for surgery I finally had my lap yesterday which didn’t find any endo - it was done with a specialist at a BSGE centre too. I’m so confused as 16 months ago I had a MRI which showed thickened uterosacral ligaments, mild adhesions near right ovary and right ovary possibly stuck
After waiting 16 months for surgery I finally had my lap yesterday which didn’t find any endo - it was done with a specialist at a BSGE centre too. I’m so confused as 16 months ago I had a MRI which showed thickened uterosacral ligaments, mild adhesions near right ovary and right ovary possibly stuck
CrochetCrayola
in
Endometriosis UK
10 days ago
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Thoracic Endo & Prostap
Just wondered if anyone has been in the same situation as me and would be happy to share their experience.....I'm early 40's and had an MRI which showed endometriosis and multiple large fibroids. I also requested a CT scan for my chest as I'd been having chest pain and shortness of breath. The CT showed
Just wondered if anyone has been in the same situation as me and would be happy to share their experience.....I'm early 40's and had an MRI which showed endometriosis and multiple large fibroids. I also requested a CT scan for my chest as I'd been having chest pain and shortness of breath. The CT showed
BlueMocktail
in
Endometriosis UK
25 days ago
Back home & overthinking
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
Faylen34
in
Endometriosis UK
1 month ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
1 month ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
1 month ago
Enzalutamide
Hi I take 30mg Targinact and 300mg Gabapentin for severe RLS I'm also taking quarterly Prostap injections to prevent the spread of prostate cancer. I was also taking 400mg Enzalutamide daily. I was experience serious daytime sleepiness and brain fog, so the oncologist stopped the Enzalutamide for 6
Hi I take 30mg Targinact and 300mg Gabapentin for severe RLS I'm also taking quarterly Prostap injections to prevent the spread of prostate cancer. I was also taking 400mg Enzalutamide daily. I was experience serious daytime sleepiness and brain fog, so the oncologist stopped the Enzalutamide for 6
RLSHell
in
Restless Legs Syndrome
1 month ago
Prostap injections?? Does anyone have any tips pls.
The consultant has just prescribed Prostap injections, whilst I'm on the waiting list for a hysterectomy through endometriosis. Has anyone used Prostap? And what were/ are your experiences?
The consultant has just prescribed Prostap injections, whilst I'm on the waiting list for a hysterectomy through endometriosis. Has anyone used Prostap? And what were/ are your experiences?
Pixinix
in
Endometriosis UK
1 month ago
Prostap causing pain & stiffness
Hi everyone, I just wondered if anyone has any experience of pain and stiffness while on prostap? I have been on prostap for a year now and I have been getting a lot of joint pain and stiffness in my ankles, knees and hips. Also my bones hurt, particularly in my legs and feet. In the past couple
Hi everyone, I just wondered if anyone has any experience of pain and stiffness while on prostap? I have been on prostap for a year now and I have been getting a lot of joint pain and stiffness in my ankles, knees and hips. Also my bones hurt, particularly in my legs and feet. In the past couple
Capybara123
in
Endometriosis UK
1 month ago
calcium and prostap
hey team, I’m starting prostap whilst awaiting colorectal input for bowel endo. I’ve been advised to start taking Calcium, vit D and start strength training due to familial oesteoporosis to support my bone density. Anyone else taking calcium and have any info or recs on which and how much etc?
hey team, I’m starting prostap whilst awaiting colorectal input for bowel endo. I’ve been advised to start taking Calcium, vit D and start strength training due to familial oesteoporosis to support my bone density. Anyone else taking calcium and have any info or recs on which and how much etc?
PotatoSalad
in
Endometriosis UK
1 month ago
Surgery Cancelled .. because I look to fit and well!
I had to post this due to how utterly ridiculous my day was yesterday. After 2 years of scans and appointments and 6 months of prostap. My doctor cancelled my surgery to remove endo and adhesions and also confirm the 6cm growth on my uterus is not suspicious because .. I quote .. you look fit and well
I had to post this due to how utterly ridiculous my day was yesterday. After 2 years of scans and appointments and 6 months of prostap. My doctor cancelled my surgery to remove endo and adhesions and also confirm the 6cm growth on my uterus is not suspicious because .. I quote .. you look fit and well
Sparkles2000
in
Endometriosis UK
1 month ago
Prostap help!
I wondered if anyone else experienced this and if so how they managed it. Since the birth of my second child 9 months ago I have continuously bled and have had constant period pain! I’ve had normal ultrasound scans, laparoscopy, hysteroscopy. My gynaecologist cannot find what’s going on. The only
I wondered if anyone else experienced this and if so how they managed it. Since the birth of my second child 9 months ago I have continuously bled and have had constant period pain! I’ve had normal ultrasound scans, laparoscopy, hysteroscopy. My gynaecologist cannot find what’s going on. The only
DanniLou
in
Endometriosis UK
2 months ago
Period after Prostap
I had prostap for 7 months for endometriosis and stopped as I developed high blood pressure. My last injection was due 3rd Jan which I declined and my periods still haven’t returned (6 months since last injection was due). How long have people waited for their periods to return? I have gained a stone
I had prostap for 7 months for endometriosis and stopped as I developed high blood pressure. My last injection was due 3rd Jan which I declined and my periods still haven’t returned (6 months since last injection was due). How long have people waited for their periods to return? I have gained a stone
CrochetCrayola
in
Endometriosis UK
2 months ago
Endometriosis help! Upper body endo and prostap injections
Hi all, just after some advice or if anyone has been though something similar, I would love to hear your story. I'm nearly 40, and first got diagnosed with endometriosis in my early 20s. A few surgeries, 1 ectopic pregnancy and 2 children later have had very few symptoms (yeyy). After I had a coil fitted
Hi all, just after some advice or if anyone has been though something similar, I would love to hear your story. I'm nearly 40, and first got diagnosed with endometriosis in my early 20s. A few surgeries, 1 ectopic pregnancy and 2 children later have had very few symptoms (yeyy). After I had a coil fitted
Hfbo
in
Endometriosis UK
2 months ago
Dienogest
Hi everyone. Just looking for abit of advice. I’ve been on prostap injections for almost 4 years now. I have stage 4, had over 9 surgeries for endometriosis over the last 9 years and the only thing that has ever controlled my endo symptoms and given me a lease of life has been the prostap injections
Hi everyone. Just looking for abit of advice. I’ve been on prostap injections for almost 4 years now. I have stage 4, had over 9 surgeries for endometriosis over the last 9 years and the only thing that has ever controlled my endo symptoms and given me a lease of life has been the prostap injections
Ljmajor86
in
Endometriosis UK
2 months ago
Decapeptyl SR and the side effects with other medications, which has caused such bad rib cage structure effects?
I have pectus carinatum/pigeon chest from when aged 10 left over from meningitis, I also have Juvenile Myoclonic Epilepsy, not a good mixture, as such have probably broken every rib in my already weakened chest? I was diagnosed with Prostate Cancer in 2022, but the Decapeptyl SR injections considerably
I have pectus carinatum/pigeon chest from when aged 10 left over from meningitis, I also have Juvenile Myoclonic Epilepsy, not a good mixture, as such have probably broken every rib in my already weakened chest? I was diagnosed with Prostate Cancer in 2022, but the Decapeptyl SR injections considerably
Adlon57
in
Bone Health and Osteoporosis UK
2 months ago
Finally got a diagnosis of Endometriosis today
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
Mindfullness4791
in
Endometriosis UK
2 months ago
Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
2 months ago
Mirena coil
I was diagnosed with endometriosis back in September 2023 after suffering chronic pelvic pain for 3 years , along with severe bloating and abdominal pains. I was given 6 month trail on the prostap injections which helped massively, now I’ve been advised to go on the coil or I will be discharged. All
I was diagnosed with endometriosis back in September 2023 after suffering chronic pelvic pain for 3 years , along with severe bloating and abdominal pains. I was given 6 month trail on the prostap injections which helped massively, now I’ve been advised to go on the coil or I will be discharged. All
Mami2merch
in
Endometriosis UK
2 months ago
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