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Two updates in the Guidelines for PBC
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
hepatic Encephalopathy
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
Kingbilly3
in
British Liver Trust
1 month ago
Anyone been recruited into Pearl study?
Has anyone on here been recruited on to the Pearl study and if so how did they get signed up? Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related
Has anyone on here been recruited on to the Pearl study and if so how did they get signed up? Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related
Tiger800xrt
in
British Liver Trust
1 month ago
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for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
INVOLVEMENT OPPORTUNITY - for adults with a cirrhosis diagnosis (UK)
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
BritishLiverTrust1
Partner
in
British Liver Trust
2 months ago
Extreme pain in legs
Sorry for yet another post,My husband has decompensated liver cirrhosis and his legs are extremely swollen and he is at the point of not being able to walk now he's in so much pain he also has pain in his lower back, should he go to hospital? If so does anyone know what they will do?
Sorry for yet another post,My husband has decompensated liver cirrhosis and his legs are extremely swollen and he is at the point of not being able to walk now he's in so much pain he also has pain in his lower back, should he go to hospital? If so does anyone know what they will do?
Hithereeveryone
in
British Liver Trust
2 months ago
Psychological and fitness assessment form
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Bootsforlife
in
British Liver Trust
2 months ago
THC , CBD
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
Troongolfer
in
Cure Parkinson's
2 months ago
Liver transplant
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Ttck1825
in
British Liver Trust
2 months ago
got tested
hello, today I got following tests, ast, alt, bilirubin, ggt, leuktocytes, hemoglobin and all were normal now . then I assume that my so-called symptoms are not due to decompensated liver cirrhosis.. or how were your blood tests at diagnosis/symptoms (fatigue, spider nevi)(?) ☀️☀️
hello, today I got following tests, ast, alt, bilirubin, ggt, leuktocytes, hemoglobin and all were normal now . then I assume that my so-called symptoms are not due to decompensated liver cirrhosis.. or how were your blood tests at diagnosis/symptoms (fatigue, spider nevi)(?) ☀️☀️
Spider2
in
British Liver Trust
2 months ago
fibro-scan results
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
Maggie153
in
British Liver Trust
2 months ago
every test under the sun but no apparent cause for elevated liver numbers
Hi. I’m posting for a friend in case anyone here has experienced something similar. She’s in her early 30s and healthy. her liver panel shows elevated numbers but she has no fatty liver, negative for any hep c/b, has done all liver related autoimmune tests and all are negative. Has been to a few centers
Hi. I’m posting for a friend in case anyone here has experienced something similar. She’s in her early 30s and healthy. her liver panel shows elevated numbers but she has no fatty liver, negative for any hep c/b, has done all liver related autoimmune tests and all are negative. Has been to a few centers
Lulla
in
British Liver Trust
2 months ago
Wednesday's Word
[u][i]
albumin
[/i][/u]
-
This is a protein made by the liver, the level of which is measured as a part of your liver function tests. The albumin plays 2 important parts: 1. It carries molecules in the blood that are not water soluable. When bound to albumin, the molecule becomes water
[u][i]
albumin
[/i][/u]
-
This is a protein made by the liver, the level of which is measured as a part of your liver function tests. The albumin plays 2 important parts: 1. It carries molecules in the blood that are not water soluable. When bound to albumin, the molecule becomes water
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
spider nevi?
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Spider2
in
British Liver Trust
2 months ago
Can I take him on holiday?
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
Ladypinkdoor
in
British Liver Trust
2 months ago
pale stool after yellow diarrhea
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
Mtseagirl
in
British Liver Trust
2 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
2 months ago
Liver transplant vs kidney transplant
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
taar
in
Kidney Transplant
2 months ago
Reiki
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
Maggie153
in
British Liver Trust
2 months ago
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