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Counsellor with transplant patient experience
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
ScruffyRosie
in
British Liver Trust
5 months ago
transplant
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Meanies
in
National Foundation for Transplants
5 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
5 months ago
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Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
5 months ago
G P telephone consultation
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
0range5520
in
British Liver Trust
5 months ago
letter received from gastro
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Sophia1968
in
British Liver Trust
5 months ago
LIVER TEST panel results GGT ALT ALP BILIRUBIN
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Pulsar25
in
British Liver Trust
5 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
5 months ago
Elevated Liver Enzymes and Terry's Nails
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Mhalpha
in
British Liver Trust
5 months ago
GP wanting to report high liver blood test results to DVLA
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
OfftowalktheCamino
in
British Liver Trust
5 months ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
5 months ago
Traclamus levels are high
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
Shaunwood
in
British Liver Trust
5 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
5 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
She-66
in
PBC Foundation
5 months ago
There is hope
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
Oldbits
in
British Liver Trust
5 months ago
My brother got into a car acciddent and nurses put him back to sleep eveytime he gets agitated (please help)
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
casleyva
in
ICUsteps
5 months ago
Cirrhosis Reversal Question
I had HCV and was successfully treated and have been HCV free for around 8 years. At that time I was diagnosed with Cirrhosis , platelets around 64 000 , enlarged spleen , fibroscan at 22.1. I have been checked routinely by very good hospitals. My last 3 fibroscans have improved each time .first
I had HCV and was successfully treated and have been HCV free for around 8 years. At that time I was diagnosed with Cirrhosis , platelets around 64 000 , enlarged spleen , fibroscan at 22.1. I have been checked routinely by very good hospitals. My last 3 fibroscans have improved each time .first
searelax
in
British Liver Trust
5 months ago
blood test
could anyone help my daughter has liver cirrhosis due to alcohol when she went for her last scan she had her bloods done he said they were slightly better he said when she was due again for her scan he wouldn’t do her bloods as he said if they were better she might drink more surly they should be done
could anyone help my daughter has liver cirrhosis due to alcohol when she went for her last scan she had her bloods done he said they were slightly better he said when she was due again for her scan he wouldn’t do her bloods as he said if they were better she might drink more surly they should be done
Lisad52
in
British Liver Trust
5 months ago
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