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Low Dose Naltrexone (LDN)
Hi, this is my first starter post although I have replied to a few questions from others. After being run over by a car 40 years ago and suffering multiple skeletal fractures I have undergone 14 operations so far. Around 2019 I was further diagnosed with Fybromyagia. Multiple medicines later and serious
Hi, this is my first starter post although I have replied to a few questions from others. After being run over by a car 40 years ago and suffering multiple skeletal fractures I have undergone 14 operations so far. Around 2019 I was further diagnosed with Fybromyagia. Multiple medicines later and serious
Onceabiker
in
Fibromyalgia Action UK
4 months ago
I just found out the cause of my autoimmune chronic pancreatitis and it’s not good. I have Sjögren’s syndrome.
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
it’s effecting my other organs too. I have osteoporosis, not from prednisone but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s
Joanhappy21
in
Chronic Pancreatitis Support
4 months ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
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anyone used myovvii device ?
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
Virginia10
in
Endometriosis UK
5 months ago
Pain diminishing
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
Hi All Wanted to post an update and share what I'm doing with my diet: I was diagnosed on 20th October 2023, put on 15mg Pred, 1 month later reduced to 12.5mg then Saturday 16th Dec reduced to 10mg, at first all the pain and stiffness reappeared and I was gutted but it was "only" 6/10 and after taking
MalloryMoss
in
PMRGCAuk
5 months ago
Tamoxifen v Acid Reflux
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Calamintha
in
My Breast Cancer Community
5 months ago
Ant-inflammatory
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
I have chronic pancreatitis treated with Creon but I just discovered why and that I had additional issues. I has an MRI/MRCP, which disclosed I have 4 cysts on my pancreas and I have autoimmune cirrhosis. The cysts are just under a cc so nothing can be done but wait and watch. I wanted him to treat cirrhosis
Joanhappy21
in
Chronic Pancreatitis Support
5 months ago
how soon after stopping prog/estro did you get period?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Found out today that our first fet failed. I already took my progesterone shot and morning estrace today but will not take it tomorrow. Wondering, if you've had a fet that didn't work, when did you get your period after stopping progesterone and estrogen?
Rjfguitfg
in
Fertility Network UK
3 months ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
21 days ago
helvella - Thyroid Blog
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
helvella
Thyroid UK
in
Thyroid UK
25 days ago
What AI Says About Supplements and Off-Label Drug Use Regarding Prostate Cancer
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
jazj
in
Advanced Prostate Cancer
3 months ago
Turmeric
I have been amazed at the effect taking turmeric has had on the amount of pain I experience in my hands and how quickly this has happened. (Yes, I know about the placebo effect!) I would recommend anyone to try it (providing they check with their haems/doctors first). I take 2 capsules of turmeric extract
I have been amazed at the effect taking turmeric has had on the amount of pain I experience in my hands and how quickly this has happened. (Yes, I know about the placebo effect!) I would recommend anyone to try it (providing they check with their haems/doctors first). I take 2 capsules of turmeric extract
Mwalimu
in
MPN Voice
7 months ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
4 months ago
Too many vitamins ?
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
Raminagrobis
in
Advanced Prostate Cancer
8 months ago
Magic Magnesium Malate
Has anyone else tried this New Nordic magic magnesium Malate. I'm taking one tablet a day instead of recommended two. Each tablet has 120mg of magnesium, some b vitamins, which I'm used to but 2 extracts new to me. One has maritime pine bark extract 150mg per 2 tabs and some long pepper extract. I
Has anyone else tried this New Nordic magic magnesium Malate. I'm taking one tablet a day instead of recommended two. Each tablet has 120mg of magnesium, some b vitamins, which I'm used to but 2 extracts new to me. One has maritime pine bark extract 150mg per 2 tabs and some long pepper extract. I
Camelia23
in
AF Association
4 months ago
No longer in NED.
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
Casual
in
SHARE Metastatic Breast Cancer
8 months ago
DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
38yroldmale
in
Cure Parkinson's
5 months ago
Ginkgo Biloaba
Has anyone tried Ginkgo Biloba for brain fog and also circulation?
Has anyone tried Ginkgo Biloba for brain fog and also circulation?
0105luppyabby
in
LUPUS UK
1 year ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
5 months ago
Medications, supplements and other therapies used in Parkinsons
(CDNF) Cordyceps Mushroom Creatine Curcumin/Tumeric L-Alpha Cysteine Diet DA01 Dopamine agonists (pramipexole, ropinirole, rotigotine patch) Dark Choolate Doxycycline Epigallocatechin-3-Gallate (from Green Tea) Entracapon or istradefylline Exercise Estrogen Fish oil Flavanoids GABA
Ginkgo
(CDNF) Cordyceps Mushroom Creatine Curcumin/Tumeric L-Alpha Cysteine Diet DA01 Dopamine agonists (pramipexole, ropinirole, rotigotine patch) Dark Choolate Doxycycline Epigallocatechin-3-Gallate (from Green Tea) Entracapon or istradefylline Exercise Estrogen Fish oil Flavanoids GABA
Ginkgo
healthyheart7
in
Cure Parkinson's
1 year ago
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