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biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
6 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
6 months ago
A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
6 months ago
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Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
6 months ago
Constant uti's
Hello everyone Hope you are all as well as you can be . I think I just need a space to talk where people understand and offer valuable advice. I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then
Hello everyone Hope you are all as well as you can be . I think I just need a space to talk where people understand and offer valuable advice. I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then
Lucylou72
in
LUPUS UK
8 months ago
how often should you have a Dexa scan ?
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
Seekingasolution
in
PMRGCAuk
6 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
6 months ago
Zoladex & Tibolone
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Loulabelle1709
in
Women's Health
6 months ago
Benefits of split dosing T4
I hearken back to my post a few months ago https://healthunlocked.com/thyroiduk/posts/149418197/high-morning-cortisol-and-t3 where I was struggling (and still am) to find a solution to the severe waking anxiety I have had to tolerate for years now. As I feel my adrenals are still playing a big part
I hearken back to my post a few months ago https://healthunlocked.com/thyroiduk/posts/149418197/high-morning-cortisol-and-t3 where I was struggling (and still am) to find a solution to the severe waking anxiety I have had to tolerate for years now. As I feel my adrenals are still playing a big part
Jefner
in
Thyroid UK
6 months ago
Results
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
RedOne1
in
Thyroid UK
6 months ago
Progesterone post medicated FET
I'd like to ask all the ladies who conceived after a HRT/medicated FET, how much progesterone pessaries were you on? I'm on 4 x 200mg vaginal capsules so 800mg/day. Wonder if anyone is/was on a lower dosage. Just thinking about reducing to 3 x /day (600mg) having seen the patients' leaflet for Utrogestan
I'd like to ask all the ladies who conceived after a HRT/medicated FET, how much progesterone pessaries were you on? I'm on 4 x 200mg vaginal capsules so 800mg/day. Wonder if anyone is/was on a lower dosage. Just thinking about reducing to 3 x /day (600mg) having seen the patients' leaflet for Utrogestan
happypupp
in
Fertility Network UK - Pregnancy Support
6 months ago
T3 test times advice
Hi FT4: 12.22 pmol/l (Range 8 - 19.1) 38.02% FT3: 5.3 pmol/l (Range 2.4 - 6) 80.56% TSH <0.01 I take 100 t4 and 15 t3. I had the above done just before I started hrt. They are going to test again as I have felt a few of my symptoms returning. Slow bowel, sore feet etc. Nothing major but enough to
Hi FT4: 12.22 pmol/l (Range 8 - 19.1) 38.02% FT3: 5.3 pmol/l (Range 2.4 - 6) 80.56% TSH <0.01 I take 100 t4 and 15 t3. I had the above done just before I started hrt. They are going to test again as I have felt a few of my symptoms returning. Slow bowel, sore feet etc. Nothing major but enough to
BiscuitBaby
in
Thyroid UK
6 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
What next?
I posted in January regarding my results from internal and external scan in Dec. I was informed at the scan I have 3 fibroids and a chocolate cyst on my right ovary at 3.9 cm. I'm 51 and had been on hrt for just over a year but had stopped in November 23 as had heavy bleeding and multiple uti's. I
I posted in January regarding my results from internal and external scan in Dec. I was informed at the scan I have 3 fibroids and a chocolate cyst on my right ovary at 3.9 cm. I'm 51 and had been on hrt for just over a year but had stopped in November 23 as had heavy bleeding and multiple uti's. I
Cherrycat32
in
Endometriosis UK
6 months ago
Is this thyroid?
hi there, I have been struggling with what I thought was Peri menopause/menopause symptoms for a while (dizzy spells, headaches, brain fog, dry eyes, fatigue etc) Last year these symptoms got progressively worse with pain under left arm in lymph node and weakness to the point I felt like collapsing
hi there, I have been struggling with what I thought was Peri menopause/menopause symptoms for a while (dizzy spells, headaches, brain fog, dry eyes, fatigue etc) Last year these symptoms got progressively worse with pain under left arm in lymph node and weakness to the point I felt like collapsing
Dublinlady
in
Thyroid UK
6 months ago
worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
6 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
6 months ago
Hip Pain
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Football3018
in
Endometriosis UK
6 months ago
Thyroid dosage for elderly Mom
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
duffythedoodle
in
Thyroid UK
6 months ago
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