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Feel like giving up.
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
3LittleBirds2
in
NRAS
1 month ago
Covid booster and steroids
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
Spin1959
in
NRAS
22 days ago
Bursitis of toes & Steroid Injection
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
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Bursitis of the toes & Steroid Injection.
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
LUPUS UK
1 month ago
covid booster (Maderna)
morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not using it this time around and it’s been replaced with Maderna it just makes me feel uneasy as I never had any problems with Pfizer!!have any you
morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not using it this time around and it’s been replaced with Maderna it just makes me feel uneasy as I never had any problems with Pfizer!!have any you
Mybirthday1975
in
NRAS
1 hour ago
Hello again
Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such great comments and ideas,already from Lady4 and others, so thank you. Below was, my original post Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are
Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such great comments and ideas,already from Lady4 and others, so thank you. Below was, my original post Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are
Trish_PBG
in
Functional Neurological Disorder - FND Hope
18 minutes ago
Hello
Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are so varied. Mine are mild but have been getting progressively worse
Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are so varied. Mine are mild but have been getting progressively worse
Trish_PBG
in
FND Action
12 minutes ago
Omicron variant
Hi all I have bronchiectasis (since 2012) and have been super careful during the pandemic. However, I missed my last vaccine (having had 4 over the years as well as both flu and shingles jabs) as the nearest place the NHS website could offer me for the 5th Covid jab was 22 miles away! With no public
Hi all I have bronchiectasis (since 2012) and have been super careful during the pandemic. However, I missed my last vaccine (having had 4 over the years as well as both flu and shingles jabs) as the nearest place the NHS website could offer me for the 5th Covid jab was 22 miles away! With no public
swimmer
in
Lung Conditions Community Forum
23 hours ago
Scared and lost
Hello, I am not too sure where to start, so much has happened. I am a 50 year-old female. A couple of years ago, I had a pain in my abdomen on the right side and my stools became orange. The GP sent me for an ultrasound where they saw I had polyps on my gallbladder. The GP phoned me on the 31st Dec to
Hello, I am not too sure where to start, so much has happened. I am a 50 year-old female. A couple of years ago, I had a pain in my abdomen on the right side and my stools became orange. The GP sent me for an ultrasound where they saw I had polyps on my gallbladder. The GP phoned me on the 31st Dec to
Foi24
in
British Liver Trust
2 days ago
Covid and extending NHS funded time
I am due to start long protocol in exactly a week, with a prostrap injection. My husband has tested positive for Covid today and although I am testing negative I think I’m bound to get it. Our clinic will delay by 7-10 weeks depending if we both test positive for Covid. I’m devastated as we are only
I am due to start long protocol in exactly a week, with a prostrap injection. My husband has tested positive for Covid today and although I am testing negative I think I’m bound to get it. Our clinic will delay by 7-10 weeks depending if we both test positive for Covid. I’m devastated as we are only
Rachiebabe
in
Fertility Network UK
3 days ago
Covid Booster Eligibility
I am 65 with compensated cirrhosis. I have portal hypertension and grade 1/2 oesophagal varices with bloods mostly in range. I do have anaemia and low platelets but thankfully no ascites or HE (fingers crossed). Following a post on here a few days ago about cirrhosis and eligibility for a spring Covid
I am 65 with compensated cirrhosis. I have portal hypertension and grade 1/2 oesophagal varices with bloods mostly in range. I do have anaemia and low platelets but thankfully no ascites or HE (fingers crossed). Following a post on here a few days ago about cirrhosis and eligibility for a spring Covid
AnxiousPete
in
British Liver Trust
3 days ago
shall CLL patient do Covid vaccination?
shall CLL patients do covid 19 vaccine?
shall CLL patients do covid 19 vaccine?
al444
in
CLL Support
3 days ago
Covid booster UK
Does anyone know if we can get spring boosters for Covid? I got the autumn one because of epilepsy, but it looks as though neurological conditions aren’t on the spring list.
Does anyone know if we can get spring boosters for Covid? I got the autumn one because of epilepsy, but it looks as though neurological conditions aren’t on the spring list.
GillyA
in
Epilepsy Action
4 days ago
No Cominarty Vaccine!!
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
Kendrew
in
PMRGCAuk
5 days ago
reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
5 days ago
Do I need an ablation?
i’ve been on the waiting list for an ablation and the appointment has finally come up however I am really having second thoughts about having this procedure as I’ve finally been feeling very well lately after three years of highly symptomatic long Covid. Also I’ve only had one episode of AF in the last
i’ve been on the waiting list for an ablation and the appointment has finally come up however I am really having second thoughts about having this procedure as I’ve finally been feeling very well lately after three years of highly symptomatic long Covid. Also I’ve only had one episode of AF in the last
Midnight2022
in
Atrial Fibrillation Support
5 days ago
Headaches / update, also Spring Covid Vaccine update.
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
I was grateful for everyone’s’ replies to my recent post and I telephoned my Haematologist who advised a blood test and to see a doctor as soon as possible If I couldn’t see my GP the Haematologist said they’d fit me in at the hospital clinic. However, I had a full blood test that day at my G.P’s and
azaelea
in
MPN Voice
6 days ago
Covid booster
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
I had my Covid booster jab yesterday,my ibs was settling down ,but has got worse since I had it.Has anybody else experienced this ?
mousey1
in
IBS Network
6 days ago
First time COVID
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
I got really poorly on the 7th September last year, I phoned the doctors and they wouldn't see me at all, don't really blame them, they are under so much strain.I phoned 111 and when I told them me my illnesses, they wanted to send an ambulance, three different people I talked to all wanted to send an
Itsmeok
in
Lung Conditions Community Forum
7 days ago
Reactions to COVID boosters
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
Hi, I've been getting the COVID boosters in the UK on a regular basis, but my reaction each time has gotten worse. With the one six months ago and the one last week, I was wiped out for 24 hours afterward, which hadn't happened with the previous boosters. The pharmacist last week was surprised at my
SAT_poet
in
CLL Support
7 days ago
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