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Gallium 68 PSMA-11
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QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests š, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests š, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
3 months ago
Urinary incontinence in mCRPC
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
lgutman
in
Advanced Prostate Cancer
3 months ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
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Anyone on Nubeqa mono therapy with prostate in place?
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
Steel67
in
Advanced Prostate Cancer
3 months ago
Constipation is a known issue with the Orgovyx
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
NewPotatoCaboose
in
Advanced Prostate Cancer
3 months ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
3 months ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
3 months ago
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
3 months ago
Cancer return alert without scan or PSA ?
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
positive-thinking
in
Advanced Prostate Cancer
3 months ago
Protein discovery could help solve prostate cancer drug resistance Date:January 22, 2024 Source:Washington State University
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
MsHope
in
Advanced Prostate Cancer
3 months ago
Any enzalutamide for chemo?
Tall Allen recently posted about a trial in which taking enzalutamide during docetaxel chemotherapy might help get the PSA down. Abiraterone failed for me recently and Iām re-challenging with docetaxel. Iām based in the UK, and NHS protocol doesnāt allow this. Should I go off -piste and take enzalutimde
Tall Allen recently posted about a trial in which taking enzalutamide during docetaxel chemotherapy might help get the PSA down. Abiraterone failed for me recently and Iām re-challenging with docetaxel. Iām based in the UK, and NHS protocol doesnāt allow this. Should I go off -piste and take enzalutimde
Tonyliv
in
Advanced Prostate Cancer
3 months ago
Radiation at low PSA levels
I saw an article or a feed somewhere for starting radiation for recurrence after RP that salvage radiation at around 0.05 level provides a higher potential for cure vs. waiting until it rises to 0.20+. Has anyone seen this article or statistic? Tx
I saw an article or a feed somewhere for starting radiation for recurrence after RP that salvage radiation at around 0.05 level provides a higher potential for cure vs. waiting until it rises to 0.20+. Has anyone seen this article or statistic? Tx
Peppertree602
in
Advanced Prostate Cancer
3 months ago
What a start with V+O
Well I finally started my treatment and the first week was quite a roller coaster. Day 1 ,I was only 10 minutes into the treatment and I had a severe reaction. Blood pressure dropped to 70/30 , hot flashes, chills, nausea but 5 nurses did their thing and reversed it pretty quickly. Completed the dose
Well I finally started my treatment and the first week was quite a roller coaster. Day 1 ,I was only 10 minutes into the treatment and I had a severe reaction. Blood pressure dropped to 70/30 , hot flashes, chills, nausea but 5 nurses did their thing and reversed it pretty quickly. Completed the dose
Rico49
in
CLL Support
1 year ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
3 months ago
ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. Iāve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. Iāve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
3 months ago
Expanded label sought for 177Lu-PSMA-617 in prostate cancer: about time
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
Maxone73
in
Advanced Prostate Cancer
3 months ago
Anti thyroglobulin Antibody High
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
TOTTY1
in
Thyroid UK
3 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
3 months ago
Update May 15, 2024
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
MsHope
in
Advanced Prostate Cancer
3 months ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
3 months ago
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