Please could I ask what your thoughts are on Stem Cell Therapy?

[Jade77]

My wife was diagnosed with PD in 2015. She was fine until summer 2021 when she had a fall in the garden and ended up in hospital for 3 weeks. She was then put on Sinemet Plus 25/100 mg. Since then her deterioration has been quite fast. Rigidity, stiffness, slow movement and exhaustion getting worse each month and can hardly walk around the house unless with aid.

Anyway, recently been looking at SCT with 3 different places - Swiss Medica in Serbia - DVC in Cayman Island - Anova in Germany. They all sound promising but expensive.

My question is this - do you know of anyone with PD that has had stem cell therapy and if so with what results?

And do you think this might be the way to go for PD treatment in the future.

None of these therapies offer a cure but an improvement in PD symptoms and possibly a reduction in PD meds.

Look forward to your comments.

[djresd]

2 weeks ago my wife got Stem Cell treatment. We researched worldwide and found a provider in Southern California who met our criteria. We are advised by the doctor not to expect significant results for 2 to 3 months, possibly four. We will be happy to share our experience as time progresses. The doctor has had previous successes with Parkinson’s patients as well as other neurological diseases. He was very honest, explaining that the stem cell treatment is not a cure, but is a treatment that hopefully will delay the progression of the disease and significantly reduce some of the symptoms. Additionally, he feels that retreatment will be necessary within 18 months to two years. The doctor was not happy with the quality of stem cells available to be obtained in the existing market, so he established his own laboratory to produce stem cells from donated placenta and umbilical cords. The cells are manipulated so that anti-rejection drugs are not necessary. The doctor is very familiar with anti-rejection issues as he is a transplant, surgeon. This is a very expensive treatment due to the specialty of the process of creating the proper cells. However, I am determined to use whatever resources I can obtain to get the best treatment for my wife. There are many Charletons in the stem cell business and many well meeting people, who don’t have the proper expertise and scientific acumen to properly prepare the cells. The cells must be carefully screened and tested to eliminate regressive genes and other sources of illness. I am fed up with the regulatory process and the marriage of the FDA to big Pharma. Our PD loved ones are taking drugs that their grandparents took for the same disease. I am convinced that stem cells will eventually prove to be one of the most impactful medical advances since the invention of antibiotics. So this is a path we have chosen. I would be willing to share the information regarding our provider outside of this venue as I fear retaliation against him. [e-mail] God bless all who have this nasty degrading disease and those who care for their loved ones.

[Farooqji in reply to djresd]

Thanks for sharing your experience. You are right, currently stem cell therapy is the only hope on horizon. BTW what was the method used in transplantation of cells in your case. Was it intravenous or through spinal cord injection or nasal pathway or Direct injection into the brain

[curiousPD1966 in reply to djresd]

I look forward to your sharing of the results which I pray, for all, are excellent. I have several friends walking this path, which is so difficult. I have attended several support group meetings and walk away in awe at the compassion and bravery I witness each time. People like you who are being PRO ACTIVE are leading the way to better treatments and a cure. THANK YOU!!!!

[limcheeese22]

mind asking what is the cost?

[RonB1]

Hope Biosciences in Texas has a Stem Cell Therapy clinical trial.

[bigl62]

Has she been checked for H-pylori?C/L was more effective after I was treated for H-pylori.

[HugoRipanykhazov]

I wish there was someone to whom I could talk who is doing a trial. I have got some of My own placental stem cells lying around somewhere. I also read the Lund results and saw the videos. My PD doc says it only slows progression

[acoker115]

There is a company called Lifewave and they have a non transdermal patch that uses photobiomodulation to activate a copper peptide called GHK-CU which activates your dormant stem cells. They go to whatever part of the body that needs it. But there are several Parkinson testimonies as well as for other health issues. The main patches are called X39. The creator David Schmidt is a genius. But I would highly recommend doing your own research. And the price is doable for everyday people.

[cgreg]

Like many PWPs, I am hoping for a breakthrough in stem cell therapy but I just want to share a warning given by one of my doctors. He warned me about the lack of scientific evidence at this point in time regarding the safety and efficacy of stem cell therapy. In addition, he described how the government-run charity hospital in my country has become the dumping ground of patients who have become both bankrupt and in worse medical condition after undergoing stem cell therapy. Prof. Bas Bloem gave a similar warning in one of his webinars.