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Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
4 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
4 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
4 months ago
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Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
4 months ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
NASH - 1a zone 3 perisinusoid/pericellular fibrosis diagnosis
Just found out my results today from liver biopsy I had done in May. I think its what my Hepatologist was expecting so I am not too worried. The only thing I can do is lose weight..... I have been trying for years and been back and forth to GP about this issue, luckily my Hepatologist has referred
Just found out my results today from liver biopsy I had done in May. I think its what my Hepatologist was expecting so I am not too worried. The only thing I can do is lose weight..... I have been trying for years and been back and forth to GP about this issue, luckily my Hepatologist has referred
Redgreenblue
in
British Liver Trust
1 year ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Wednesday's Word
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
DonnaBoll
Administrator
in
PBC Foundation
8 days ago
Pork, Autoimmune Disease, and Parkinson's?
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
Bolt_Upright
in
Cure Parkinson's
4 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
4 months ago
Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Unstable Thyroid Function
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
doonicle
in
Thyroid UK
4 months ago
Raynaud's in nipples?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
Brychni
in
NRAS
4 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Windyway
in
Pernicious Anaemia Society
4 months ago
Information required
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
welsh12
in
Thyroid UK
4 months ago
Views on study design for lupus nephritis research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Methotrexate and antibiotics
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only started today) but she took her methotrexate last night (she has rheumatoid arthritis so will also post on that site), and she's been prescribed
Grizzly-bear
in
Vasculitis UK
4 months ago
Hashimoto's and pain in muscles and joints
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hi I am new to the group.I am reaching out as I have a couple of questions.I have Hashimotos disease and on an alternating dose of 125mg to 150mg each other day of levothyroxin. I have experienced muscle aches and pains over the last 7 or so years not really sure why but I believe it's my Hashimoto's.My
Hashiskip18
in
Thyroid UK
4 months ago
Malar Rash
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Tonkie
in
LUPUS UK
4 months ago
Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
4 months ago
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