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(Part 5) Funding for Forsteo suddenly stopped!
So even although she has had at least 11 further
fractures
since her funding was first agreed, she is having 18 months treatment and not 24. Enquiries to her Rheumatology department have us being told that this is NHS England’s current policy. Has anyone else had this experience please?
So even although she has had at least 11 further
fractures
since her funding was first agreed, she is having 18 months treatment and not 24. Enquiries to her Rheumatology department have us being told that this is NHS England’s current policy. Has anyone else had this experience please?
Angelicspirit
in
Bone Health and Osteoporosis UK
1 year ago
steroid spray
l have osteoporosis,the doctor give me mometasone furoate spray for my nose inflammation 1 spray each nostril twice a day, could the steroid in the spray effect my osteoporosis.( T scores are hip -t3 spine t-2)
l have osteoporosis,the doctor give me mometasone furoate spray for my nose inflammation 1 spray each nostril twice a day, could the steroid in the spray effect my osteoporosis.( T scores are hip -t3 spine t-2)
KE-n
in
Bone Health and Osteoporosis UK
1 year ago
PSA , rise ?
Hello , Ive been on Eligard , Abi. , pred. since 02/22 . 1--250mg + 5mg pred w/ light meal . So my psa labs at V.A. were <.02 on 04/22 then on 08/22 were <.01 and recent 11/22 they are <.04 . So my question is , when to worry . Should I consider doing the 4 pills 1,000mg of Zytiga to see if this changes
Hello , Ive been on Eligard , Abi. , pred. since 02/22 . 1--250mg + 5mg pred w/ light meal . So my psa labs at V.A. were <.02 on 04/22 then on 08/22 were <.01 and recent 11/22 they are <.04 . So my question is , when to worry . Should I consider doing the 4 pills 1,000mg of Zytiga to see if this changes
reconjj
in
Advanced Prostate Cancer
1 year ago
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MBST / MRT (Magnetic resonance therapy)
He underwent MBST for his damaged right foot (crush injury
fractures
) and he can now weight wear on that foot plus the pain is not nearly as bad. In 2023 we are planning more therapy with the MBST/MRT.
He underwent MBST for his damaged right foot (crush injury
fractures
) and he can now weight wear on that foot plus the pain is not nearly as bad. In 2023 we are planning more therapy with the MBST/MRT.
Chathamwoman
in
Arthritis Action
1 year ago
Provenge
First infusion of Provenge yesterday- so far so good. small bruise at the injection site, a little swelling in the same place , the nurse had to poke around a bit in there to nail down that slippery vein. maybe a little more fatigue than usual, but i can't identify any other side effects (yet). the three
First infusion of Provenge yesterday- so far so good. small bruise at the injection site, a little swelling in the same place , the nurse had to poke around a bit in there to nail down that slippery vein. maybe a little more fatigue than usual, but i can't identify any other side effects (yet). the three
Tonwantonga
in
Advanced Prostate Cancer
1 year ago
What now?
T-11 vertebral compression fracture ( osteoporotic/insufficiency fracture ) should I be concerned? Is this the result of 3-1/2 years of ADT + Zytiga??
T-11 vertebral compression fracture ( osteoporotic/insufficiency fracture ) should I be concerned? Is this the result of 3-1/2 years of ADT + Zytiga??
Hidden
in
Advanced Prostate Cancer
1 year ago
Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?
I’m considering HBOT (defined below) to help heal my broken pelvic & sacrum
fractures
due to radiation weakening the bones.
I’m considering HBOT (defined below) to help heal my broken pelvic & sacrum
fractures
due to radiation weakening the bones.
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
1 year ago
how to transition from xtandi to Apalutamide?
A change is suggested by Dr. However, Since Xtandi has a 1/2 life about 6 days, from the day you stop the amount of Xtandi starts decaying. So, Apalutamide has a half life of about 3 days, but has a fast absorption rate. This means , if you stop xtandi on day 1 and start Apalutamide on day 2, there is
A change is suggested by Dr. However, Since Xtandi has a 1/2 life about 6 days, from the day you stop the amount of Xtandi starts decaying. So, Apalutamide has a half life of about 3 days, but has a fast absorption rate. This means , if you stop xtandi on day 1 and start Apalutamide on day 2, there is
podsart
in
Advanced Prostate Cancer
1 year ago
Osteoporosis/alendronic acid
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
Clarbeston
in
PMRGCAuk
1 year ago
My 18 month follow up scans...........except for the jaw infection and subsequent redo of a failed root canal, which is painful, not bad.
CT no new mets Impression 1. Interval improvement in patient known widespread osseous metastatic disease as describe above. 2. New focal uptake in left mandible could be related to recent dental procedure versus periodontal disease, however as patient is reportedly on Zometa, biphosphonate induced
CT no new mets Impression 1. Interval improvement in patient known widespread osseous metastatic disease as describe above. 2. New focal uptake in left mandible could be related to recent dental procedure versus periodontal disease, however as patient is reportedly on Zometa, biphosphonate induced
katartizo61
in
Advanced Prostate Cancer
1 year ago
Running again after operation
I’ve read several posts about starting to run after an illness but I’m not sure if the advice is valid for post operative running. I have completed C25K a couple of times since Jan 2021 but have had long breaks between for various reasons. I got to week 7 in August of this year then had time away followed
I’ve read several posts about starting to run after an illness but I’m not sure if the advice is valid for post operative running. I have completed C25K a couple of times since Jan 2021 but have had long breaks between for various reasons. I got to week 7 in August of this year then had time away followed
thelastgizmo
Graduate
in
Couch to 5K
1 year ago
Muscle Mass Loss ADT, Firmagon Or Zytiga? Any Studies on MML on ADT
Are there any studies noted what treatments cause more muscle loss than others… Which is worse for muscle loss Firmagon or Zytiga?
Are there any studies noted what treatments cause more muscle loss than others… Which is worse for muscle loss Firmagon or Zytiga?
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
useful 'Evidence' that TSH between 0.04 - 0.4 has no increased risk to patients on Levothyroxine (UPDATED~new study does show small risk)
Main Outcome Measures:
Fatal and nonfatal endpoints were considered for cardiovascular disease, dysrhythmias, and
.
Main Outcome Measures:
Fatal and nonfatal endpoints were considered for cardiovascular disease, dysrhythmias, and
.
tattybogle
in
Thyroid UK
1 year ago
Help re Doctors appointment after Dexa scan
Hi all, I was prescribed AA some years ago but only took it for a while as I really didn’t like the idea of it. A while ago I requested a Dexa scan from my GP as it had been 4 years since I had one and I wanted to check it hadn’t got much worse. I’ve now had a letter asking me to go in next week to
Hi all, I was prescribed AA some years ago but only took it for a while as I really didn’t like the idea of it. A while ago I requested a Dexa scan from my GP as it had been 4 years since I had one and I wanted to check it hadn’t got much worse. I’ve now had a letter asking me to go in next week to
Essexgirlbythesea
in
Bone Health and Osteoporosis UK
1 year ago
fragile spine and multiple fractures
One of the GPs finally decided to order Xrays etc which show I have 5 vertebral
fractures
. A DEXA shows my hip score as OK, below osteopenic, but my spine is fragile. I have reluctantly begun Risedronate treatment. I am terrified of more
fractures
, kyphosis, disability, neverending pain.
One of the GPs finally decided to order Xrays etc which show I have 5 vertebral
fractures
. A DEXA shows my hip score as OK, below osteopenic, but my spine is fragile. I have reluctantly begun Risedronate treatment. I am terrified of more
fractures
, kyphosis, disability, neverending pain.
Valerie0106
in
Bone Health and Osteoporosis UK
2 years ago
Update on my Dexa Scan.
Very confused after reading the detailed report. L1. T score. -1.9. Z score 0.0 L2. T score -1.9. Z score 0.0 L3. T score 0.7. Z score 2.6 L4. T score. -0.5. Z score 1.4 LFemur Neck. T score -2.5. Z score -0.6 Total. T score -2.4. Z score -0.5 Fracture risk Major Osteoporotic 24.9%Hip Fracture. 10.4%
Very confused after reading the detailed report. L1. T score. -1.9. Z score 0.0 L2. T score -1.9. Z score 0.0 L3. T score 0.7. Z score 2.6 L4. T score. -0.5. Z score 1.4 LFemur Neck. T score -2.5. Z score -0.6 Total. T score -2.4. Z score -0.5 Fracture risk Major Osteoporotic 24.9%Hip Fracture. 10.4%
barbieg
in
Bone Health and Osteoporosis UK
2 years ago
Referred pain from back
I have had
fractures
a couple of years ago at L1, L3 and L5 (as well as T10, T11, T12. Two years ago, when I got out of bed I had severe pain and then 2 years getting over that so I am assuming that was the L1, as that is the last one to fracture in the lumbar area.
I have had
fractures
a couple of years ago at L1, L3 and L5 (as well as T10, T11, T12. Two years ago, when I got out of bed I had severe pain and then 2 years getting over that so I am assuming that was the L1, as that is the last one to fracture in the lumbar area.
cmoc
in
Bone Health and Osteoporosis UK
1 year ago
Xtandi vs. Zytiga
I was diagnosed last December. Some bone mets, no soft tissue issues. PSA 365. Firmagon for a month, then Lupron since. Also Zytiga w/Prednisone. PSA went down to 1. Two months ago my liver enzymes started to rise. Took a one month vacation from Zytiga. Liver enzymes came back to normal. Resumed
I was diagnosed last December. Some bone mets, no soft tissue issues. PSA 365. Firmagon for a month, then Lupron since. Also Zytiga w/Prednisone. PSA went down to 1. Two months ago my liver enzymes started to rise. Took a one month vacation from Zytiga. Liver enzymes came back to normal. Resumed
Rusty31
in
Advanced Prostate Cancer
2 years ago
xtandi and weakness / tired
any advice on Wht to do to help combat the weakness/ tiredness on Xtandi? Also is it as effective if you take less obviously while talking with the DR.
any advice on Wht to do to help combat the weakness/ tiredness on Xtandi? Also is it as effective if you take less obviously while talking with the DR.
Chris52981
in
Advanced Prostate Cancer
2 years ago
UPDATE ON BROKEN ANKLE
After waiting nearly 2 years for an appointment with the Pain Management Team at my local hospital, what a complete farce it was, During the 3 years of a broken ankle, I have seen many specialists all saying that I had the condition Complex Regional Pain Syndrome, but to get it verified I had to see
After waiting nearly 2 years for an appointment with the Pain Management Team at my local hospital, what a complete farce it was, During the 3 years of a broken ankle, I have seen many specialists all saying that I had the condition Complex Regional Pain Syndrome, but to get it verified I had to see
Imagine1
in
Pain Concern
2 years ago
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