Posting on behalf of my wife Margaret following another 11 very difficult months of her taking Forsteo
We will share anything that might be useful to any of you in a later post, however our main news is that we were shocked to find that without warning, her last pen containing Forsteo has been delivered. Most upsetting, is that the delivery of just one pen instead of the usual 3, was how she found out, rather than by any official notification.
So even although she has had at least 11 further fractures since her funding was first agreed, she is having 18 months treatment and not 24.
Enquiries to her Rheumatology department have us being told that this is NHS England’s current policy.
Has anyone else had this experience please?
Warm wishes to you all,
Steve & Margaret.