Search
Search
About
Log in
Join
Experiences with
Fludarabine
Posts
Communities
801 public posts
Filter results
Recovery time
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
shoppingtrolley
in
CLL Support
7 years ago
FCR treatment
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
Barbarann
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
"there has been a further reduction in the presence of the disease and limited evidence of any residual disease"
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
MattGGibson
in
CLL Support
7 years ago
FCR Domperidone
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Cindy1462
in
CLL Support
7 years ago
Starting FCR
bloods came back ok and he's diagnosed as stage 2 , he's starting FCR tomorrow and I'm so worried about possible side effects but also he went the hospital today and they said he can't start Rituximab as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting
fludarabine
bloods came back ok and he's diagnosed as stage 2 , he's starting FCR tomorrow and I'm so worried about possible side effects but also he went the hospital today and they said he can't start Rituximab as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting
fludarabine
Chelseaxx
in
CLL Support
7 years ago
Nearing treatment?
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
DebLeeCox
in
CLL Support
7 years ago
Hi everyone,
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
Whitehouse_77
in
CLL Support
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Reaction to FCR or Medicine.
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
Jemisavs5
in
CLL Support
7 years ago
Aciclovir
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
sallyplest
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
FCR DIET?
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
bendintheroad1
in
CLL Support
7 years ago
In the arms of an angel
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
NickiePaG
in
CLL Support
7 years ago
What next
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
shoppingtrolley
in
CLL Support
7 years ago
FlAIR trial screening advised for me follow up to previous posts.
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
annmcgowan
in
CLL Support
7 years ago
Starting FCR for CLL
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Fbarcia
in
CLL Support
7 years ago
CLL with p53,17 deletion
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Farrpottery
in
CLL Support
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
1
...
21
22
23
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
777 results
CLL America Support
7 results
Leukaemia Support
6 results
View top 10 communities
Sort by
Most Relevant
Newest