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CLL Blood Tests: Immunoglobulin, Complete Blood Counts, Platelets and More- Patient Power Video- June 29, 2012
That’s the
fludarabine
. That’s the cytosine, or arabinoside. That’s all of those kinds of drugs. That means that these drugs are stupid. They don’t know sick cells from healthy cells. They tend to kill off cells that are short-lived, that are rapidly or metabolically active.
That’s the
fludarabine
. That’s the cytosine, or arabinoside. That’s all of those kinds of drugs. That means that these drugs are stupid. They don’t know sick cells from healthy cells. They tend to kill off cells that are short-lived, that are rapidly or metabolically active.
lankisterguy
Volunteer
in
CLL Support
6 years ago
U-MRD6 is the new MRD-
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
avzuclav
in
CLL Support
6 years ago
Fcr update
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
dandelup
in
CLL Support
6 years ago
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FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with
fludarabine
, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
This trial is comparing ibrutinib alongside rituximab with
fludarabine
, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
Myrddin
in
CLL Support
6 years ago
Neulasta side effects
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
gfreiman
in
CLL Support
6 years ago
Update: No FCR, we will start Ibrutinib
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
paula_dae
in
CLL Support
6 years ago
FCR, WHAT IS THE AGE LIMIT FOR FCR OR IS IT MORE ABOUT FITNESS
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
I am 71 years of age and was diagnosed with MGUS 22 years ago, this progressed to CLL in July this year. I have had a FISH test and have been recommended for the FLAIR trail. FCR is one Arm of the trial so am I right to assume that my age is not an issue? I am pretty fit and do not have any co-morbidity
BasTel
in
CLL Support
6 years ago
50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
jumper23
in
CLL Support
6 years ago
Systemic therapy - FCR: Day One
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Famburt
in
CLL Support
6 years ago
28 Days on Ibrutinib
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Mick491
in
CLL Support
6 years ago
Status update 17 months post-FCR
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
cwturley
in
CLL Support
6 years ago
Can a SLL patient become CLL?
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Lola69
in
CLL Support
6 years ago
MRD Results.
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
BEN61
in
CLL America Support
6 years ago
Fcr round 4 icthing
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Jsk1950
in
CLL Support
6 years ago
Test Results FCR- Remission!
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
GMa27
in
CLL Support
6 years ago
Fcr and flu jab
Should I have a flu jab while on fcr ?
Should I have a flu jab while on fcr ?
dandelup
in
CLL Support
6 years ago
Ibrutinib
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
Zappymom12
in
CLL Support
6 years ago
Newbie
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
gesch83ag
in
CLL Support
6 years ago
Post 4 cycles FCR side effects
FCR vasculitis & fungal pneumonia after 4 cycle
FCR vasculitis & fungal pneumonia after 4 cycle
Mathild
in
CLL Support
6 years ago
Fcr update
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
dandelup
in
CLL Support
6 years ago
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