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Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
Standard
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Standard
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Newchallnge
in
CLL Support
6 years ago
CLL chemo more than 10 days fever!
Hello! I have CLL and had my first FCR chemo except not Rituximab but Ofatumumab. Everything went well but since 10 days I have extreme high fever 39,9-40 degrees and itchy everywhere on my body and under my feet and hands. The meds for itchy help but i feel its not gone but the fever is still there
Hello! I have CLL and had my first FCR chemo except not Rituximab but Ofatumumab. Everything went well but since 10 days I have extreme high fever 39,9-40 degrees and itchy everywhere on my body and under my feet and hands. The meds for itchy help but i feel its not gone but the fever is still there
Eriksan2
in
CLL Support
5 years ago
Kimsome
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Hello all of my CLL friends!! Happy New Year as well!! So, I was diagnosed with CLL in 2010 when I was 45 year old woman. Went through aggressive chemo, FCR. In my case the sickness now supposedly in remission but continued to make me critically ill even when it was over. If fact, I was in and out
Kimsome
in
CLL Support
6 years ago
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Last cycle of FCR next week
I am on the Flair trial am now approaching my last lot of FCR. When signing up to Flair given the choice FCR would have been my last choice of treatment, but on reflection although it has been tough, I am glad it’s the arm I was given. My haematologist told me that it is still regarded as the gold standard
I am on the Flair trial am now approaching my last lot of FCR. When signing up to Flair given the choice FCR would have been my last choice of treatment, but on reflection although it has been tough, I am glad it’s the arm I was given. My haematologist told me that it is still regarded as the gold standard
dandelup
in
CLL Support
6 years ago
ASH 2018: ECOG trial shows superiority of Ibrutinib and rituximab over FCR
Hi friends, The early buzz at ASH 2018 was rightly about the ECOG trial that was presented on the last day as a late breaking abstract. In my interview at the opening of the conference, Dr. Stilgenbauer discusses the practice changing significance of this study that proved that ibrutinib and rituximab
Hi friends, The early buzz at ASH 2018 was rightly about the ECOG trial that was presented on the last day as a late breaking abstract. In my interview at the opening of the conference, Dr. Stilgenbauer discusses the practice changing significance of this study that proved that ibrutinib and rituximab
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
FCR or BR proposed for second round of treatment in London
Diagnosed end of 2013. FLAIR trail Nov 2015 – June 2016 stopped due to severe muscle pain. (See previous posts) Now need more treatment. Moved up partly because I also need a hip replacement and they can’t do it with my low immunity. So I am now being offered FCR or BR. A year or so ago I was told there
Diagnosed end of 2013. FLAIR trail Nov 2015 – June 2016 stopped due to severe muscle pain. (See previous posts) Now need more treatment. Moved up partly because I also need a hip replacement and they can’t do it with my low immunity. So I am now being offered FCR or BR. A year or so ago I was told there
romarin
in
CLL Support
6 years ago
Question about ibrutinib
Hi all, I posted here once, about 6 months ago. I am a 34 yeard old dutch male from Amsterdam, and i have CLL with unfavorable prognosis. I had FCR, and some other meds over the course of 11 years. Right now i am on Ibrutinib and am being threated by Prof. Dr. Kater at the Amsterdam hostpital 'AMC
Hi all, I posted here once, about 6 months ago. I am a 34 yeard old dutch male from Amsterdam, and i have CLL with unfavorable prognosis. I had FCR, and some other meds over the course of 11 years. Right now i am on Ibrutinib and am being threated by Prof. Dr. Kater at the Amsterdam hostpital 'AMC
JanAmsterdam
in
CLL Support
6 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Great to hear of real change beginning to happen in CLL, we really do have a reason to be hopeful. Leukaemia Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https
Great to hear of real change beginning to happen in CLL, we really do have a reason to be hopeful. Leukaemia Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Great to hear of real change beginning to happen in CLL, we really do have a reason to be hopeful. Leukaemia Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https
Great to hear of real change beginning to happen in CLL, we really do have a reason to be hopeful. Leukaemia Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https
HAIRBEAR_UK
Administrator
in
CLL Support
6 years ago
My Dana-Farber Trial Update
Started Acalabrutinib in August and had a couple of headaches over the first week. Called my care team. Tylenol basically stopped the headaches. They never came back. Zero side effects from Obinutuzumab. Today, I completed my first dose of Venetoclax at 400 mg after titrating up for a month. Maybe a
Started Acalabrutinib in August and had a couple of headaches over the first week. Called my care team. Tylenol basically stopped the headaches. They never came back. Zero side effects from Obinutuzumab. Today, I completed my first dose of Venetoclax at 400 mg after titrating up for a month. Maybe a
Lily_Pad_Master
in
CLL Support
6 years ago
MF transplant update - discharged from BMT unit and back home
The pre-transplant checks went well and commenced conditioning with
fludarabine
, busulfan and rATG, while sharing a room with another patient who was soon to be discharged. His discharge did not last long and he returned. Turned out that he contracted influenza in his brief time away.
The pre-transplant checks went well and commenced conditioning with
fludarabine
, busulfan and rATG, while sharing a room with another patient who was soon to be discharged. His discharge did not last long and he returned. Turned out that he contracted influenza in his brief time away.
Simon96
in
MPN Voice
6 years ago
90 days on Ibrutinib
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Mick491
in
CLL Support
6 years ago
IR vs FCR - PFS Sub-Group Analysis
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
avzuclav
in
CLL Support
6 years ago
Chemo cycles
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
dandelup
in
CLL Support
6 years ago
Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
avzuclav
in
CLL Support
6 years ago
First Cycle of FCR (IV)
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
Hidden
in
CLL Support
6 years ago
Inbrutnib side effects
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Turntwo
in
CLL Support
6 years ago
Cough post FCR
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Eebie1234
in
CLL Support
6 years ago
Front Line Treatment in Canada?
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
alpek
in
CLL Support
6 years ago
Confused about treatment option
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Kotek
in
CLL Support
6 years ago
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