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8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
9 months ago
Intrinsic Factor
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
Orchard33
in
Pernicious Anaemia Society
10 months ago
A helpful video for me.
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
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Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
10 months ago
symptoms with treated PA
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Laundretta
in
Pernicious Anaemia Society
10 months ago
Fundraising
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
10 months ago
Found a new way to screw up.
So I am transitioning from swimming due to water temperature to hiking up the side of a mountain at the same time I stopped injecting and went with sublingual. (Only a mile up the mountain.) My body did adjust which is not using up my B12 or reversing out. The only symptom that seemed to get worse and
So I am transitioning from swimming due to water temperature to hiking up the side of a mountain at the same time I stopped injecting and went with sublingual. (Only a mile up the mountain.) My body did adjust which is not using up my B12 or reversing out. The only symptom that seemed to get worse and
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
10 months ago
Dr. Mark Porter's B12 Times article
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Sneedle
in
Pernicious Anaemia Society
11 months ago
My B12 System
I still go with my neurological system in evaluating success. I am morphing into deciding on treatment for my B12 system which started when I abandoned the concept of adding one supplement at a time without taking into account they all work together and how and why they work together is unknown. A
I still go with my neurological system in evaluating success. I am morphing into deciding on treatment for my B12 system which started when I abandoned the concept of adding one supplement at a time without taking into account they all work together and how and why they work together is unknown. A
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
11 months ago
Vabysmo or Eylea
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
VikPa
in
Macular Society
4 months ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
11 months ago
Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
11 months ago
B12 Injections stopped as I do not meet crtieria.
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
b12timbo
in
Pernicious Anaemia Society
1 year ago
B12 / PA roller-coaster and further tests
Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while now but I initially put the exhaustion, brain fog, migraines with visual auras etc down to going through a difficult few years personally and that
Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while now but I initially put the exhaustion, brain fog, migraines with visual auras etc down to going through a difficult few years personally and that
TheSunshineSanctuary
in
Pernicious Anaemia Society
1 year ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
Recent results following increase in Levothyroxine dose.Anything of note?
HiFollowing advice on the forum I asked GP for screening for Vit D etc at my recent review of increased dose. I have generalised osteoarthritis and a family rich in autoimmune diseases. Please see my results. The only comment made by GP is that Vit D a bit low and to take over the counter supplement.
HiFollowing advice on the forum I asked GP for screening for Vit D etc at my recent review of increased dose. I have generalised osteoarthritis and a family rich in autoimmune diseases. Please see my results. The only comment made by GP is that Vit D a bit low and to take over the counter supplement.
Pebble23
in
Thyroid UK
1 year ago
Thyroid levels advice for friend with newly dx Hashi and P.A please?
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Opal79
in
Thyroid UK
1 year ago
Am I really lacking B12?
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
expatkerry
in
Pernicious Anaemia Society
1 year ago
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