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How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
7 months ago
Does this sound like osteoarthritis - or something else?
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
J972
in
NRAS
7 months ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
8 months ago
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Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
8 months ago
High B12 - more tests needed?
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
AnotherEarlyRiser
in
Pernicious Anaemia Society
8 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
8 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
8 months ago
Blood tests
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Thyroid UK
8 months ago
Blood test tomorrow
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Pernicious Anaemia Society
8 months ago
positive then negative intrinsic factor
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
Ellamae2
in
Pernicious Anaemia Society
8 months ago
Learning and Careers with B12 Anemia
Hi everyone, I wanted to know what everyone studied and does for a living here. I am feeling down because I have not done well with college and keeping a job because of my anemia. I just want to know if anyone else went thru that, still is dealing with that, and/or is able to live a normal life. I
Hi everyone, I wanted to know what everyone studied and does for a living here. I am feeling down because I have not done well with college and keeping a job because of my anemia. I just want to know if anyone else went thru that, still is dealing with that, and/or is able to live a normal life. I
GreenTamales
in
Pernicious Anaemia Society
8 months ago
one last question ( hopefully)
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
totallyFrustrated
in
Pernicious Anaemia Society
9 months ago
antibodies
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Sissiotto
in
Pernicious Anaemia Society
9 months ago
Stop Prednisone completely?
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
Mansplainer101
in
PMRGCAuk
9 months ago
Intrinsic factor antibody
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
9 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
9 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
9 months ago
Examining the Pathology of the Parietal cells
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
wedgewood
in
Pernicious Anaemia Society
9 months ago
Do I have P.A
Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test came back as negative but reading other people's post I am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test came back as negative but reading other people's post I am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Ralphylyn123
in
Pernicious Anaemia Society
9 months ago
Depression and PA
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
Aumshantii
in
Pernicious Anaemia Society
9 months ago
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