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PLEASE HELP WITH SUSPECTED B12 FUNCTIONAL DEFICIENCY
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
jarlethblue
in
Pernicious Anaemia Society
6 years ago
My doctor is listening!
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
expatkerry
in
Pernicious Anaemia Society
6 years ago
Tests after Biotin stopped
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
vocalEK
in
Thyroid UK
6 years ago
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"Likely peripheral spondyloarthropathy"
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
nanapat61
in
NRAS
6 years ago
Congenital Deficiency of Intrinsic Factor and Pernicious Anemia
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
dgnvb21144
in
Pernicious Anaemia Society
6 years ago
Awaiting RA diagnosis
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
twinks1954
in
NRAS
6 years ago
Recent PA diagnosis, serum levels high from oral cyanocobalamin, symptoms persist
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Greena51
in
Pernicious Anaemia Society
6 years ago
Pain without obvious inflammation..... confused
Im about 15 years past diagnosis, (I’m aged 49 now) but still don’t properly understand this disease..... at the moment I know my bloods are good (tested last week), only ESR is slightly raised above ‘normal’ at ‘10’. I’m on 20mg methotrexate plus hydroxychloroquine. But I am in so much pain in my
Im about 15 years past diagnosis, (I’m aged 49 now) but still don’t properly understand this disease..... at the moment I know my bloods are good (tested last week), only ESR is slightly raised above ‘normal’ at ‘10’. I’m on 20mg methotrexate plus hydroxychloroquine. But I am in so much pain in my
girli1111
in
NRAS
6 years ago
Hashimotos or Vitamin Deficiency, latest blood results, advice needed please.
I posted 3 months ago and got some very good advice from the community. I am due to see the Endo on Friday concerning the nodules in my thyroid which have grown larger and would like to be armed with as much information as possible before I go. A brief recap. I had a thorough check up whilst in Turkey
I posted 3 months ago and got some very good advice from the community. I am due to see the Endo on Friday concerning the nodules in my thyroid which have grown larger and would like to be armed with as much information as possible before I go. A brief recap. I had a thorough check up whilst in Turkey
Sue394
in
Thyroid UK
6 years ago
High B12, High Folate, High MCH
Hi all, I have high b12 of 986, high folate >20, and high MCH 32.7. My symptoms are fatigue, burning swollen tongue, joint pain, muscle aches, brain fog. I have a history of H pylori and have Hashimoto’s Thyroiditis. My doctor has ordered the intrinsic factor test to rule out PA. Is this enough testing
Hi all, I have high b12 of 986, high folate >20, and high MCH 32.7. My symptoms are fatigue, burning swollen tongue, joint pain, muscle aches, brain fog. I have a history of H pylori and have Hashimoto’s Thyroiditis. My doctor has ordered the intrinsic factor test to rule out PA. Is this enough testing
thyroidrose
in
Pernicious Anaemia Society
6 years ago
Intrinsic factor blood test
Hi, I'm getting my intrinsic factor blood test on Friday can anyone advise if I just take tablets as usual before I go ? ( I take them the night before ) Tia 😊
Hi, I'm getting my intrinsic factor blood test on Friday can anyone advise if I just take tablets as usual before I go ? ( I take them the night before ) Tia 😊
Verve001
in
Thyroid UK
6 years ago
B12 deficiency, injections and blood test results
Hello, I wondered whether there's anyone out there with knowledge of B12 deficiency? I've been feeling rubbish with loads of strange symptoms for at least a couple of years. My ferritin is always lowish - hovering around 15-18 ug/L. My folate was 11 ug/L in January, 10 in June and now 9.
Hello, I wondered whether there's anyone out there with knowledge of B12 deficiency? I've been feeling rubbish with loads of strange symptoms for at least a couple of years. My ferritin is always lowish - hovering around 15-18 ug/L. My folate was 11 ug/L in January, 10 in June and now 9.
BlackInk
in
Pernicious Anaemia Society
6 years ago
81 year old mum- secondary hypo?
I’m still trying to help my lovely old mum who has no diagnosis of thyroid disease but is still suffering from low mood and many of the symptoms I had before I introduced T3. She’s been told to return to doctor in a year unless symptoms increase. Her in range TSH has always confounded me, due to my
I’m still trying to help my lovely old mum who has no diagnosis of thyroid disease but is still suffering from low mood and many of the symptoms I had before I introduced T3. She’s been told to return to doctor in a year unless symptoms increase. Her in range TSH has always confounded me, due to my
Kipsy
in
Thyroid UK
6 years ago
Gastroenterology results: need help interpreting please
Got sent a large amount of final Gastroenterology results, and there are some things on it that I need help with, if anyone can read through it, I'd be grateful: Just putting relevant bits in since it's 12 pages long. Potassium level: 5.1 (3.5- 5.0 mmol/L) Sodium level : 146 (range 135-145 mmol/L)
Got sent a large amount of final Gastroenterology results, and there are some things on it that I need help with, if anyone can read through it, I'd be grateful: Just putting relevant bits in since it's 12 pages long. Potassium level: 5.1 (3.5- 5.0 mmol/L) Sodium level : 146 (range 135-145 mmol/L)
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
6 years ago
Should I take Potassium?
I self-inject monthly for PA identified by intrinsic factor antibodies, even though my B12 was still in the normal low range at the time the IFAs were discovered. I have severe neuropathy that has not abated since I started injecting two years ago and has spread to my trunk and face. So far there is
I self-inject monthly for PA identified by intrinsic factor antibodies, even though my B12 was still in the normal low range at the time the IFAs were discovered. I have severe neuropathy that has not abated since I started injecting two years ago and has spread to my trunk and face. So far there is
gnnmi
in
Pernicious Anaemia Society
6 years ago
Update on: GP stopping my B12. Replacing with oral B12.
UPDATE: Hi everyone. Thanks to everyone who responded and advised me. I had the telephone consultation with my GP today. I have now had the decision to replace my injections with oral medication reversed. This is the gist of how the consultation went (excuse any lack of knowledge/understanding at times
UPDATE: Hi everyone. Thanks to everyone who responded and advised me. I had the telephone consultation with my GP today. I have now had the decision to replace my injections with oral medication reversed. This is the gist of how the consultation went (excuse any lack of knowledge/understanding at times
Holly2201
in
Pernicious Anaemia Society
6 years ago
‘Normal’ B12 level but antibodies can it be P.A.?
I am struggling at the moment with chest tightness, shortness of breath and have been to the GP and A&E and understandably investigations have taken us down respiratory/cardiac route. They seem to be OK I have had two ECG and blood tests results of the second lot are in process. I have Hashimotos hypothyroid
I am struggling at the moment with chest tightness, shortness of breath and have been to the GP and A&E and understandably investigations have taken us down respiratory/cardiac route. They seem to be OK I have had two ECG and blood tests results of the second lot are in process. I have Hashimotos hypothyroid
Sususulio
in
Pernicious Anaemia Society
6 years ago
Testing Intrinsic Factor and others
Can you test for intrinsic factor while on supplementation? I also have had redux and burning for several years and wonder if the PA test will also be accurate? I have several autoimmune issues...RA, gluten intolerant, hashimotos thyroid diagnosed on pathological report, but antibody test now was fine
Can you test for intrinsic factor while on supplementation? I also have had redux and burning for several years and wonder if the PA test will also be accurate? I have several autoimmune issues...RA, gluten intolerant, hashimotos thyroid diagnosed on pathological report, but antibody test now was fine
Shashapoo
in
Pernicious Anaemia Society
6 years ago
A little advice re: blood test if possible?
Hi all, I've popped over here from the PAS forum as I've recently had my Thyroid Function Test results back. A little background info, it was discovered that I didn't have the intrinsic factor when I was about 10 years old so had PA. Nothing was ever mentioned about it after that. I have always been
Hi all, I've popped over here from the PAS forum as I've recently had my Thyroid Function Test results back. A little background info, it was discovered that I didn't have the intrinsic factor when I was about 10 years old so had PA. Nothing was ever mentioned about it after that. I have always been
wendybee
in
Thyroid UK
6 years ago
8 years of anemia despite PA diagnosis and consistent treatment
This will be quite long as my history with anemia has been ongoing and frustrating for years (as well as confounding to my doctors). I was diagnosed with PA 8 years ago with "marginally low" B12 (US 212 with range 200-900), positive intrinsic factor blocking antibody test, and macrocytic anemia. I was
This will be quite long as my history with anemia has been ongoing and frustrating for years (as well as confounding to my doctors). I was diagnosed with PA 8 years ago with "marginally low" B12 (US 212 with range 200-900), positive intrinsic factor blocking antibody test, and macrocytic anemia. I was
Bandit224
in
Pernicious Anaemia Society
6 years ago
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