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diagnosed
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Moon1309
in
Pernicious Anaemia Society
2 years ago
feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY results
Hello, I hope you are all doing well! Quick question, does daily aspirin lower FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY or is this a result of ET? My 16 yo daughters results have dropped from date: 12/21 - 44L to date: 06/22 - 37L everything else is normal, with the
Hello, I hope you are all doing well! Quick question, does daily aspirin lower FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY or is this a result of ET? My 16 yo daughters results have dropped from date: 12/21 - 44L to date: 06/22 - 37L everything else is normal, with the
Piperpeeps
in
MPN Voice
2 years ago
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should I be concerned
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
Peppermints
in
Thyroid UK
2 years ago
intrinsic factor antibody test results
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Tinglypalps
in
Pernicious Anaemia Society
2 years ago
thyroid test results after a 25mg increase, could someone have a look for me ..
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
Spoticus
in
Thyroid UK
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
privet blood tests and privet specialist
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
Intrinsic Factor blood test - Vitamin B12 deficiency
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
jules1955
in
PMRGCAuk
2 years ago
my biologic drugs stopped due to leg ulcer
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
Flatstanley
in
NRAS
2 years ago
Normal IF test results
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
MyrtleMac
in
Pernicious Anaemia Society
2 years ago
Positive Intrinsic Factor
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
Ecf123
in
Pernicious Anaemia Society
2 years ago
Did Anyone With Diagnosed Pernicious Anaemia or B12 Deficiency have rapid weight gain before the deficiency was found?
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
Blearyeyed
in
Pernicious Anaemia Society
2 years ago
Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
Advice from the experts please?
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
Emmers5
in
Pernicious Anaemia Society
2 years ago
Low ferritin question
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Lunadoo
in
Pernicious Anaemia Society
2 years ago
B12 injections to buy - UK
Hi there I’m looking to start b12 injections. Does anyone know how frequent you do them? I’ve never been officially diagnosed with PA - I had a negative intrinsic factor twice so the doctors are adamant I don’t have PA. I’ve had tingling and burning in my feet, but my doctor is convinced it’s unrelated
Hi there I’m looking to start b12 injections. Does anyone know how frequent you do them? I’ve never been officially diagnosed with PA - I had a negative intrinsic factor twice so the doctors are adamant I don’t have PA. I’ve had tingling and burning in my feet, but my doctor is convinced it’s unrelated
mistygrey
in
Pernicious Anaemia Society
2 years ago
Need some advice for my mother’s blood test results
Rheumatoid factor level. 37. Range 0-13 Anti-cyclic citrullinated peptide 215. Range 0-6.9 ESR. 50 My mother is seeing a Rheumatologist on the 18th July and has been told yesterday by her Dr that she will need to go on a drug called Methotrexate. I have just started researching this drug and I feel
Rheumatoid factor level. 37. Range 0-13 Anti-cyclic citrullinated peptide 215. Range 0-6.9 ESR. 50 My mother is seeing a Rheumatologist on the 18th July and has been told yesterday by her Dr that she will need to go on a drug called Methotrexate. I have just started researching this drug and I feel
Bean101
in
NRAS
2 years ago
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