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Chemo question
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Buster98
in
My Ovacome
5 months ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
7 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
7 months ago
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How to Know When Disimpaction is Complete
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
Maplelover
in
ERIC
4 months ago
worried
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Sarah1611
in
Crohn's and Colitis Support
4 months ago
ibs an a wee rant
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
BaneOfRagnar
in
IBS Network
4 months ago
Inulin
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
MissDemeanour191
in
Thyroid UK
4 months ago
Latest results - 6 weeks pregnant
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Molly161018
in
Thyroid UK
4 months ago
Update: opinions please
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Popcorn12345
in
Pernicious Anaemia Society
4 months ago
hole in windpipe
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
Von66
in
Oesophageal & Gastric Cancer
4 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
4 months ago
Advice regarding alcohol and IBS!
I’m only 3 months into my possible IBS journey and am 6 days into a flare up. I did Dry February and was IBS free!! However we went on holiday and I had wine. Got back on Thursday and on Friday it started…has anyone noticed that alcohol exacerbates IBS? The doctor has given me mebeverine which might
I’m only 3 months into my possible IBS journey and am 6 days into a flare up. I did Dry February and was IBS free!! However we went on holiday and I had wine. Got back on Thursday and on Friday it started…has anyone noticed that alcohol exacerbates IBS? The doctor has given me mebeverine which might
Martini1
in
IBS Network
4 months ago
Vitamin B12 deficiency diagnosis and management - New NICE guidance
https://www.nice.org.uk/guidance/ng239/chapter/recommendations#recognising-vitamin-b12-deficiency
https://www.nice.org.uk/guidance/ng239/chapter/recommendations#recognising-vitamin-b12-deficiency
Pasionaria
in
Thyroid UK
4 months ago
Vitamins D and K7
I was diagnosed with hypothyroidism nine months ago, and prescribed 50mcg levothyroxine per day. No mention was made of Vitamin D results or any related issues like ferritin,or B12. I take Vitamin D 2200iu throughout Winter, and, as of October 23, after some online research, added Vitamin K2, 100 ug.
I was diagnosed with hypothyroidism nine months ago, and prescribed 50mcg levothyroxine per day. No mention was made of Vitamin D results or any related issues like ferritin,or B12. I take Vitamin D 2200iu throughout Winter, and, as of October 23, after some online research, added Vitamin K2, 100 ug.
lalage1979
in
Thyroid UK
4 months ago
House legislation aims to close a regulatory loophole to improve patient safety of nuclear medicine diagnostic tests in oncology&cardiology
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
cujoe
in
Fight Prostate Cancer
7 months ago
immunotherapy
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
Leniko
in
My Ovacome
7 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
7 months ago
New Year- New Challenges.
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Vindicatrix
in
CLL Support
7 months ago
super high gastrin level
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
Lhood08
in
Pernicious Anaemia Society
4 months ago
Actinic Keratosis
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
mbr8076
in
MPN Voice
4 months ago
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