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AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
3 months ago
Alpha-lipoic acid
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
T108
in
Early CKD Support
4 months ago
To come off Hydroxychoroquine with No alternative drug replacement for it.
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
KnitSewPurl
in
LUPUS UK
4 months ago
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First three weeks on Prednisolone !
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
Mistyfied
in
PMRGCAuk
4 months ago
shortness of breath subsequent to zoledronic acid infusion
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Angel_doll
in
PMRGCAuk
4 months ago
Alendronic Acid and ears
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
Daffodilia
in
PMRGCAuk
4 months ago
Endometriosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Women's Health
4 months ago
Endo diagnosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Endometriosis UK
4 months ago
zoledronic acid infusion and osteoarthritis
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
4 months ago
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discuss my osteoporosis with? Thank you.
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Kakally
in
PMRGCAuk
4 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
4 months ago
marked facet arthropathy lower lumbar spine
I have also been diagnosed with spinal arthropathy anyone else got this this, I wander if zoledronic acid infusion will be any help with this.
I have also been diagnosed with spinal arthropathy anyone else got this this, I wander if zoledronic acid infusion will be any help with this.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
Teriparatide - what to do next?
I’ve recently finished 2 years of Teriparatide injections. Endocrinologist wants me to take Alendronic acid tablets but I’m not keen. Teriparatide is the first treatment I’ve had and osteoporosis classed as severe. One fracture of L2 few years back. I wondered what protocol other people have tried after
I’ve recently finished 2 years of Teriparatide injections. Endocrinologist wants me to take Alendronic acid tablets but I’m not keen. Teriparatide is the first treatment I’ve had and osteoporosis classed as severe. One fracture of L2 few years back. I wondered what protocol other people have tried after
Snowybear
in
Bone Health and Osteoporosis UK
4 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
4 months ago
IV Zoledronic acid.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
Lion321
in
Advanced Prostate Cancer
4 months ago
Pain relief advice
Hi, I had a laprocospy in November 2022. Since then I have had a miscarriage and been really struggling with ongoing severe pain and swelling. Awaiting a further laprocospy but this could be 12-18 months before I get a date. I have been contemplating going privately or trying GnRh injections until I
Hi, I had a laprocospy in November 2022. Since then I have had a miscarriage and been really struggling with ongoing severe pain and swelling. Awaiting a further laprocospy but this could be 12-18 months before I get a date. I have been contemplating going privately or trying GnRh injections until I
November22
in
Endometriosis UK
4 months ago
Has anyone taken a non-medication route and seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Hello, I have osteoporosis and been advised to take medication - either HRT or Alendronate. However, I as an alternative wondered whether anyone who is not on medication has seen an improvement in their osteoporosis through only supplements/diet/exercise?
Houseelf
in
Bone Health and Osteoporosis UK
4 months ago
Zoledronic Acid - rare side effects?
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
Green_girl
in
Bone Health and Osteoporosis UK
4 months ago
Is all the extra medication needed?
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Stargiver
in
PMRGCAuk
4 months ago
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