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Moving on to Provenge/Sipuleucel-t
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
Lavender22
in
Advanced Prostate Cancer
4 months ago
Rising T Bili on Xeloda
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Flower1513
in
SHARE Metastatic Breast Cancer
4 months ago
Need help with cancer pain
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
hopeoflife
in
SHARE Metastatic Breast Cancer
4 months ago
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What's on at Ovacome next week? (week commencing Monday 22 April 2024)
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
What are my options?
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
spencoid2
in
Advanced Prostate Cancer
4 months ago
colonoscopy and endoscopy concerns
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
Claybuster
in
CLL Support
4 months ago
radiation treatments led to perforated colon?
St. Patrick’s Day I collapsed in pain and was rushed to ER. A CT ABD PE revealed a perforated colon near my rectum, broad internal infection (sepsis) with kidneys and liver shutting down. A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs
St. Patrick’s Day I collapsed in pain and was rushed to ER. A CT ABD PE revealed a perforated colon near my rectum, broad internal infection (sepsis) with kidneys and liver shutting down. A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs
kreg001
in
Advanced Prostate Cancer
2 months ago
In vivo & in vitro: CRISPR 9 new approach to attack PCa proof of concept
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
Maxone73
in
Advanced Prostate Cancer
4 months ago
Taking Meds in the AM vs PM
Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before bed. I’ve heard that some people prefer a nighttime dosage to sleep through any nausea or fatigue Interested in any and all experiences Thanks
Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before bed. I’ve heard that some people prefer a nighttime dosage to sleep through any nausea or fatigue Interested in any and all experiences Thanks
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
4 months ago
Anyone participated in AMG 509 Clinical trial? - NCT04221542
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
4 months ago
cisplatin
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Green999
in
My Ovacome
2 months ago
9 years - first detectable .012
Hi everyone, I’ve always been <.008. This time same lab I am .012. RP 2015, Gleason 7, not sure which primary number, no surgical margins, cancer in 2 quadrants, no lymph node invasion. I always go to the same lab here in Canada, LifeLabs. Have Uro appointment on Thursday. Any thoughts on what I might
Hi everyone, I’ve always been <.008. This time same lab I am .012. RP 2015, Gleason 7, not sure which primary number, no surgical margins, cancer in 2 quadrants, no lymph node invasion. I always go to the same lab here in Canada, LifeLabs. Have Uro appointment on Thursday. Any thoughts on what I might
Philosophy165
in
Advanced Prostate Cancer
4 months ago
Elizabeth
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Etblue
in
Thyroid UK
4 months ago
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
4 months ago
What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if
starrynight5626
in
My Ovacome
4 months ago
It wont be long
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
TheFlyer
in
CLL Support
4 months ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
11 months ago
Help needed
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Tedsgran
in
Bone Health and Osteoporosis UK
7 months ago
salvage radiation after surgery?
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Granolaberry
in
Prostate Cancer Network
4 months ago
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