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Introductions
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
alimitchell1
in
My MSAA Community
6 years ago
What can I expect at first Rheumy appt?
Hi all! I’m usually on the MS board but it turns out I probably have RA as well. Both my knees puffed up so bad 2 weeks ago I coundn’t even stand, much less walk. I got a steroid shot and some medrol for 5 days. Since then my wrists, ankles, finger and toes have been very painful and sometimes puffy.
Hi all! I’m usually on the MS board but it turns out I probably have RA as well. Both my knees puffed up so bad 2 weeks ago I coundn’t even stand, much less walk. I got a steroid shot and some medrol for 5 days. Since then my wrists, ankles, finger and toes have been very painful and sometimes puffy.
Qt314grl
in
NRAS
6 years ago
So frustrated over DMT & symptoms
I have tried to stay positive when possible. My latest frustration..since January I've had numb legs, back pain & slightly burning feeling, brain fog & numbing. I was in the weening off Tysibri stage, only using Copaxone -3x's a week & getting 3 Solumedrol infusions every 4 wks. This for me was a disaster
I have tried to stay positive when possible. My latest frustration..since January I've had numb legs, back pain & slightly burning feeling, brain fog & numbing. I was in the weening off Tysibri stage, only using Copaxone -3x's a week & getting 3 Solumedrol infusions every 4 wks. This for me was a disaster
MaryMargaret1966
in
My MSAA Community
6 years ago
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Migraines
I just got some solumedrol done last night do to migraines. One of my lesions have doubled in size. My doctor doesn't know for sure if the migraines are from my lesion or if I am having a relapse. Getting some more sulomedrol for a couple more days.
I just got some solumedrol done last night do to migraines. One of my lesions have doubled in size. My doctor doesn't know for sure if the migraines are from my lesion or if I am having a relapse. Getting some more sulomedrol for a couple more days.
Kellyb1976
in
My MSAA Community
6 years ago
New Medicine
I am in Italy and a friend with Crohn's told me about a new medicine called Cortiment 9mg, Budesonide. It is a class of corticosteriods. He says it has very little side effects. Has anyone ever heard of this and could it be used to treat PMR? I am currently on 6 mgs of Medrol and would love to lose all
I am in Italy and a friend with Crohn's told me about a new medicine called Cortiment 9mg, Budesonide. It is a class of corticosteriods. He says it has very little side effects. Has anyone ever heard of this and could it be used to treat PMR? I am currently on 6 mgs of Medrol and would love to lose all
smoothilly
in
PMRGCAuk
6 years ago
How long after a course of steroids do you notice an effect?
So I had a 3 day infusion of Solumedrol. Last dose on Saturday. And today, Wednesday, I'm feeling almost human (I am so grateful whatever the reason, but is this the steroids or just coincidence?) 🙏🌈😊
So I had a 3 day infusion of Solumedrol. Last dose on Saturday. And today, Wednesday, I'm feeling almost human (I am so grateful whatever the reason, but is this the steroids or just coincidence?) 🙏🌈😊
erash
in
My MSAA Community
6 years ago
PolyBursitis Rheumatica & Bacon Sandwiches
Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first question was what exactly happens in the body with PMR? She said PMR is really not a good name for this disorder because the inflammation affects the bursa, the small fluid-filled sacs that cushion joints. Then I asked
Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first question was what exactly happens in the body with PMR? She said PMR is really not a good name for this disorder because the inflammation affects the bursa, the small fluid-filled sacs that cushion joints. Then I asked
Marie1479
in
PMRGCAuk
6 years ago
GP appointment
How do you get one?!? I can’t ever get past the receptionist. For the 3rd time in 6 wks I’ve had a chest infection that has quickly become nasty. On Tuesday I turned up and tried to demand an appointment and I got a letter from the practice to say my behaviour was inappropriate and won’t be tollerated
How do you get one?!? I can’t ever get past the receptionist. For the 3rd time in 6 wks I’ve had a chest infection that has quickly become nasty. On Tuesday I turned up and tried to demand an appointment and I got a letter from the practice to say my behaviour was inappropriate and won’t be tollerated
Kazwaz1980
in
LUPUS UK
6 years ago
Medrol injection
I had a Medrol injection early December and it was brilliant. I started hydrochloroquine end of Dec but symptoms started creeping back in during February. 4 days ago I had a 2nd injection, but i don’t feel it has been as successful. My fingers have gone down but first finger isn’t perfect. Toes are now
I had a Medrol injection early December and it was brilliant. I started hydrochloroquine end of Dec but symptoms started creeping back in during February. 4 days ago I had a 2nd injection, but i don’t feel it has been as successful. My fingers have gone down but first finger isn’t perfect. Toes are now
Kazwaz1980
in
LUPUS UK
7 years ago
Herniated Disc MicroDiscectomy
Hello everyone. I wanted to post here to update everyone on my condition so that it can be a learning experience for those with similar condition. I had 6 weeks intense sciatica due to L5-S1 herniated disc and nerve root compression. The symptoms I felt were throbbing pain in buttock, going down to
Hello everyone. I wanted to post here to update everyone on my condition so that it can be a learning experience for those with similar condition. I had 6 weeks intense sciatica due to L5-S1 herniated disc and nerve root compression. The symptoms I felt were throbbing pain in buttock, going down to
Alisheikalisheikh
in
NRAS
6 years ago
Skin Problems Associated with PMR/ GCA?
I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly on my lower legs , ankles and feet in various shapes; I have had many small squamous cell carcinomas removed due to a life in the sun until recently; still have a few tiny ones needing attention. I know what they are and how
I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly on my lower legs , ankles and feet in various shapes; I have had many small squamous cell carcinomas removed due to a life in the sun until recently; still have a few tiny ones needing attention. I know what they are and how
Alliand
in
Vasculitis UK
7 years ago
Major Panic Atasck
Well the short of it. I was about to graduate in 2010 with a degree in Criminal Justice. I had to have acid reflux surgery and afterwards was given too much of the steroid Medrol. At any rate my body freaked out and for the next month I had constant panic attacks until my doctor prescribed me Paxil
Well the short of it. I was about to graduate in 2010 with a degree in Criminal Justice. I had to have acid reflux surgery and afterwards was given too much of the steroid Medrol. At any rate my body freaked out and for the next month I had constant panic attacks until my doctor prescribed me Paxil
MattFW
in
Anxiety Support
7 years ago
Hello
Hi! I am new here. I was diagnosed with behcets last November 2017. I have been taking methylprednisolone since then and now it has been tapered to 8mg medrol once a day. My face is really puffy, though i know it is the side effect of the medicine. I just wonder when it will subside? Or will it ever
Hi! I am new here. I was diagnosed with behcets last November 2017. I have been taking methylprednisolone since then and now it has been tapered to 8mg medrol once a day. My face is really puffy, though i know it is the side effect of the medicine. I just wonder when it will subside? Or will it ever
Joyceegirl
in
Behçet's UK
7 years ago
Can you go from adrenal fatigue to taking too much adrenal supplements...?
I took Medrol (4 mg daily) for a couple of years, prescribed by hormone doctor for adrenal fatigue...one day, that felt too much, so I ordered Metavive III instead and have been doing great on it. However, in the past couple of weeks, I have been feeling slightly hyperthyroid and wanted to know if anyone
I took Medrol (4 mg daily) for a couple of years, prescribed by hormone doctor for adrenal fatigue...one day, that felt too much, so I ordered Metavive III instead and have been doing great on it. However, in the past couple of weeks, I have been feeling slightly hyperthyroid and wanted to know if anyone
Hidden
in
Thyroid UK
7 years ago
Tomorrow begins the test
Well the home nurse will be here at 9 tomorrow morning to set me up for my first solumedrol iv infusion. Been a long time coming so I sure hope it was with the wait. Blessings to all Donnie
Well the home nurse will be here at 9 tomorrow morning to set me up for my first solumedrol iv infusion. Been a long time coming so I sure hope it was with the wait. Blessings to all Donnie
Doubled51
in
My MSAA Community
7 years ago
Exasperated
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
Zapped
in
My MSAA Community
7 years ago
Medications that are BAD for your bones?
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Hidden
in
Osteoporosis Support
7 years ago
PMR where are you?
Recap, 1 week ago my Rheumatologist gave me a shot of Depo Medrol because I had a terrible flare due to tapering to quickly that affected not just the shoulders but the fingers and knees. She advised me to stay at my current dose of Rayos for 2 months along with Actemra. 2 days after the shot all the
Recap, 1 week ago my Rheumatologist gave me a shot of Depo Medrol because I had a terrible flare due to tapering to quickly that affected not just the shoulders but the fingers and knees. She advised me to stay at my current dose of Rayos for 2 months along with Actemra. 2 days after the shot all the
Marie1479
in
PMRGCAuk
7 years ago
Depo medrol pain! Ouch!
Hey guys! I had Depo medrol injection for inflammation in my buttock area following a Sequestrated Disc and Sciatic nerve pull. The injection site hurts like f***... is that normal? :/ It feels sore and weird ...
Hey guys! I had Depo medrol injection for inflammation in my buttock area following a Sequestrated Disc and Sciatic nerve pull. The injection site hurts like f***... is that normal? :/ It feels sore and weird ...
Alisheikalisheikh
in
NRAS
7 years ago
34 yr old with Temperal Arteritis?
Anyone out there younger with this diagnosis? I believe this is what I'm dealing with but docs don't even want to entertain the idea because I'm too young. I'm 34. I'm feeling lost & scared. I'm on 4mg dose pack of Medrol steroid. It isn't helping much. I took this same dose pack a month ago & it helped
Anyone out there younger with this diagnosis? I believe this is what I'm dealing with but docs don't even want to entertain the idea because I'm too young. I'm 34. I'm feeling lost & scared. I'm on 4mg dose pack of Medrol steroid. It isn't helping much. I took this same dose pack a month ago & it helped
Hmc10
in
PMRGCAuk
7 years ago
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